Skip to content

Maryland · Public charity

Hydrocephalus Association

Find a cure for hyrocephalus and improve the lives of those impacted. We will accomplish this by collaborating with patients, caregivers, researchers and industry, raising awareness, and funding innovative, high-impact research to prevent, treat and cure hydrocephalus.

$880k
Granted FY2024(still arriving)
11
Itemized grants FY2024
9
Organizations funded FY2023
33%
First-time grantees FY2023
Read the full brief
Itemized, FY2024
$824k
The rest is grants the schedule does not break out
Median grant, FY2024
$75,000
Largest grant, FY2024
$173,222
Organizations funded a year
6 to 10
FY2017 to FY2023
States reached, FY2024
8
Total assets, FY2024
$3.5M

How open it is to new grantees

In FY2023, 33% of the organizations Hydrocephalus Association funded were first-time grantees, receiving 29% of its grant dollars.

New vs renewed · share of each year

In FY2023, 71% of grant dollars renewed an existing relationship; $150k went to new ones.

50%100%’18’19’20’21’22’23
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’18’19’20’21’22’23
EducationHealthScience & TechOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY2024still arriving10$774k60%
FY20239$511k33%
FY20227$588k29%
FY20216$396k33%
FY20208$661k25%
FY20199$1.2M33%
FY20189$1.2M56%
FY201710$1.2Mn/a
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$6.9MEducation$50k

Where its grants go

Grant dollars by states, across the years we hold.

Which US states its grants reach

WA
MI
NY
MA
IA
IN
OH
NJ
CT
CA
UT
CO
MO
KY
VA
MD
AZ
SC
TX

Top grantees

Largest recipients by total granted, FY2017 to FY2024, and the share of each one’s budget the grants supplied at peak.

GranteeTotal grantedYearsShare of their budget
Primary Children's Cancer$1,443,7348n/a
University of Utah$1,292,7858n/a
Washington University$892,69870%
The Cleveland Clinic Foundation Group Return$338,40880%
The Scintillon Institute$299,00039%
Hmh Hospitals Corporation$247,24210%
Children's Hospital Corporation$199,00030%
Boston Childrens Hospital$198,0002n/a
University of California San Francisco Foundation$125,00020%
Seattle Children's Hospital$100,00020%
Show all 31 grantees
All grantees of Hydrocephalus Association by total granted
GranteeTotal grantedYearsShare of their budget
Primary Children's Cancer$1,443,7348n/a
University of Utah$1,292,7858n/a
Washington University$892,69870%
The Cleveland Clinic Foundation Group Return$338,40880%
The Scintillon Institute$299,00039%
Hmh Hospitals Corporation$247,24210%
Children's Hospital Corporation$199,00030%
Boston Childrens Hospital$198,0002n/a
University of California San Francisco Foundation$125,00020%
Seattle Children's Hospital$100,00020%
Sanford Burnham Prebys Medical Discovery Institute$85,00010%
Umass Chan Medical School Foundation Inc$85,0001n/a
Johns Hopkins Global Inc$85,0001n/a
Boston Children's Network Specialty Physicians Inc$85,00010%
University of Connecticut$75,0001n/a
Wayne State University$74,8772n/a
The Research Foundation for The State University of New York$50,00010%
Indiana University School of Medicine$50,0001n/a
Children's Hospital Los Angeles$50,00010%
Baylor College of Medicine$50,00010%
University of Kentucky$50,0001n/a
Western Michigan University Homer Stryker Md School of Medicine$50,00010%
Beth Israel Deaconess Medical Center Inc$50,00010%
University of Arizona$50,0001n/a
State University of Iowa$50,0001n/a
Virginia Commonwealth University Foundat$50,00010%
Children's Hospital Medical Center$50,00010%
Regents of the University of Michigan$49,8901n/a
University of Colorado Foundation$49,40010%
Johns Hopkins University$27,88610%
University of Washington$25,0001n/a

Plus 2 recipients with no EIN on record ($146k), not named here.

Where it is load-bearing

Each grantee by its size and the share of its budget Hydrocephalus Association supplied at peak.

25%50%75%100%$10M$100Mgrantee revenue →↑ funder's share of their budgetWashington University: $892,698 over 7y, 0.0% of budgetThe Cleveland Clinic Foundation Group Return: $338,408 over 8y, 0.0% of budgetThe Scintillon Institute: $299,000 over 3y, 8.7% of budgetHmh Hospitals Corporation: $247,242 over 1y, 0.0% of budgetChildren's Hospital Corporation: $199,000 over 3y, 0.0% of budgetUniversity of California San Francisco Foundation: $125,000 over 2y, 0.0% of budgetSeattle Children's Hospital: $100,000 over 2y, 0.0% of budgetSanford Burnham Prebys Medical Discovery Institute: $85,000 over 1y, 0.1% of budgetBoston Children's Network Specialty Physicians Inc: $85,000 over 1y, 0.4% of budgetThe Research Foundation for The State University of New York: $50,000 over 1y, 0.0% of budgetChildren's Hospital Los Angeles: $50,000 over 1y, 0.0% of budgetBaylor College of Medicine: $50,000 over 1y, 0.0% of budgetWestern Michigan University Homer Stryker Md School of Medicine: $50,000 over 1y, 0.0% of budgetBeth Israel Deaconess Medical Center Inc: $50,000 over 1y, 0.0% of budgetVirginia Commonwealth University Foundat: $50,000 over 1y, 0.3% of budgetChildren's Hospital Medical Center: $50,000 over 1y, 0.0% of budgetUniversity of Colorado Foundation: $49,400 over 1y, 0.0% of budgetJohns Hopkins University: $27,886 over 1y, 0.0% of budget

Tap a dot to name the grantee.

How this is measured
Share of budget is the funder’s grant in a year over the grantee’s total revenue that year, at its highest across the years we hold; revenue is from all sources. Only grantees confirmed against their own filings, whose grants do not exceed their revenue, are plotted: the largest 18.

Nonprofits that may fit its grantmaking

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

American Endowment FoundationOH10× affinity5 shared granteesties to 5 of 5Hover any node to trace its alignments.Compare side by side →

Open a dossier: American Endowment Foundation · Charities Aid Foundation America · National Philanthropic Trust · Donor Advised Charitable Giving Inc · Fidelity Investments Charitable Gift Fund · Amazonsmile Foundation

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

Compare Hydrocephalus Association with peer funders

About Hydrocephalus Association

How much does Hydrocephalus Association give?
Hydrocephalus Association reported 11 itemized grants totaling $823,833, out of $879,590 in total grant expense reported on the return in its FY2024 IRS filing. It funded between 6 and 10 organizations a year over FY2017 to FY2023.
What does Hydrocephalus Association fund?
By grant dollars over FY2017 to FY2024, its largest causes are Health (99%), Education (1%).
Who are Hydrocephalus Association's largest grantees?
By total granted over FY2017 to FY2024: Primary Children's Cancer ($1.4M), University of Utah ($1.3M), Washington University ($893k).
Does Hydrocephalus Association fund new organizations?
In FY2023, 33% of the organizations it funded were first-time grantees.
Which funders back the same organizations as Hydrocephalus Association?
Its strongest co-funders, measured against what their size predicts, include American Endowment Foundation, Charities Aid Foundation America, National Philanthropic Trust.
Where is Hydrocephalus Association based?
Hydrocephalus Association is based in MD.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 36 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

Play a game based on Hydrocephalus Association’s filings →

More from the funding graph