Maryland · Nonprofit
HHT FOUNDATION
HHT FOUNDATION (Maryland) receives grants from 49 organizations whose IRS filings report $4,438,923 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($1,368,513). 26 of them have funded it in more than one year, and 83% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $9.8M
- Funders on record
- 49
- Grants received
- $4.4M
- Net assets
- $7.2M
What Hht Foundation does
Mission
Hht Foundation international, inc. Is a not-for-profit organization dedicated to serving individuals affected by hereditary hemorrhagic telangiectasia (hht). The organization provides information to patients, family members, and healthcare professionals; offers support and community for patients and their families; raises funds to advance basic and clinical research; and sponsors research grants to promote scientific studies focused on hht.
As stated on its FY2025 Form 990.
Programs
Research - the research program supports funding for studies that advance understanding of the underlying mechanisms of hht, fosters the development of novel therapeutic approaches for treatment and disease management, and promotes translational research that leads to multi-center clinical trials. In addition, the hht international scientific conference is held biennially to facilitate collaboration and the exchange of scientific knowledge among researchers and clinicians.
$5,435,882 spentof which $2,385,005 as grants88% of program spendingEducation - the goal of the education program is to advance awareness, accurate diagnosis, and best-practice treatment of hht by supporting patient education and outreach, sponsoring educational conferences and professional meetings, and strengthening a network of comprehensive hht clinical centers of excellence.
$390,312 spent$470,997 earned by the program6% of program spendingPublic information - the goal of the public information program is to increase awareness of hereditary hemorrhagic telangiectasia (hht) among the general public, private sector, and governmental audiences through strategic engagement with the press and other media channels.
$290,891 spent5% of program spendingAdvocacy - the goal of the advocacy program is to represent and support individuals affected by hht by advancing recognition of the disorder and securing funding to expand awareness efforts, improve access to expert care, and promote participation in clinical trials.
$29,023 spent0% of program spending
The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $6,146,108.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2024 to 2025, from $5.2M to $8.1M (+56%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2019 1% · 2020 0% · 2021 0% · 2022 29% · 2023 56% · 2024 53% · 2025 45%. Grants only. Government contracts and fees sit inside program revenue.
94% of HHT FOUNDATION’s revenue is contributions — more donation-reliant than the typical peer (61% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Marianne Clancy
Executive director
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 5 funders to 20 funders, grant income rose $40k → $525k.
18 of 49 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 83% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of HHT FOUNDATION’s funders (the co-funder graph). Top 30 of 49 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
HHT FOUNDATION has a broad base — no single funder exceeds 31% of grant income, and it takes 3 funders to reach half.
the vertical line marks half of all grant income — 3 funders to its left
85% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund HHT FOUNDATION.
Largest funder’s share by year: 2017 81% · 2018 54% · 2019 39% · 2020 61% · 2021 24% · 2022 24% · 2023 28% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
36% of HHT FOUNDATION's funders are still giving 3 years after their first grant; 53% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
83% of HHT FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $763k that is directly attributable, 100% of it comes from funders outside Maryland, across 15 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $3.7M arriving through sponsors registered in 14 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
HHT FOUNDATION runs a healthier operating margin than three-quarters of the 2,127 community improvement nonprofits its size.
this organization peer median middle 50% of peers· 2,127 community improvement nonprofits $1M–$10M, FY2025
Government funding HHT FOUNDATION receives
Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $13.6M on record.
- Department of Defense$7.0M
- Department of Health and Human Services$6.6M
Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.
Organizations like HHT FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Maryland
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
86% of spending goes to programs.
Governance
Public support
91%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 51 states
Screen this organization
A dated, signed PDF of the compliance screen for HHT FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds HHT FOUNDATION?
- HHT FOUNDATION (Maryland) receives grants from 49 organizations whose IRS filings report $4,438,923 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($1,368,513). 26 of them have funded it in more than one year, and 83% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does HHT FOUNDATION have?
- IRS filings report 49 organizations giving $4,438,923 in grants to HHT FOUNDATION, 26 of which have funded it in more than one year.
- Who is the largest funder of HHT FOUNDATION?
- DONOR ADVISED CHARITABLE GIVING INC is the largest funder on record, with $1,368,513 in grants. The full list of funders is on this page.
- How can an organization like HHT FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Maryland. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 49 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing