Minnesota · Nonprofit
DOWN SYNDROME DIAGNOSIS NETWORK
DOWN SYNDROME DIAGNOSIS NETWORK (Minnesota) receives grants from 27 organizations whose IRS filings report $1,605,411 to it, the largest being NETWORK FOR GOOD ($1,264,439). 11 of them have funded it in more than one year, and 97% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $583k
- Funders on record
- 27
- Grants received
- $1.6M
- Net assets
- $539k
What Down Syndrome Diagnosis Network does
Mission
To connect support and provide accurate information to families with a down syndrome diagnosis
As stated on its FY2025 Form 990.
Programs
Connect - dsdn hosts annual retreats for moms and dads (separately) of children with down syndrome to allow them to connect, be inspired,recharge, and work on service projects for future expectant and newparents. The retreats are a 2-day event with meals included,motivational speakers, pampering sessions, and activities to promote connection amongst attendees. Revenue listed above includes registration and activity fees, exhibitor fees, and retreat sponsorships.
$503,414 spentof which $10,857 as grants$108,796 earned by the program100% of program spendingInform - dsdn's board members and volunteers attend down syndrome related conferences to share information about dsdn's services to families, local down syndrome organizations, and medical professionals. Dsdn team members also attend national medical conferences to advocate for an unbiased, up-to-date and factual down syndrome diagnosis forfamilies, as well as to share about dsdn's services. Dsdn also creates and distributes materials on delivering a down syndrome diagnosis to local organizations and medical professionals.
Support - dsdn provides support to expectant and new families through online support groups, which are now part of a dsdn mobile app. Dsdn also provides pregnancy gifts, new baby gifts, and welcome gifts when a new family joins our community, as well as care packages when a child is in the hospital, and memorial gifts when a child passes away. Each year, dsdn also offers adoption grants for families in the process of adopting a child with down syndrome. Also part of our support services, dsdn offers scholarships to attend the dsdn rockin' mom and rockin' dad retreats. Dsdn also awarded grants to local down syndrome organizations.
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $503,414.
The organization over time
Each line starts at 100 in 2020, so what you read is the shape rather than the size: 150 means half as much again as 2020, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2024 to 2025, from $628k to $549k (−13%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2023 7%. Grants only. Government contracts and fees sit inside program revenue.
80% of DOWN SYNDROME DIAGNOSIS NETWORK’s revenue is contributions — about as donation-reliant as the typical peer (83% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 6 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Melissa Shutwell
Executive director
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 1 funder to 8 funders, grant income rose $131k → $283k.
11 of 27 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 97% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of DOWN SYNDROME DIAGNOSIS NETWORK’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
DOWN SYNDROME DIAGNOSIS NETWORK leans on a few funders — its largest provides 79% of grant income and the top three 92%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
98% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund DOWN SYNDROME DIAGNOSIS NETWORK.
Largest funder’s share by year: 2017 100% · 2018 97% · 2019 95% · 2020 87% · 2021 95% · 2022 89% · 2023 68% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
27% of DOWN SYNDROME DIAGNOSIS NETWORK's funders are still giving 3 years after their first grant; 41% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
97% of DOWN SYNDROME DIAGNOSIS NETWORK's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $42k that is directly attributable, 88% of it comes from funders outside Minnesota, across 12 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $1.6M arriving through sponsors registered in 10 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
DOWN SYNDROME DIAGNOSIS NETWORK is better cushioned than half of the 8,464 health nonprofits its size.
this organization peer median middle 50% of peers· 8,464 health nonprofits $100k–$1M, FY2025
Organizations like DOWN SYNDROME DIAGNOSIS NETWORK
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Minnesota
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
80% of spending goes to programs.
Governance
Public support
99%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for DOWN SYNDROME DIAGNOSIS NETWORK: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds DOWN SYNDROME DIAGNOSIS NETWORK?
- DOWN SYNDROME DIAGNOSIS NETWORK (Minnesota) receives grants from 27 organizations whose IRS filings report $1,605,411 to it, the largest being NETWORK FOR GOOD ($1,264,439). 11 of them have funded it in more than one year, and 97% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does DOWN SYNDROME DIAGNOSIS NETWORK have?
- IRS filings report 27 organizations giving $1,605,411 in grants to DOWN SYNDROME DIAGNOSIS NETWORK, 11 of which have funded it in more than one year.
- Who is the largest funder of DOWN SYNDROME DIAGNOSIS NETWORK?
- NETWORK FOR GOOD is the largest funder on record, with $1,264,439 in grants. The full list of funders is on this page.
- How can an organization like DOWN SYNDROME DIAGNOSIS NETWORK find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Minnesota. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2020–2025), and the filings of 27 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing