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Ohio · Public charity

National Down Syndrome Congress

The mission of the NATIONAL DOWN SYNDROME CONGRESS is to provide information, advocacy, and support concerning all aspects of life for individuals with down syndrome.ndsc exists with the purpose to promote the interests of people with down syndrome, to educate through awareness, to advocate and ensure their rights are recognized and…

$43k
Granted FY2025(still arriving)
3
Itemized grants FY2025
2
Organizations funded FY2024
50%
First-time grantees FY2024
Read the full brief
Itemized, FY2025
$15k
The rest is grants the schedule does not break out
Median grant, FY2025
$5,100
Largest grant, FY2025
$5,100
Organizations funded a year
1 to 3
FY2022 to FY2024
States reached, FY2025
3
Total assets, FY2025
$745k

How open it is to new grantees

In FY2024, 50% of the organizations National Down Syndrome Congress funded were first-time grantees, receiving 50% of its grant dollars.

New vs renewed · share of each year

In FY2024, 50% of grant dollars renewed an existing relationship; $5k went to new ones.

50%100%’23’24
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’23’24
HealthHuman ServicesOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY2025still arriving3$15k100%
FY20242$10k50%
FY20233$24k100%
FY20221$24kn/a
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2022 to 2025.

Philanthropy$24kHealth$19kEducation$15kHuman Services$15k

Top grantees

Largest recipients by total granted, FY2022 to FY2025, and the share of each one’s budget the grants supplied at peak.

Where it is load-bearing

National Down Syndrome Congress supplied at least a quarter of the budget for 1 of its grantees at some point. The chart plots its 8 largest grantees; load-bearing ones sit top left.

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetNdsc Foundation Inc: $23,500 over 1y, 37% of budgetDown Syndrome Diagnosis Network: $10,000 over 2y, 0.9% of budgetDown Syndrome Affiliates in Action: $10,000 over 1y, 6.4% of budgetGlobal Down Syndrome Foundation: $9,000 over 1y, 0.2% of budgetThe University of Tennessee Foundation Inc: $5,100 over 1y, 0.0% of budgetSyracuse University: $5,100 over 1y, 0.0% of budgetBerry College Inc: $5,100 over 1y, 0.0% of budgetAssociation of University Centers on Disabilities: $5,000 over 1y, 0.1% of budget

Tap a dot to name the grantee.

How this is measured
Share of budget is the funder’s grant in a year over the grantee’s total revenue that year, at its highest across the years we hold; revenue is from all sources. Only grantees confirmed against their own filings, whose grants do not exceed their revenue, are plotted: the largest 8.

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About National Down Syndrome Congress

How much does National Down Syndrome Congress give?
National Down Syndrome Congress reported 3 itemized grants totaling $15,300, out of $42,800 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 1 and 3 organizations a year over FY2022 to FY2024.
What does National Down Syndrome Congress fund?
By grant dollars over FY2022 to FY2025, its largest causes are Philanthropy (32%), Health (26%), Education (21%).
Who are National Down Syndrome Congress's largest grantees?
By total granted over FY2022 to FY2025: Ndsc Foundation Inc ($24k), Down Syndrome Diagnosis Network ($10k), Down Syndrome Affiliates in Action ($10k).
Does National Down Syndrome Congress fund new organizations?
In FY2024, 50% of the organizations it funded were first-time grantees.
Where is National Down Syndrome Congress based?
National Down Syndrome Congress is based in OH.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 8 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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