Skip to content
Plinth

· Public charity

National Down Syndrome Congress

The mission of the NATIONAL DOWN SYNDROME CONGRESS is to provide information, advocacy, and support concerning all aspects of life for individuals with down syndrome.ndsc exists with the purpose to promote the interests of people with down syndrome, to educate through awareness, to advocate and ensure their rights are recognized and…

$43k
Granted FY2025still arriving
3
Grants FY2025still arriving
3
States reached
$5k
Largest
01What you fund
01100% classified

What you funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year — across FY20222025.

Philanthropy$24kHealth$19kEducation$15kHuman Services$15k
02FY2025 · 3 grants

Where the money goes

Your grants by size, and where they go.

The 3 grants below total $15,300 — the rows itemised in this filing. The $42,800 headline is the total grant expense reported on the return, so the remaining $27,500 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.

$5,100
Median grant
3
States reached
$745k
Total assets
Largest grants
RecipientAmount
BERRY COLLEGE$5,100
UNIVERSITY OF TENNESSEE FOUNDATION$5,100
SYRACUSE UNIVERSITY$5,100
02The need
03

Do your dollars go where the need is?

Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.

show:

Dollar for dollar, your grants (FY22–25) land where the poverty rate runs at 12%, against an area that typically sits at 9%. 85% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.

area typical 9%DOWN SYNDROME DIAGNOSIS NETWORK: $5k → 6%DOWN SYNDROME AFFILIATES IN ACTION: $10k → 13%SYRACUSE UNIVERSITY: $5k → 14%UNIVERSITY OF TENNESSEE FOUNDATION: $5k → 12%NDSC FOUNDATION INC: $24k → 13%BERRY COLLEGE: $5k → 15%GLOBAL DOWN SYNDROME FOUNDATION: $9k → 12%DOWN SYNDROME DIAGNOSIS NETWORK: $5k → 6%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount

Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.

US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving.

03Your field

The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.

1
National Down Syndrome Congress

The mission of the national down syndrome congress is to provide information, advocacy, and support concerning all aspects of life for individuals with down syndrome.ndsc exists with the purpose to promote the interests of people with down…

Health
2
North Carolina Down Syndrome Alliance Inc

To empower, connect, and support the lifespan of individuals with down syndrome, their families, and the community through outreach, advocacy, and education in north carolina.

Human Services
3
Down Syndrome Association of South Georgia Inc
Health
4
National Down Syndrome Society

The National Down Syndrome Society empowers individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions.

5
Down Syndrome Association of Middle Tennessee

The organizations mission is to enhance the quality of life throughout the life span of all individuals with down syndrome by providing support, information and education to families, professionals and communities.

Health
6
Down Syndrome Society of Rhode Island Inc

A parent support organization dedicated to promoting the rights, dignity and potential of all individuals with down syndrome through advocacy, education, public awareness and support.

Health
7
Down Syndrome Association of Maryland

We empower individuals with down syndrome and their communities through education, resources, outreach and advocacy. we are committed to amplifying our collective voices and broader needs to drive meaningful change.

Human Services
8
Massachusetts Down Syndrome Congress Inc

To ensure individuals with down syndrome in massachusetts are valued, included, and given the opportunities to pursue fulfilling lives by providing information, networking opportunities, and advocacy for people with down syndrome and their…

9
Dravet Syndrome Foundation Inc

The mission of the Dravet Syndrome Foundation is to aggressively raise funds for Dravet syndrome & related epilepsies; support & fund research; increase awareness; & provide support to affected individuals & families. We understand the…

Philanthropy
10
Trustees of Dartmouth College

Dartmouth College educates the most promising students and prepares them for a lifetime of learning and of responsible leadership, through a faculty dedicated to teaching and the creation of knowledge.

Education
11
Friends of Down Syndrome

The friends of down syndromes mission is to create a lifelong of education and learning opportunities for teens and adults with down syndrome through education, socialization, and community outreach.

Human Services
12
Vanderbilt University

See Disclosure Above.

Education

For reference, the grantee most central to the portfolio’s shape is Down Syndrome Affiliates in Action and the most unlike its peers is Berry College Inc. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.

04the grantee network

8 grantees tracked through their own filings, 2017–2025.

Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.

Counted here: distinct organizations you funded across 20172025, not grant rows in a single year — so this will not match the grant count on the cover.

1
Load-bearing (≥25% of a budget)
1
Early backer (in before they grew)
8/8
Grantees still filing
2/8
Grew since you first funded

Where your money sits — by cause, then by grantee

NDSC FOUNDATION INC — $23,500 · PhilanthropyNDSC FOUNDATION INCDOWN SYNDROME DIAGNOSIS NETWORK — $10,000 · HealthDOWN SYNDROME DIAGNOSIS NETWO…GLOBAL DOWN SYNDROME FOUNDATION — $9,000 · HealthGLOBAL DOWN SYNDROME FOUNDATI…THE UNIVERSITY OF TENNESSEE FOUNDATION INC — $5,100 · EducationTHE UNIVERSITY OF TENNE…SYRACUSE UNIVERSITY — $5,100 · EducationSYRACUSE UNIVERSITYBERRY COLLEGE INC — $5,100 · EducationBERRY COLLEGE INCDOWN SYNDROME AFFILIATES IN ACTION — $10,000 · OtherDOWN SYNDROME A…ASSOCIATION OF UNIVERSITY CENTERS ON DISABILITIES — $5,000 · Human Services
Philanthropy$23,500Health$19,000Education$15,300Other$10,000Human Services$5,000

Each org by its size and your share of it — top-left is where you’re load-bearing

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ your share of their budgetNDSC FOUNDATION INC — $23,500 over 1y, 37% of budgetDOWN SYNDROME DIAGNOSIS NETWORK — $10,000 over 2y, 0.9% of budgetDOWN SYNDROME AFFILIATES IN ACTION — $10,000 over 1y, 6.4% of budgetGLOBAL DOWN SYNDROME FOUNDATION — $9,000 over 1y, 0.2% of budgetTHE UNIVERSITY OF TENNESSEE FOUNDATION INC — $5,100 over 1y, 0.0% of budgetSYRACUSE UNIVERSITY — $5,100 over 1y, 0.0% of budgetBERRY COLLEGE INC — $5,100 over 1y, 0.0% of budgetASSOCIATION OF UNIVERSITY CENTERS ON DISABILITIES — $5,000 over 1y, 0.1% of budget
Go grantee by grantee — a decade per org, and how each moved after you funded them

A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.

Government reliance of your grantees

Every dot is one organization National Down Syndrome Congress funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal or a single department — and drag the year to watch it move.

2025
202122232425
no gov · 00%3%10%23%40%your share of their income ↑0%25%50%75%100%share of the org’s income from governmentmedian 52%
  • Association of University Centers On Disabilities52% of income from government
no gov moneyreceives it· size = income
0get no government money at all
1rely on government for over half their income
typical government reliance, FY2025

Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.

On method. Every financial figure here is read directly from IRS e-file XML — your own 990/990-PF and the multi-year returns of the 8 grantees we resolved across every year we hold, several hundred filings in all (a different count from the grant rows on the cover, which are one fiscal year)— each linked to its source. Grantee achievements and outcomes are each organization’s own program-service reporting (Form 990, Part III); we read these as association with sustained funding — the foundation is one of several forces — suppress low-confidence name matches rather than guess, and say so where a figure rests on a single grant or filing. Not everything on this page is a filed figure, and the difference matters. Filed is what you reported on your return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears. How we build these →

Generated from your IRS Form 990 e-file return for fiscal year 2025, released 2025. Filings run roughly 12–24 months behind; figures are dated accordingly.

Source object · view filing

More from the funding graph