Arizona · Nonprofit
DOWN SYNDROME NETWORK INC DBA DSNetwork
DOWN SYNDROME NETWORK INC DBA DSNetwork (Arizona) receives grants from 29 organizations whose IRS filings report $492,767 to it, the largest being THUNDERBIRDS CHARITIES ($95,000). 12 of them have funded it in more than one year.
- Revenue FY2025
- $308k
- Funders on record
- 29
- Grants received
- $493k
- Net assets
- $125k
What DOWN SYNDROME NETWORK INC DBA DSNetwork does
Mission
1) Promote lifelong health and improve quality of life for people with DS; 2) Help caregivers navigate the whole journey of raising and caring for a person with Down syndrome from before birth throughout the aging process; 3) help grow awareness of DS in the Arizona communities, educate professionals and advocate for people with DS.
As stated on its FY2025 Form 990.
Programs
DSNetwork offers an array of programs to serve all age groups from newborns to adults in the DS community. We support new parents with the unexpected news from pre birth and at the time of diagnosis. Club Xtra program allows young children playtime and parents time to share their experiences, and support each other. Tweens and Teens UP offer community based opportunities and activities to socialize andmeet friends in a supportive atmosphere. Xcell program activities are specifically tailored to helping individuals and families navigate each stage of adulthood - from high school transition to older age. Our wellness programs includes adaptive tennis, swim, boxing, gardening and other fitness opportunities for children and adults with DS and provides a unique environment. In addition to the programs mentioned above, we also offer a webinar education series, an annual fundraising awareness walk in conjunction with community seasonal celebrations.
$221,355 spent$9,990 earned by the program100% of program spendingArizona is home to an estimated 10,000 individuals with Down syndrome. In 2025, DSNetwork provided education, outreach, and direct support services to this community and their families statewide, reaching over 2,500 individuals through direct programming and many more through community awareness, professional training, and public engagement efforts. Families served reported increased confidence in navigating resources across the life span, connecting and networking with others, and advocating for their loved ones. Community engagement included coordinating statewide World Down Syndrome Day activities that engaged over 550 participants, participating in the ASU Homecoming Parade and Down Syndrome Walk, which reached nearly 1,000 community members, and signature seasonal celebrations, including the Winter Wonderland, serving over 450 participants. Direct services included unique adaptive fitness, educational, and therapeutic programming for over 250 individuals with Down syndrome. Programs such as Buddy Up Tennis, Down to Box, Down to Earth Garden, Adaptive Dance, Pickleball, 1:1 Swim and water safety, and community outings. Social programming, such as the spring prom and fall…
The 2 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $221,355.
The organization over time
Each line starts at 100 in 2020, so what you read is the shape rather than the size: 150 means half as much again as 2020, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $221k to $290k (+31%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 9% · 2023 8% · 2024 17% · 2025 17%. Grants only. Government contracts and fees sit inside program revenue.
107% of DOWN SYNDROME NETWORK INC DBA DSNetwork’s revenue is contributions — more reliant on donations than three-quarters of its peers (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 6 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Board chair
Cassie Laughrey Petre
Board Chair
As listed on its FY2025 Form 990.
The chief executive listed changed between the FY2021 and FY2022, and between the FY2022 and FY2023 filings.
Who funds it, year by year
2017 → 2023: the base broadened from 4 funders to 8 funders, grant income rose $28k → $72k.
7 of 29 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 23% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of DOWN SYNDROME NETWORK INC DBA DSNetwork’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
DOWN SYNDROME NETWORK INC DBA DSNetwork has a broad base — no single funder exceeds 19% of grant income, and it takes 4 funders to reach half.
the vertical line marks half of all grant income — 4 funders to its left
79% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund DOWN SYNDROME NETWORK INC DBA DSNetwork.
Largest funder’s share by year: 2017 54% · 2018 61% · 2019 37% · 2020 74% · 2021 26% · 2022 23% · 2023 35% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
23% of DOWN SYNDROME NETWORK INC DBA DSNetwork's funders are still giving 3 years after their first grant; 41% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
70% of DOWN SYNDROME NETWORK INC DBA DSNetwork's grant income comes from Arizona funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $113k arriving through sponsors registered in 6 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
DOWN SYNDROME NETWORK INC DBA DSNetwork is better cushioned than half of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like DOWN SYNDROME NETWORK INC DBA DSNetwork
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Arizona
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
76% of spending goes to programs.
Governance
Public support
98%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for DOWN SYNDROME NETWORK INC DBA DSNetwork: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds DOWN SYNDROME NETWORK INC DBA DSNetwork?
- DOWN SYNDROME NETWORK INC DBA DSNetwork (Arizona) receives grants from 29 organizations whose IRS filings report $492,767 to it, the largest being THUNDERBIRDS CHARITIES ($95,000). 12 of them have funded it in more than one year.
- How many funders does DOWN SYNDROME NETWORK INC DBA DSNetwork have?
- IRS filings report 29 organizations giving $492,767 in grants to DOWN SYNDROME NETWORK INC DBA DSNetwork, 12 of which have funded it in more than one year.
- Who is the largest funder of DOWN SYNDROME NETWORK INC DBA DSNetwork?
- THUNDERBIRDS CHARITIES is the largest funder on record, with $95,000 in grants. The full list of funders is on this page.
- How can an organization like DOWN SYNDROME NETWORK INC DBA DSNetwork find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Arizona. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds DOWN SYNDROME NETWORK INC DBA DSNetwork →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2020–2025), and the filings of 29 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing