Indiana · Nonprofit
DOWN SYNDROME INDIANA INC
DOWN SYNDROME INDIANA INC (Indiana) receives grants from 23 organizations whose IRS filings report $194,895 to it, the largest being Care Institute Group Inc ($45,000). 13 of them have funded it in more than one year.
- Revenue FY2024
- $504k
- Funders on record
- 23
- Grants received
- $195k
- Net assets
- $813k
What Down Syndrome Indiana Inc does
Mission
We enhance the lives of individuals with down syndrome and their families. We advise, educate, encourage, connect, include, and advocate.
As stated on its FY2024 Form 990.
Programs
Buddy walk - the buddy walk program welcomes participants of all ages and abilities. The goal of the program is to promote acceptance and inclusion of people with down syndrome. This program is held annually in three cities in indiana including indianapolis, lafayette, and terre haute. The walks are in-person. They had a combined 5,000 participants.
$39,675 spent14% of program spendingNew parent packets - down syndrome indiana provides comprehensive parent packets that contain a wealth of information to parents that have a newborn with down syndrome or have just learned of the diagnosis before their child is born. These packets are distributed to the families upon request or through local hospitals. A spanish version of the new parent packet is also available! There were 126 new parent packets distributed in 2025.community support groups - down syndrome indiana recognizes that there are varied interests among the down syndrome community. Examples include geographical considerations, cultural considerations, educational considerations, and age considerations. Down syndrome indiana recognizes the benefits of a community group among these families. Community groups include: dsi cass area down syndrome ("cads"), dsi cuenta conmigo, dsi dads appreciating down syndrome ("dads"),dsi lafayette, dsi terre haute, dsi east central playgroup, dsi mom's night out, dsi self-advocates, dsi teens, dsi delaware county/muncie area, dsi black family village, dsi babies and toddlers, dsi southside, and dsi westside.first call - first call volunteers make a difference in lives by…
$244,299 spent86% of program spending
The 2 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $283,974.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $490k to $673k (+37%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2020 10% · 2021 7%. Grants only. Government contracts and fees sit inside program revenue.
77% of DOWN SYNDROME INDIANA INC’s revenue is contributions — about as donation-reliant as the typical peer (91% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Macy Pohl
Executive director
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 4 funders to 7 funders, grant income rose $12k → $43k.
7 of 23 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 32% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of DOWN SYNDROME INDIANA INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
DOWN SYNDROME INDIANA INC has a broad base — no single funder exceeds 23% of grant income, and it takes 4 funders to reach half.
the vertical line marks half of all grant income — 4 funders to its left
61% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund DOWN SYNDROME INDIANA INC.
Largest funder’s share by year: 2017 59% · 2018 42% · 2019 38% · 2020 74% · 2021 38% · 2022 53% · 2023 58% — broadly stable.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
23% of DOWN SYNDROME INDIANA INC's funders are still giving 3 years after their first grant; 57% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
76% of DOWN SYNDROME INDIANA INC's grant income comes from Indiana funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $62k arriving through sponsors registered in 6 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
DOWN SYNDROME INDIANA INC runs a healthier operating margin than three-quarters of the 21,616 human services nonprofits its size.
this organization peer median middle 50% of peers· 21,616 human services nonprofits $100k–$1M, FY2024
Organizations like DOWN SYNDROME INDIANA INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Indiana
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
74% of spending goes to programs.
Governance
Public support
76%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for DOWN SYNDROME INDIANA INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds DOWN SYNDROME INDIANA INC?
- DOWN SYNDROME INDIANA INC (Indiana) receives grants from 23 organizations whose IRS filings report $194,895 to it, the largest being Care Institute Group Inc ($45,000). 13 of them have funded it in more than one year.
- How many funders does DOWN SYNDROME INDIANA INC have?
- IRS filings report 23 organizations giving $194,895 in grants to DOWN SYNDROME INDIANA INC, 13 of which have funded it in more than one year.
- Who is the largest funder of DOWN SYNDROME INDIANA INC?
- Care Institute Group Inc is the largest funder on record, with $45,000 in grants. The full list of funders is on this page.
- How can an organization like DOWN SYNDROME INDIANA INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Indiana. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 23 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing