Florida · Nonprofit
Central Florida Down Syndrome Assoc Inc
Central Florida Down Syndrome Assoc Inc (Florida) receives grants from 32 organizations whose IRS filings report $452,107 to it, the largest being UNIVERSAL ORLANDO FOUNDATION INC ($62,000). 14 of them have funded it in more than one year.
- Revenue FY2025
- $665k
- Funders on record
- 32
- Grants received
- $452k
- Net assets
- $1.8M
What Central Florida Down Syndrome Assoc Inc does
Mission
To change what is possible for people with down syndrome through programs, resources, and advocacy
As stated on its FY2025 Form 990.
Programs
Programs 1. Programs for ages 0 - 5 years old: new family celebration; new parent welcome kit and visits; baby basics group therapy; musical munchkins; baby playgroup; pre-k readiness camp; holiday celebrations; theme park days 2. Programs for 5-18 years old: relationship and boundaries training; dating and relationships; buddy up tennis, dane, karate, soccer, up beat! Theatre; drumming therapy; super siblings; school age playgroup; camp thunderbird summer camp; foam party; improvaneer; holiday celebrations; theme park days see part iii, ln 4cstatement
$449,416 spent$100,000 earned by the program61% of program spendingResources 1. Scholarships and emergency assistance: dsacf offers a wide variety of scholarships to cover expenses that traditional insurance my not cover, including: swim lessons, therapies, special assessments, medical bills, adaptive equipment, etc. Dsacf also offers emergency assistance to families that have an un-planned need that cannot be met. For the 2023-2024 fiscal year, dsacf provided over $31,490 in scholarships. 2. Educational trainings & seminars: it starts with hello (social skills training); lunch & learn monthly series; fnd pathways, fnd educacion especial (for spanish speaking families), coffee talks (spanish speaking), low down on law; parent education conference; march to independence; nutrition webinar; apd series. See part iii, ln 4b statement
$213,391 spentof which $37,109 as grants29% of program spendingAdvocacy and outreach 1. Low down on law: in partnership with davey law group, the down syndrome association of central florida is able to provide two low down on law day workshops each year. Expert lawyers, judges, and officials in the central florida community come together to break down the legal complexities families with special needs must navigate for their loved ones. 2. Step up for down syndrome walk: a day of community celebration, families get together and celebrate their loved one with down syndrome. Families set up walk teams, raise funds, for the organization, and on see part iii, ln 4a statement
$73,787 spent$622,097 earned by the program10% of program spending
The 3 programs described on its FY2023 Form 990, listed largest first by expense. Program spending in total: $736,594.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $1.6M to $2.0M (+21%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 7% · 2022 4%. Grants only. Government contracts and fees sit inside program revenue.
100% of Central Florida Down Syndrome Assoc Inc’s revenue is contributions — more reliant on donations than three-quarters of its peers (91% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Board chair
Troy Culley
Chair
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 1 funder to 8 funders, grant income rose $10k → $35k.
5 of 32 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 19% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
Left out of every figure on this page: $11k from one payer (the payer's own filing calls it a related party, largest The Halperin Foundation). These are real filings, and they are not money Central Florida Down Syndrome Assoc Inc raised.
From the IRS filings of Central Florida Down Syndrome Assoc Inc’s funders (the co-funder graph). Top 30 of 32 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Central Florida Down Syndrome Assoc Inc has a broad base — no single funder exceeds 14% of grant income, and it takes 5 funders to reach half.
the vertical line marks half of all grant income — 5 funders to its left
73% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Central Florida Down Syndrome Assoc Inc.
Largest funder’s share by year: 2017 100% · 2018 55% · 2019 85% · 2020 27% · 2021 35% · 2022 37% · 2023 29% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
19% of Central Florida Down Syndrome Assoc Inc's funders are still giving 3 years after their first grant; 44% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
79% of Central Florida Down Syndrome Assoc Inc's grant income comes from Florida funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $85k arriving through sponsors registered in 5 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
Central Florida Down Syndrome Assoc Inc is better cushioned than half of the 13,062 human services nonprofits its size.
this organization peer median middle 50% of peers· 13,062 human services nonprofits $100k–$1M, FY2025
Organizations like Central Florida Down Syndrome Assoc Inc
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Florida
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
52% of spending goes to programs.
Governance
Public support
88%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for Central Florida Down Syndrome Assoc Inc: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Central Florida Down Syndrome Assoc Inc?
- Central Florida Down Syndrome Assoc Inc (Florida) receives grants from 32 organizations whose IRS filings report $452,107 to it, the largest being UNIVERSAL ORLANDO FOUNDATION INC ($62,000). 14 of them have funded it in more than one year.
- How many funders does Central Florida Down Syndrome Assoc Inc have?
- IRS filings report 32 organizations giving $452,107 in grants to Central Florida Down Syndrome Assoc Inc, 14 of which have funded it in more than one year.
- Who is the largest funder of Central Florida Down Syndrome Assoc Inc?
- UNIVERSAL ORLANDO FOUNDATION INC is the largest funder on record, with $62,000 in grants. The full list of funders is on this page.
- How can an organization like Central Florida Down Syndrome Assoc Inc find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Florida. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 32 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing