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Florida · Nonprofit

DOWN SYNDROME FOUNDATION OF FL INC

DOWN SYNDROME FOUNDATION OF FL INC (Florida) receives grants from 19 organizations whose IRS filings report $308,898 to it, the largest being ORLANDO HEALTH INC ($59,000). 9 of them have funded it in more than one year.

Revenue FY2024
$558k
Funders on record
19
Grants received
$309k
Net assets
$691k
9/19 repeat funderspeak grant-dependency 19%
01What it does

What Down Syndrome Foundation of Fl Inc does

Mission

Our mission is to empower lives for a brighter future by facilitating projects that enhance the welfare, education,health, and artistic and athletic abilities of individuals with down syndrome.

As stated on its FY2024 Form 990.

Programs

  1. Scholarship programs the foundation provided scholarships to members for numerous purposes including educatonal, tutoring, professional support and advocacy, swimming, speech, behavioral, talent development and neurodevelopment to improve the lives of individuals with down syndrome.

    $180,258 spentof which $180,258 as grants
    30% of program spending
  2. Ican work is the capstone program in our ican portfolio. The program benefits our members, employers, and the community. This is where the culmination of all our programming is integrated with services and support so our members can flourish in the workforce. Meaningful employment is one of the most complex, most important, and most expensive aspects of supporting individuals with down syndrome. Each participant goes through various levels of assessments, skill building, and job readiness training to equip and prepare them for permanent employment. Success coaches assist members and employers through on-the-job training, supported employment, and transitioning to successful independent employment with natural support.

    $96,712 spent$60,877 earned by the program
    16% of program spending
  3. Member programs the foundation is proud to offer a comprehensive array of innovative programs. We develop and implement monthly educational workshops, award scholarships that promote success for all ages/stages of life, and lead local, state, and national advocacy designed to enhance the lives of individuals with down syndrome and the community through inclusive practices. Research-based interventions, age-based social groups, and marquis events allow our members to learn and grow and offer a win-win-win solution for our families, the students, and faculty at ucf who benefit from learning alongside our members, volunteers, and the community.

    $323,747 spent$39,042 earned by the program
    54% of program spending

The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $600,717.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20172017 Revenue 100 ($224k) Expenses 100 ($216k) Net assets 100 ($290k)2018 Revenue 198 ($443k) Expenses 231 ($498k) Net assets 81 ($235k)2019 Revenue 322 ($721k) Expenses 262 ($564k) Net assets 135 ($391k)2020 Revenue 131 ($293k) Expenses 129 ($278k) Net assets 140 ($406k)2021 Revenue 192 ($431k) Expenses 144 ($310k) Net assets 182 ($527k)2022 Revenue 240 ($538k) Expenses 179 ($385k) Net assets 215 ($624k)2023 Revenue 254 ($570k) Expenses 244 ($526k) Net assets 249 ($723k)2024 Revenue 249 ($558k) Expenses 290 ($624k) Net assets 238 ($691k)
'17'18'19'20'21'22'23'24
Revenue (249)Expenses (290)Net assets (238)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2018 to 2019, from $260k to $415k (+59%).

$305k
$260k
$415k
$465k
$555k
$709k
$806k
$822k
'17'18'19'20'21'22'23'24
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
ContributionsProgram revenueInvestmentOther

55% of DOWN SYNDROME FOUNDATION OF FL INC’s revenue is contributions — about as donation-reliant as the typical peer (83% for the typical peer).

This organization
Typical peer · 14,932 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 8 reported years ran a deficit.

$8k
’17
−$55k
’18
$157k
’19
$15k
’20
$121k
’21
$153k
’22
$44k
’23
−$67k
’24
10
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

'17'18'19'20'21'22'23'24
Listed68777777
Joined·+2+0+1+0+0+0+0
No longer listed·0110000
03Who funds it

Who funds it, year by year

2018 → 2023: the base broadened from 1 funder to 6 funders, grant income rose $5k → $52k.

7 of 19 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 31% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of DOWN SYNDROME FOUNDATION OF FL INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

DOWN SYNDROME FOUNDATION OF FL INC has a broad base — no single funder exceeds 19% of grant income, and it takes 4 funders to reach half.

the vertical line marks half of all grant income — 4 funders to its left

54% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund DOWN SYNDROME FOUNDATION OF FL INC.

19%
largest funder
47%
top three
~9
effective funders

Largest funder’s share by year: 2018 100% · 2019 100% · 2020 46% · 2021 37% · 2022 28% · 2023 32% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

33% of DOWN SYNDROME FOUNDATION OF FL INC's funders are still giving 3 years after their first grant; 47% give in more than one year at all.

first grant+1y+2y+3y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

82% of DOWN SYNDROME FOUNDATION OF FL INC's grant income comes from Florida funders.

NY
NJ
MO
GA
FL

In-state vs out-of-state, by year

’18
’19
’20
’21
’22
’23
Florida out of state home

Funder states come from each funder’s own filing. $97k arriving through sponsors registered in 7 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

DOWN SYNDROME FOUNDATION OF FL INC is better cushioned than half of the 13,769 health nonprofits its size.

Operating margin−12% · bottom quartile
Months of reserve10.0mo · above the median
Revenue growth (annualized)14% · above the median

this organization peer median middle 50% of peers· 13,769 health nonprofits $100k–$1M, FY2024

Organizations like DOWN SYNDROME FOUNDATION OF FL INC

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Florida

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

96% of spending goes to programs.

Program 96%Management 4%Fundraising 0%

Governance

7
board members
100%
independent
–Conflict-of-interest policy–Whistleblower policy–Document retention✓Board reviewed the 990✓Audited financials

Public support

100%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 1 state

FL

Screen this organization

A dated, signed PDF of the compliance screen for DOWN SYNDROME FOUNDATION OF FL INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds DOWN SYNDROME FOUNDATION OF FL INC?
DOWN SYNDROME FOUNDATION OF FL INC (Florida) receives grants from 19 organizations whose IRS filings report $308,898 to it, the largest being ORLANDO HEALTH INC ($59,000). 9 of them have funded it in more than one year.
How many funders does DOWN SYNDROME FOUNDATION OF FL INC have?
IRS filings report 19 organizations giving $308,898 in grants to DOWN SYNDROME FOUNDATION OF FL INC, 9 of which have funded it in more than one year.
Who is the largest funder of DOWN SYNDROME FOUNDATION OF FL INC?
ORLANDO HEALTH INC is the largest funder on record, with $59,000 in grants. The full list of funders is on this page.
How can an organization like DOWN SYNDROME FOUNDATION OF FL INC find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Florida. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

Play a game about who funds Down Syndrome Foundation of Fl →

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 19 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing