Delaware · Nonprofit
DOWN SYNDROME ASSOCIATION OF DELAWARE INC
DOWN SYNDROME ASSOCIATION OF DELAWARE INC (Delaware) receives grants from 26 organizations whose IRS filings report $741,921 to it, the largest being DELAWARE COMMUNITY FOUNDATION INC ($173,167). 15 of them have funded it in more than one year.
- Revenue FY2025
- $720k
- Funders on record
- 26
- Grants received
- $742k
- Net assets
- $786k
What Down Syndrome Association of Delaware Inc does
Mission
The down syndrome association of delaware supports families, promotes community involvement, and encourages a lifetime of opportunities for people with down syndrome.
As stated on its FY2025 Form 990.
Program
In 2025, the down syndrome association of delaware (dsade) served 794 individuals with down syndrome and their families across delaware and surrounding areas. We hosted 76 events statewide, supported by over 600 volunteers, and engaged 109 families for the first time. Our new parent outreach efforts connected with families welcoming 38 babies with down syndrome, helping them navigate early challenges with guidance, resources, and community support. The adopt-a-family program supported 83 individuals during the holiday season, and we awarded 44 scholarships to area families. Rock your socks awareness initiatives reached tens of thousands of individuals nationwide, uniting 300 volunteers and participants from over 140 schools, businesses, and organizations. Our days of summer camp served 110 campers across delaware, supported by nearly 100 dedicated volunteers, while our ican swim camp helped 20 individuals of different abilities achieve personal aquatic milestones and learn critical water safety skills. Additionally, our social engagement programs provided 23 opportunities for over 299 teens and adults to build connections, fostering lifelong friendships and community involvement.
$593,106 spentof which $975 as grants$41,267 earned by the program100% of program spending
The program described on its FY2024 Form 990. Program spending in total: $593,106.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $691k to $1.0M (+49%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2017 24% · 2018 19% · 2019 26% · 2020 37% · 2021 23% · 2022 10% · 2023 15% · 2024 47% · 2025 16%. Grants only. Government contracts and fees sit inside program revenue.
89% of DOWN SYNDROME ASSOCIATION OF DELAWARE INC’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Lauren Camp Gates
Executive director
As listed on its FY2025 Form 990.
The chief executive listed changed between the FY2022 and FY2023 filings.
Who funds it, year by year
2017 → 2023: the base broadened from 3 funders to 13 funders, grant income rose $11k → $225k.
5 of 26 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 37% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of DOWN SYNDROME ASSOCIATION OF DELAWARE INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
DOWN SYNDROME ASSOCIATION OF DELAWARE INC has a broad base — no single funder exceeds 23% of grant income, and it takes 4 funders to reach half.
the vertical line marks half of all grant income — 4 funders to its left
48% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund DOWN SYNDROME ASSOCIATION OF DELAWARE INC.
Largest funder’s share by year: 2017 94% · 2018 67% · 2019 61% · 2020 74% · 2021 27% · 2022 35% · 2023 29% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
60% of DOWN SYNDROME ASSOCIATION OF DELAWARE INC's funders are still giving 3 years after their first grant; 58% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
86% of DOWN SYNDROME ASSOCIATION OF DELAWARE INC's grant income comes from Delaware funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $275k arriving through sponsors registered in 4 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
DOWN SYNDROME ASSOCIATION OF DELAWARE INC has grown faster than three-quarters of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Government funding DOWN SYNDROME ASSOCIATION OF DELAWARE INC receives
Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $865 on record.
- CLOTHING & LINENS$865
Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.
Organizations like DOWN SYNDROME ASSOCIATION OF DELAWARE INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Delaware
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
69% of spending goes to programs.
Governance
Public support
99%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for DOWN SYNDROME ASSOCIATION OF DELAWARE INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds DOWN SYNDROME ASSOCIATION OF DELAWARE INC?
- DOWN SYNDROME ASSOCIATION OF DELAWARE INC (Delaware) receives grants from 26 organizations whose IRS filings report $741,921 to it, the largest being DELAWARE COMMUNITY FOUNDATION INC ($173,167). 15 of them have funded it in more than one year.
- How many funders does DOWN SYNDROME ASSOCIATION OF DELAWARE INC have?
- IRS filings report 26 organizations giving $741,921 in grants to DOWN SYNDROME ASSOCIATION OF DELAWARE INC, 15 of which have funded it in more than one year.
- Who is the largest funder of DOWN SYNDROME ASSOCIATION OF DELAWARE INC?
- DELAWARE COMMUNITY FOUNDATION INC is the largest funder on record, with $173,167 in grants. The full list of funders is on this page.
- How can an organization like DOWN SYNDROME ASSOCIATION OF DELAWARE INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Delaware. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Down Syndrome Association of Delaware →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 26 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing