Rhode Island · Nonprofit
ALS UNITED RHODE ISLAND
ALS UNITED RHODE ISLAND (Rhode Island) receives grants from 12 organizations whose IRS filings report $261,592 to it, the largest being THE RHODE ISLAND COMMUNITY FOUNDATION ($95,870). 4 of them have funded it in more than one year, and 54% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $422k
- Funders on record
- 12
- Grants received
- $262k
- Net assets
- $627k
What Als United Rhode Island does
Mission
Public awareness of als disease and patient and family support
As stated on its FY2025 Form 990.
Programs
Als United Rhode Island reached more than 300 patients and patients families through information and referrals, home visits, support groups as well as providing equipment loans, handicapped transportion and respite care at no cost to the patient. Als United Rhode Island also funds an als specific multi-disciplinary medical clinic that provides the services in the area of neurology, pulmonology, phyisical, occupational and speech therapy and nutrition in one location.
$267,558 spent74% of program spendingThere are numerous programs that support professional and public awareness outreach. Als awareness day is held annually at the rhode island state house during may. While this program is attended by our constituents, there is also a greater outreach to any members of the general public that are at the state house on that day. The annual als symposium includes speakers who provide als research updates and general coping skills in dealing with the devastation of an als diagnosis. These programs are communicated by mailings, social media and our website to over 1,200 constituents including patients, families, caregivers, medical professionals and supporters. We also conduct inservice programs to educate medical staff about dealing with als patients at hospice and other care facilities.
$93,456 spent26% of program spending
The 2 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $361,014.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $522k to $754k (+44%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2017 6% · 2018 2% · 2019 14% · 2020 11% · 2021 9% · 2022 17% · 2023 1% · 2024 1% · 2025 1%. Grants only. Government contracts and fees sit inside program revenue.
73% of ALS UNITED RHODE ISLAND’s revenue is contributions — about as donation-reliant as the typical peer (83% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 7 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Board chair
Judith Pratt
Board chair
As listed on its FY2025 Form 990.
The chief executive listed changed between the FY2020 and FY2021 filings.
Who funds it, year by year
2019 → 2023: the base held at 3 funders, grant income rose $32k → $42k.
3 of 12 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 54% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of ALS UNITED RHODE ISLAND’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
ALS UNITED RHODE ISLAND leans on a few funders — its largest provides 37% of grant income and the top three 61%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
71% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund ALS UNITED RHODE ISLAND.
Largest funder’s share by year: 2019 58% · 2020 70% · 2021 83% · 2022 58% · 2023 93% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
25% of ALS UNITED RHODE ISLAND's funders are still giving 2 years after their first grant; 33% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
54% of ALS UNITED RHODE ISLAND's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $121k that is directly attributable, 57% of it comes from Rhode Island funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $140k arriving through sponsors registered in 3 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
ALS UNITED RHODE ISLAND holds deeper cash reserves than three-quarters of the 8,464 health nonprofits its size.
this organization peer median middle 50% of peers· 8,464 health nonprofits $100k–$1M, FY2025
Organizations like ALS UNITED RHODE ISLAND
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Rhode Island
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
76% of spending goes to programs.
Governance
Public support
86%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for ALS UNITED RHODE ISLAND: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds ALS UNITED RHODE ISLAND?
- ALS UNITED RHODE ISLAND (Rhode Island) receives grants from 12 organizations whose IRS filings report $261,592 to it, the largest being THE RHODE ISLAND COMMUNITY FOUNDATION ($95,870). 4 of them have funded it in more than one year, and 54% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does ALS UNITED RHODE ISLAND have?
- IRS filings report 12 organizations giving $261,592 in grants to ALS UNITED RHODE ISLAND, 4 of which have funded it in more than one year.
- Who is the largest funder of ALS UNITED RHODE ISLAND?
- THE RHODE ISLAND COMMUNITY FOUNDATION is the largest funder on record, with $95,870 in grants. The full list of funders is on this page.
- How can an organization like ALS UNITED RHODE ISLAND find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Rhode Island. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Als United Rhode Island →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 12 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing