California · Nonprofit
SynGAP Research Fund Incorporated
SynGAP Research Fund Incorporated (California) receives grants from 43 organizations whose IRS filings report $1,883,206 to it, the largest being THE HILLSIDE FOUNDATION INC ($705,000). 18 of them have funded it in more than one year, and 54% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $2.0M
- Funders on record
- 43
- Grants received
- $1.9M
- Net assets
- $1.6M
What SynGAP Research Fund Incorporated does
Mission
Improve the quality of life of SynGap-1 patients through the research and development of treatments, therapies and support systems.
As stated on its FY2024 Form 990.
Programs
Funding of new and continued research initiatives with leading institutions.
$1,658,607 spentof which $1,465,900 as grants98% of program spendingFamily assistance provided to 21 individuals. Both domestic and foreign.
$27,005 spentof which $27,005 as grants2% of program spendingCommunity engagement, awareness, and education.
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $1,685,612.
The organization over time
Each line starts at 100 in 2019, so what you read is the shape rather than the size: 150 means half as much again as 2019, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $1.2M to $2.1M (+78%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
82% of SynGAP Research Fund Incorporated’s revenue is contributions — about as donation-reliant as the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 6 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Board chair
Suzanne Jones
Chair Person
As listed on its FY2024 Form 990.
Who funds it, year by year
2019 → 2023: the base broadened from 2 funders to 17 funders, grant income fell $265k → $223k.
16 of 43 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 54% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of SynGAP Research Fund Incorporated’s funders (the co-funder graph). Top 30 of 43 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
SynGAP Research Fund Incorporated leans on a few funders — its largest provides 37% of grant income and the top three 60%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
56% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund SynGAP Research Fund Incorporated.
Largest funder’s share by year: 2019 94% · 2020 42% · 2021 23% · 2022 28% · 2023 18% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
38% of SynGAP Research Fund Incorporated's funders are still giving 3 years after their first grant; 42% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
54% of SynGAP Research Fund Incorporated's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $858k that is directly attributable, 100% of it comes from funders outside California, across 15 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $1.0M arriving through sponsors registered in 13 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
SynGAP Research Fund Incorporated has grown faster than three-quarters of the 2,910 philanthropy nonprofits its size.
this organization peer median middle 50% of peers· 2,910 philanthropy nonprofits $1M–$10M, FY2024
Organizations like SynGAP Research Fund Incorporated
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In California
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
95% of spending goes to programs.
Governance
Public support
98%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for SynGAP Research Fund Incorporated: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds SynGAP Research Fund Incorporated?
- SynGAP Research Fund Incorporated (California) receives grants from 43 organizations whose IRS filings report $1,883,206 to it, the largest being THE HILLSIDE FOUNDATION INC ($705,000). 18 of them have funded it in more than one year, and 54% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does SynGAP Research Fund Incorporated have?
- IRS filings report 43 organizations giving $1,883,206 in grants to SynGAP Research Fund Incorporated, 18 of which have funded it in more than one year.
- Who is the largest funder of SynGAP Research Fund Incorporated?
- THE HILLSIDE FOUNDATION INC is the largest funder on record, with $705,000 in grants. The full list of funders is on this page.
- How can an organization like SynGAP Research Fund Incorporated find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2019–2024), and the filings of 43 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing