New York · Nonprofit
Project 8p Foundation
Project 8p Foundation (New York) receives grants from 17 organizations whose IRS filings report $2,504,480 to it, the largest being THE JAIN FOUNDATION INC ($1,200,000). 11 of them have funded it in more than one year.
- Revenue FY2024
- $1.9M
- Funders on record
- 17
- Grants received
- $2.5M
- Net assets
- $2.9M
What Project 8p Foundation does
Mission
To empower a unified community for chromosome 8p heroes for a meaningful life today while accelerating treatments for tomorrow. Activities include clinical care, research, AI data-driven platform and biorepository, and education and advocacy.
As stated on its FY2024 Form 990.
Programs
Scientific Programs: Project 8p Foundation partners with top researchers and biopharma to uncover the causes of chromosome 8p disorders and improve the lives of those affected. Our work addresses urgent biological questionssuch as symptom progression, mitochondrial dysfunction, gut-brain interactions, and cellular stressto deliver actionable clinical tools for families today, while accelerating discoveries that can lead to scalable treatments for all communities affected by complex neurodevelopmental and neuromuscular conditions. Were advancing innovative technologies and accelerating therapeutic discovery by harnessing data in new ways. Our proprietary 8p Insights Portal is a growing, patient-centered resource that integrates clinical records, caregiver-reported outcomes, and biospecimen datadriving scientific breakthroughs and delivering meaningful impact for those living with chromosome 8p disorders.
$927,478 spentof which $468,599 as grants79% of program spendingCommunity Outreach & Conferences: Project 8p supported over 200 families with clinical tools, education, and services. We hosted a three-day Family & Science Conference, bringing together researchers, clinicians, and families to foster collaboration and accelerate progress. Through monthly roundtables and ongoing stakeholder education, we promote a team science approach while sharing the latest research, clinical insights, and lived experiences. These efforts strengthen our shared goals and ensure the voices of those affected by 8p remain central to every initiative.
$218,505 spentof which $2,500 as grants$19,288 earned by the program19% of program spendingPatient Impact (Clinics & Care): Project 8p advanced its mission to improve clinical care for individuals with chromosome 8p disorders through several key initiatives. We published the first-ever Clinical Care Guidelines for 8p, providing an evidence-informed framework to guide physicians and care teams worldwide. We also launched the Patient Navigator, a free, interactive, online tool that helps families and clinicians understand symptoms across body systemsdrawing on real-world data from our 8p Insights Portal.Additionally, we expanded our Multidisciplinary Hospital Clinic Model, supporting the development of coordinated care hubs that bring together specialists to provide comprehensive, patient-centered services. These efforts mark important strides in reducing diagnostic delays, improving care coordination, and empowering families with accessible, data-driven resources.
$34,196 spentof which $20,000 as grants3% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $1,180,179.
The organization over time
Each line starts at 100 in 2018, so what you read is the shape rather than the size: 150 means half as much again as 2018, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $1.2M to $2.5M (+114%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2020 0% · 2021 4%. Grants only. Government contracts and fees sit inside program revenue.
95% of Project 8p Foundation’s revenue is contributions — more reliant on donations than three-quarters of its peers (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 6 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Lauren Chaby
Executive Director
As listed on its FY2024 Form 990.
Who funds it, year by year
2020 → 2023: the base broadened from 6 funders to 9 funders, grant income rose $514k → $707k.
8 of 17 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 46% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of Project 8p Foundation’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Project 8p Foundation leans on a few funders — its largest provides 48% of grant income and the top three 83%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
46% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Project 8p Foundation.
Largest funder’s share by year: 2020 91% · 2021 72% · 2022 44% · 2023 85% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
67% of Project 8p Foundation's funders are still giving 3 years after their first grant; 65% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
Project 8p Foundation draws 100% of its grant income from funders outside New York, across 8 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $1.1M arriving through sponsors registered in 8 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
Project 8p Foundation runs a healthier operating margin than three-quarters of the 8,121 health nonprofits its size.
this organization peer median middle 50% of peers· 8,121 health nonprofits $1M–$10M, FY2024
Organizations like Project 8p Foundation
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New York
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
85% of spending goes to programs.
Governance
Public support
59%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Screen this organization
A dated, signed PDF of the compliance screen for Project 8p Foundation: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Project 8p Foundation?
- Project 8p Foundation (New York) receives grants from 17 organizations whose IRS filings report $2,504,480 to it, the largest being THE JAIN FOUNDATION INC ($1,200,000). 11 of them have funded it in more than one year.
- How many funders does Project 8p Foundation have?
- IRS filings report 17 organizations giving $2,504,480 in grants to Project 8p Foundation, 11 of which have funded it in more than one year.
- Who is the largest funder of Project 8p Foundation?
- THE JAIN FOUNDATION INC is the largest funder on record, with $1,200,000 in grants. The full list of funders is on this page.
- How can an organization like Project 8p Foundation find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2019–2024), and the filings of 17 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing