Florida · Nonprofit
PROJECT ALIVE
PROJECT ALIVE (Florida) receives grants from 30 organizations whose IRS filings report $684,904 to it, the largest being MARK CUBAN FOUNDATION ($250,000). 14 of them have funded it in more than one year.
- Revenue FY2025
- $468k
- Funders on record
- 30
- Grants received
- $685k
- Net assets
- $1.7M
What Project Alive does
Mission
Project Alive exists to find a cure for hunter syndrome through research and advocacy, and provide education and resources to the hunter syndrome community.
As stated on its FY2025 Form 990.
Programs
Research grants - provides funding to support research in the hunter syndrome space that fills critical gaps in current knowledge across basic science, critical care and translational therapeutics to improve the lives of those affected with hunter syndrome and their families.
$71,856 spentof which $46,015 as grants11% of program spendingFamily case management - receives community enrollment forms from families, makes contact with the enrolled family to discuss programs offered by Project Alive and assists in finding needed resources, I.e.-clinical trial information, local support services, physician information, etc. This includes hunter health program.
$90,935 spent$20,000 earned by the program14% of program spending"n person - the yearly family fair brings mps ii families, the medicalcommunity, educators, and industry together to attend sessions onsubjects important to the community. Families have the opportunity to talk with industry partners, other support organizations, and meet other families who are affected by mps ii. Hosted a market insights roundtable to discuss with insurance payors the need for them to be proactive in how they will handle coverage of newly fda approved treatments for mps ii patients.
$454,877 spentof which $13,644 as grants70% of program spendingHelping hands program - this program is to recognize families that are dealing with a major medical crisis with their child or support for the death of a child. Project Alive will send a $50-$100 gift card for food or gas to provide small relief for this time. We also send flowers from the board to funerals to honor the child.
$4,609 spent1% of program spendingAll other - advocacy
$30,773 spent5% of program spending
The 5 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $653,050.
The organization over time
Each line starts at 100 in 2018, so what you read is the shape rather than the size: 150 means half as much again as 2018, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $1.4M to $2.6M (+86%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2020 4% · 2022 5%. Grants only. Government contracts and fees sit inside program revenue.
89% of PROJECT ALIVE’s revenue is contributions — more donation-reliant than the typical peer (87% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Board chair
Kyle Underwood
Chair
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base held at 6 funders, grant income rose $47k → $80k.
8 of 30 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 37% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of PROJECT ALIVE’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
PROJECT ALIVE has a broad base — no single funder exceeds 37% of grant income, and it takes 3 funders to reach half.
the vertical line marks half of all grant income — 3 funders to its left
48% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund PROJECT ALIVE.
Largest funder’s share by year: 2017 53% · 2018 77% · 2019 52% · 2020 24% · 2021 22% · 2022 43% · 2023 63% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
16% of PROJECT ALIVE's funders are still giving 3 years after their first grant; 47% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
PROJECT ALIVE draws 96% of its grant income from funders outside Florida, across 12 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $252k arriving through sponsors registered in 6 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
PROJECT ALIVE holds deeper cash reserves than three-quarters of the 4,237 philanthropy nonprofits its size.
this organization peer median middle 50% of peers· 4,237 philanthropy nonprofits $100k–$1M, FY2025
Organizations like PROJECT ALIVE
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Florida
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
77% of spending goes to programs.
Governance
Public support
85%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 2 states
Screen this organization
A dated, signed PDF of the compliance screen for PROJECT ALIVE: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds PROJECT ALIVE?
- PROJECT ALIVE (Florida) receives grants from 30 organizations whose IRS filings report $684,904 to it, the largest being MARK CUBAN FOUNDATION ($250,000). 14 of them have funded it in more than one year.
- How many funders does PROJECT ALIVE have?
- IRS filings report 30 organizations giving $684,904 in grants to PROJECT ALIVE, 14 of which have funded it in more than one year.
- Who is the largest funder of PROJECT ALIVE?
- MARK CUBAN FOUNDATION is the largest funder on record, with $250,000 in grants. The full list of funders is on this page.
- How can an organization like PROJECT ALIVE find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Florida. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2018–2025), and the filings of 30 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing