Washington, D.C. · Nonprofit
THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC
THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC (Washington, D.C.) receives grants from 104 organizations whose IRS filings report $11,480,386 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($4,635,909). 53 of them have funded it in more than one year, and 84% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $12M
- Funders on record
- 104
- Grants received
- $11M
- Net assets
- $12M
What The Parent Project for Muscular Dystrophy Research Inc does
Mission
The parent project muscular dystrophy (ppmd) fights to end duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
As stated on its FY2025 Form 990.
Programs
Researchppmd's research program identifies and funds the most promising near- and long-term therapeutic strategies for duchenne and becker muscular dystrophy. We invest across the development pipeline-from basic science to clinical application-while actively stimulating new research to keep the therapeutic pipeline robust. Through initiatives like the duchenne drug development roundtable, we foster industry collaboration to harmonize the clinical trial landscape and accelerate progress.in addition to funding academic and pre-clinical research, our venture pathways program invests in early-stage biopharmaceutical companies to drive the development of novel treatments for duchenne and becker muscular dystrophy.the duchenne registrythe duchenne registry remains the largest patient-reported registry for duchenne, becker and carrier females. Over 6,000 people from more than 125 countries have joined since 2007, contributing over 18 years of data. Registry data has been exported for researchers over 80 times, and the registry has been used to identify and connect people with duchenne and becker to more than 100 clinical trials and research studies. Ppmd also manages complementary…
$6,955,873 spentof which $1,493,317 as grants$3,932,180 earned by the program67% of program spendingEducationppmd's education initiatives equip families, healthcare providers, and the broader community with the information needed to navigate duchenne care across all stages of the disorder. We partner with clinical and scientific experts to develop accurate, accessible resources and share them broadly. We also collaborate with domestic and international organizations to ensure educational materials reach global audiences.engagementppmd fosters a strong, informed, and connected community. Each summer, we host the world's largest duchenne conference, bringing together families, clinicians, researchers, and industry partners to share updates and build connections.throughout the year, we offer virtual and in-person gatherings for subgroups including duchenne carriers, siblings, dads, grandparents, and newly diagnosed families.through ppmd together, we also provide personalized one-on-one virtual support to help families navigate their individual challenges.
$2,438,077 spentof which $7,500 as grants23% of program spendingAdvocacyppmd leads federal and state-level advocacy to improve access to care, accelerate therapeutic development, and ensure regulatory frameworks support the duchenne community. We provide advocates with the tools and information needed to engage policymakers and build congressional champions.we also spearhead efforts to expand newborn screening for duchenne, ensuring early diagnosis and access to interventions.
$1,041,438 spent10% of program spending
The 3 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $10,435,388.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $7.1M to $10M (+43%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 4% · 2022 4%. Grants only. Government contracts and fees sit inside program revenue.
67% of THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC’s revenue is contributions — more donation-reliant than the typical peer (21% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Patricia A Furlong
President and CEO
Board chair
John Killian
Chair
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 20 funders to 41 funders, grant income rose $491k → $2.9M.
28 of 104 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 84% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC’s funders (the co-funder graph). Top 30 of 104 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC leans on a few funders — its largest provides 40% of grant income and the top three 64%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
93% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC.
Largest funder’s share by year: 2017 31% · 2018 25% · 2019 46% · 2020 36% · 2021 34% · 2022 29% · 2023 37% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
35% of THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC's funders are still giving 3 years after their first grant; 51% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
84% of THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $1.8M that is directly attributable, 93% of it comes from funders outside Washington, D.C., across 24 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $9.7M arriving through sponsors registered in 17 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC holds deeper cash reserves than three-quarters of the 2,297 human services nonprofits its size.
this organization peer median middle 50% of peers· 2,297 human services nonprofits $10M–$100M, FY2025
Organizations like THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Washington, D.C.
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
88% of spending goes to programs.
Governance
Public support
64%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 27 states
Screen this organization
A dated, signed PDF of the compliance screen for THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC?
- THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC (Washington, D.C.) receives grants from 104 organizations whose IRS filings report $11,480,386 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($4,635,909). 53 of them have funded it in more than one year, and 84% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC have?
- IRS filings report 104 organizations giving $11,480,386 in grants to THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC, 53 of which have funded it in more than one year.
- Who is the largest funder of THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC?
- DONOR ADVISED CHARITABLE GIVING INC is the largest funder on record, with $4,635,909 in grants. The full list of funders is on this page.
- How can an organization like THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Washington, D.C.. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 104 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing