New York · Nonprofit
PROJECT ALS INC
PROJECT ALS INC (New York) receives grants from 176 organizations whose IRS filings report $10,000,524 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($1,602,596). 82 of them have funded it in more than one year.
- Revenue FY2025
- $3.3M
- Funders on record
- 176
- Grants received
- $10M
- Net assets
- $-682996
What Project Als Inc does
Mission
To recruit the world's best research scientists and clinicians to work together toward an understanding of and the first effective treatments for als (amyotrophic lateral sclerosis) also known as lou gehrig's disease.
As stated on its FY2025 Form 990.
Programs
Grants and research - funding for scientific medical research to find treatments and ultimately a cure for amyotrophic lateral sclerosis (als), an ultimately fatal motor neuron disease, by promoting collaboration and information sharing among researchers for all related diseases, such as parkinson's and multiple sclerosis. Effective als drugs development for fda submission for clinical drug trial approval.
$1,989,625 spentof which $1,143,696 as grants83% of program spendingEducation - raise awareness of and provide information about amyotrophic lateral sclerosis (als) through speaking engagements, confernces, town halls newsletter and website.
$395,424 spent17% of program spending
The 2 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $2,385,049.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2018 to 2019, from $3.9M to $2.0M (−48%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2022 6%. Grants only. Government contracts and fees sit inside program revenue.
101% of PROJECT ALS INC’s revenue is contributions — more reliant on donations than three-quarters of its peers (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Margaret Shanahan
Executive director
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 41 funders to 62 funders, grant income rose $1.2M → $1.4M.
29 of 176 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 36% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
Left out of every figure on this page: $1.9M from one payer (the same organization on both sides, largest Project Als Inc). These are real filings, and they are not money PROJECT ALS INC raised.
From the IRS filings of PROJECT ALS INC’s funders (the co-funder graph). Top 30 of 176 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
PROJECT ALS INC has a broad base — no single funder exceeds 16% of grant income, and it takes 7 funders to reach half.
the vertical line marks half of all grant income — 7 funders to its left
44% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund PROJECT ALS INC.
Largest funder’s share by year: 2017 40% · 2018 23% · 2019 23% · 2020 42% · 2021 30% · 2022 18% · 2023 15% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
36% of PROJECT ALS INC's funders are still giving 3 years after their first grant; 47% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
PROJECT ALS INC draws 61% of its grant income from funders outside New York, across 29 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $3.6M arriving through sponsors registered in 17 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
PROJECT ALS INC runs a healthier operating margin than half of the 5,002 health nonprofits its size.
this organization peer median middle 50% of peers· 5,002 health nonprofits $1M–$10M, FY2025
Organizations like PROJECT ALS INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New York
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
82% of spending goes to programs.
Governance
Public support
94%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 7 states
Screen this organization
A dated, signed PDF of the compliance screen for PROJECT ALS INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds PROJECT ALS INC?
- PROJECT ALS INC (New York) receives grants from 176 organizations whose IRS filings report $10,000,524 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($1,602,596). 82 of them have funded it in more than one year.
- How many funders does PROJECT ALS INC have?
- IRS filings report 176 organizations giving $10,000,524 in grants to PROJECT ALS INC, 82 of which have funded it in more than one year.
- Who is the largest funder of PROJECT ALS INC?
- FIDELITY INVESTMENTS CHARITABLE GIFT FUND is the largest funder on record, with $1,602,596 in grants. The full list of funders is on this page.
- How can an organization like PROJECT ALS INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 176 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing