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Washington, D.C. · Nonprofit
EVERYLIFE FOUNDATION FOR RARE DISEASES (Washington, D.C.) is funded by 18 grantmakers whose IRS filings report $3,353,461 in grants to it, the largest being Silicon Valley Community Foundation ($1,125,000). 11 of them have funded it in more than one year.
Against its field
EVERYLIFE FOUNDATION FOR RARE DISEASES has grown faster than half of the 6,792 health nonprofits its size.
this organization peer median middle 50% of peers· 6,792 health nonprofits $1M–$10M, FY2024
Revenue, expenses and net assets — each indexed to 100 at its first filing year, so you read the trajectory, not the magnitude. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
The funding model — what share of revenue comes from contributions, programs, investments and other sources — and whether it's shifting.
69% of EVERYLIFE FOUNDATION FOR RARE DISEASES’s revenue is contributions — more donation-reliant than the typical peer (52% for the typical peer).
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 5 reported years ran a deficit.
Grant income rose $203k → $229k on a roughly flat funder count — a concentrated base.
8 of 18 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 69% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of EVERYLIFE FOUNDATION FOR RARE DISEASES’s funders (the co-funder graph). Association, not causation.
EVERYLIFE FOUNDATION FOR RARE DISEASES leans on a few funders — its largest provides 34% of grant income and the top three 67%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
Largest funder’s share by year: 2017 71% · 2018 64% · 2019 53% · 2020 59% · 2021 50% · 2022 53% · 2023 55% · 2024 67% · 2025 92% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration.
50% of EVERYLIFE FOUNDATION FOR RARE DISEASES's funders are still giving 3 years after their first grant; 61% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year.
EVERYLIFE FOUNDATION FOR RARE DISEASES draws 84% of its grant income from funders outside Washington, D.C. — its reputation reaches beyond the state, across 12 states in all.
In-state vs out-of-state, by year
Grantmakers that don’t fund you yet, surfaced two ways: they back organizations that share your funders, or their grantees resemble your mission. The ones both signals agree on come first. Your 18 funders put you under-funded among the 400 organizations that share them.
From the co-funder graph (funders backing at least two comparable organizations, shrunk for grantee count, donor-advised and mega-funds excluded) and the universe embeddings. A research starting point; overlap is association, not a guarantee of fit.
Nonprofits whose mission and program text most resemble this one, by semantic similarity over the universe of US filings — the closest peers, and often the clearest route to shared or prospective funders.
Read directly from this organization’s own Form 990, as neutral context.
70% of spending goes to programs.
76%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Operates in 1 state
Every figure is read directly from IRS Form 990 / 990-PF e-file XML — this organization’s own return for FY2024 (financials across 2020–2024), and the filings of 18funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. view filing