Washington, D.C. · Nonprofit
I AM ALS
I AM ALS (Washington, D.C.) receives grants from 100 organizations whose IRS filings report $7,853,349 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($3,449,298). 41 of them have funded it in more than one year, and 69% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $2.6M
- Funders on record
- 100
- Grants received
- $7.9M
- Net assets
- $3.4M
What I Am Als does
Mission
The mission of I Am Als is to accelerate a cure for als by mobilizing collective power to drive urgent policy and systems change.
As stated on its FY2025 Form 990.
Programs
Community supportI Am Als offers a multi-pronged, person-centered support portfolio of programs for people living with als, caregivers, and loved ones as they navigate the emotional, practical, and informational challenges of the disease. Through direct 1:1 support, virtual support groups, peer matching, and curated resources, the community support team helps individuals feel less alone, connect clients with trained community member mentors who share similar experiences, and navigate clients to the resources, information, and programs they need. This initiative improves quality of life while building a community rooted in connection, dignity, and hope.
$478,099 spent24% of program spendingGovernment affairs, policy, and researchI Am Als leverages the expertise and lived experience of the als community to drive urgent federal policy and systems change. The legislative programs are intended to force multiply als research and treatment resources by using federal policy and funding buckets to maximize investments. The government affairs team works alongside community leaders, policymakers, researchers, regulators, and other partners to secure appropriations, policy, and legislation that: 1) increases als research funding, 2) protects and expands access to promising treatments, and 3) improves clinical research systems and a path to regulatory success, all ultimately accelerating the path towards a cure.
$526,421 spent26% of program spendingCommunity organizing and communicationI Am Als builds and sustains a national movement by equipping community members those living with and impacted by als to take collective action. Through weekly community teams, digital actions, events, story-sharing, awareness campaigns, and communications, the organization trains and equips volunteers, facilitates advocacy, and mobilizes a community and national conversation around bold priorities and a focus on a cure. I Am Als strives to ensure people living with als are centered in the decisions that shape the future of als science, care, and access. These efforts strengthen community leadership, increase als awareness and competency, and catalyze progress on policy change, research, trial access, care, and public engagement.
$903,058 spent45% of program spendingOther program services, not described on the e-filed return.
$111,596 spent6% of program spending
The 4 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $2,019,174.
The organization over time
Each line starts at 100 in 2018, so what you read is the shape rather than the size: 150 means half as much again as 2018, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2018 to 2019, from $925 to $1.7M (+182118%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 7% · 2023 11%. Grants only. Government contracts and fees sit inside program revenue.
96% of I AM ALS’s revenue is contributions — more reliant on donations than three-quarters of its peers (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Andrea Goodman
CEO
Board chair
Peter Bowen
Board chair
As listed on its FY2025 Form 990.
The chief executive listed changed between the FY2022 and FY2023 filings.
Who funds it, year by year
2018 → 2023: the base broadened from 1 funder to 31 funders, grant income rose $89k → $886k.
26 of 100 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 69% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of I AM ALS’s funders (the co-funder graph). Top 30 of 100 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
I AM ALS leans on a few funders — its largest provides 44% of grant income and the top three 67%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
90% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund I AM ALS.
Largest funder’s share by year: 2018 100% · 2019 72% · 2020 37% · 2021 68% · 2022 43% · 2023 24% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
38% of I AM ALS's funders are still giving 3 years after their first grant; 41% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
69% of I AM ALS's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $2.4M that is directly attributable, 90% of it comes from funders outside Washington, D.C., across 25 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $5.4M arriving through sponsors registered in 15 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
I AM ALS holds deeper cash reserves than three-quarters of the 5,002 health nonprofits its size.
this organization peer median middle 50% of peers· 5,002 health nonprofits $1M–$10M, FY2025
Organizations like I AM ALS
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Washington, D.C.
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
79% of spending goes to programs.
Governance
Public support
86%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 28 states
Screen this organization
A dated, signed PDF of the compliance screen for I AM ALS: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds I AM ALS?
- I AM ALS (Washington, D.C.) receives grants from 100 organizations whose IRS filings report $7,853,349 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($3,449,298). 41 of them have funded it in more than one year, and 69% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does I AM ALS have?
- IRS filings report 100 organizations giving $7,853,349 in grants to I AM ALS, 41 of which have funded it in more than one year.
- Who is the largest funder of I AM ALS?
- FIDELITY INVESTMENTS CHARITABLE GIFT FUND is the largest funder on record, with $3,449,298 in grants. The full list of funders is on this page.
- How can an organization like I AM ALS find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Washington, D.C.. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2018–2025), and the filings of 100 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing