Washington, D.C. · Public charity
The Parent Project for Muscular Dystrophy Research Inc
The parent project muscular dystrophy (ppmd) fights to end duchenne. We accelerate research, raise our voices to impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies.
- $1.5M
- Granted FY2025(still arriving)
- 22
- Itemized grants FY2025
- 20
- Organizations funded FY2024
- 25%
- First-time grantees FY2024
- Itemized, FY2025
- $1.4M
- The rest is grants the schedule does not break out
- Median grant, FY2025
- $29,039
- Largest grant, FY2025
- $300,000
- Organizations funded a year
- 19 to 44
- FY2018 to FY2024
- States reached, FY2025
- 16
- Total assets, FY2025
- $13M
How open it is to new grantees
In FY2024, 25% of the organizations The Parent Project for Muscular Dystrophy Research Inc funded were first-time grantees, receiving 7% of its grant dollars.
New vs renewed · share of each year
In FY2024, 93% of grant dollars renewed an existing relationship; $178k went to new ones.
Where new relationships form · theme of each grantee’s first grant
How this is measured
The numbers by year
| Fiscal year | Organizations funded | To those organizations | First-time grantees |
|---|---|---|---|
| FY2025still arriving | 18 | $1.3M | 0% |
| FY2024 | 20 | $2.4M | 25% |
| FY2023 | 20 | $2.4M | 10% |
| FY2022 | 22 | $2.4M | 27% |
| FY2021 | 19 | $2.2M | 11% |
| FY2020 | 40 | $2.7M | 10% |
| FY2019 | 44 | $4.4M | 48% |
| FY2018 | 28 | $2.5M | 32% |
What it funded, over time
Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.
Where its grants go
Grant dollars by states, across the years we hold.
Which US states its grants reach
Top grantees
Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| The University of Florida Foundation Inc | $3,137,483 | 8 | 0% |
| Nationwide Childrens Hospital Inc | $2,698,852 | 9 | n/a |
| Health Research Inc | $2,437,199 | 3 | 0% |
| University of Florida | $2,162,941 | 9 | n/a |
| Children's Hospital Medical Center | $1,991,655 | 6 | 0% |
| Critical Path Institute | $1,199,601 | 9 | 2% |
| The Ohio State University | $1,047,331 | 8 | n/a |
| Regents Univ of California | $1,041,784 | 7 | n/a |
| Northwestern University | $696,247 | 9 | 0% |
| The Research Foundation for The State University of New York | $679,005 | 6 | 0% |
Show all 76 grantees
| Grantee | Total granted | Years | Share of their budget |
|---|---|---|---|
| The University of Florida Foundation Inc | $3,137,483 | 8 | 0% |
| Nationwide Childrens Hospital Inc | $2,698,852 | 9 | n/a |
| Health Research Inc | $2,437,199 | 3 | 0% |
| University of Florida | $2,162,941 | 9 | n/a |
| Children's Hospital Medical Center | $1,991,655 | 6 | 0% |
| Critical Path Institute | $1,199,601 | 9 | 2% |
| The Ohio State University | $1,047,331 | 8 | n/a |
| Regents Univ of California | $1,041,784 | 7 | n/a |
| Northwestern University | $696,247 | 9 | 0% |
| The Research Foundation for The State University of New York | $679,005 | 6 | 0% |
| New York University | $575,000 | 4 | 0% |
| University of Rochester | $450,000 | 4 | 0% |
| American College of Medical Genetics and Genomics | $411,699 | 3 | 3% |
| Institute for Advanced Clinical Trials for Children | $369,440 | 3 | 4% |
| Analysis Group | $360,000 | 7 | n/a |
| Beauhawks Foundation | $300,000 | 1 | n/a |
| The University of Texas Southwestern Medical Cente | $287,066 | 3 | n/a |
| Team Joseph Inc | $285,000 | 2 | 13% |
| The Nemours Foundation | $257,905 | 7 | 0% |
| Children's Research Institute | $251,035 | 6 | 0% |
| Michigan State University | $250,009 | 2 | n/a |
| Regents of the University of California at Berkeley | $230,750 | 4 | n/a |
| Curators of the University of Missouri | $200,172 | 4 | n/a |
| Nj Institute of Technology | $177,827 | 3 | n/a |
| University of California Davis | $172,159 | 4 | n/a |
| Nyu Langone Health System | $150,000 | 2 | 0% |
| Iowa State University | $141,667 | 2 | n/a |
| Mass General Brigham Incorporated | $132,000 | 3 | n/a |
| Duke University | $121,202 | 6 | 0% |
| The Center for Medical Technology Policy Inc | $103,796 | 1 | 8% |
| Machina Carnis Consulting LLC | $96,000 | 1 | n/a |
| University of Utah | $90,326 | 5 | n/a |
| State University of Iowa | $87,000 | 5 | n/a |
| Hugo W Moser Research Institute at Kennedy Krieger Inc | $82,000 | 6 | 0% |
| Arkansas Children's Research Institute | $80,103 | 2 | 0% |
| Arkansas Children's Foundation | $79,785 | 4 | 1% |
| Vanderbilt University Medical Center | $75,036 | 2 | 0% |
| Really Useful Robots | $66,479 | 2 | n/a |
| Regents of the University of Colorado | $62,500 | 2 | n/a |
| Children's Hospital Los Angeles | $62,000 | 4 | 0% |
| Lucile Packard Foundation for Children's Health | $62,000 | 4 | 0% |
| Ann & Robert H Lurie Children's Hospital of Chicago | $62,000 | 4 | 0% |
| Seattle Children's Foundation | $62,000 | 4 | 0% |
| The Children's Mercy Hospital | $62,000 | 4 | 0% |
| Nationwide Childrens Hospital Inc | $60,000 | 2 | n/a |
| University of Minnesota | $50,000 | 2 | n/a |
| Myogene Bio LLC | $50,000 | 1 | n/a |
| Johns Hopkins University | $41,662 | 2 | 0% |
| Emmes Endpoint Solutions LLC | $41,500 | 2 | n/a |
| Everylife Foundation for Rare Diseases | $41,000 | 2 | 0% |
| Berry Consultants LLC | $40,919 | 1 | n/a |
| University Physicians Incorporated | $37,000 | 3 | n/a |
| Lee Sweeney Consulting LLC | $36,000 | 1 | n/a |
| Gordon Research Conferences Inc | $35,000 | 2 | 0% |
| University of Washington | $26,921 | 2 | n/a |
| Children's Hospital Colorado | $25,000 | 1 | 0% |
| Somalogic Inc | $24,800 | 1 | n/a |
| Hope for Gus Foundation | $20,000 | 2 | 10% |
| University of Massachusetts | $20,000 | 1 | n/a |
| University of Arizona | $16,310 | 2 | n/a |
| Children's Hospital of the King's Daughters | $15,000 | 2 | 0% |
| University of Wisconsin Madison | $15,000 | 2 | n/a |
| Children's Hospital of Wisconsin Foundation Inc | $15,000 | 2 | 0% |
| Biosymetrics Inc | $15,000 | 1 | n/a |
| Rector & Visitors of the University of Virginia | $15,000 | 2 | n/a |
| University of California San Francisco | $15,000 | 2 | n/a |
| Faseb | $11,500 | 1 | n/a |
| Children's Hospital | $10,000 | 1 | 0% |
| Gillette Children's Specialty Healthcare | $10,000 | 1 | 0% |
| Energizing & Empowering Minds | $10,000 | 1 | 15% |
| Vanderbilt | $10,000 | 1 | n/a |
| Vcuvcu Health Campus | $10,000 | 2 | n/a |
| Lucile Salter Packard Children's Hospital at Stanford | $10,000 | 1 | 0% |
| The Children's Hospital of Philadelphia | $7,000 | 1 | 0% |
| Akron Children's Hospital Foundation | $5,000 | 1 | 0% |
| Ut Southwestern Health Systems | $5,000 | 1 | 0% |
Where it is load-bearing
Each grantee by its size and the share of its budget The Parent Project for Muscular Dystrophy Research Inc supplied at peak.
Tap a dot to name the grantee.
How this is measured
Co-funders
Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.
Open a dossier: Johns Hopkins University · The Trustees of Columbia University in the City of New York · Muscular Dystrophy Association Inc · The Children's Hospital of Philadelphia · Vanderbilt University Medical Center · American Cancer Society Inc · Families of Spinal Muscular Atrophy Dba Cure Sma · Institute for Advanced Clinical Trials for Children · Metavivor Research and Support Inc · Breakthrough T1d · Northwestern University · Yale University
How this is measured
Compare The Parent Project for Muscular Dystrophy Research Inc with peer funders
About The Parent Project for Muscular Dystrophy Research Inc
- How much does The Parent Project for Muscular Dystrophy Research Inc give?
- The Parent Project for Muscular Dystrophy Research Inc reported 22 itemized grants totaling $1,352,873, out of $1,500,817 in total grant expense reported on the return in its FY2025 IRS filing. It funded between 19 and 44 organizations a year over FY2018 to FY2024.
- What does The Parent Project for Muscular Dystrophy Research Inc fund?
- By grant dollars over FY2017 to FY2025, its largest causes are Health (86%), Science & Tech (5%), Education (4%).
- Who are The Parent Project for Muscular Dystrophy Research Inc's largest grantees?
- By total granted over FY2017 to FY2025: The University of Florida Foundation Inc ($3.1M), Nationwide Childrens Hospital Inc ($2.7M), Health Research Inc ($2.4M).
- Does The Parent Project for Muscular Dystrophy Research Inc fund new organizations?
- In FY2024, 25% of the organizations it funded were first-time grantees.
- Which funders back the same organizations as The Parent Project for Muscular Dystrophy Research Inc?
- Its strongest co-funders, measured against what their size predicts, include Johns Hopkins University, The Trustees of Columbia University in the City of New York, Muscular Dystrophy Association Inc.
- Where is The Parent Project for Muscular Dystrophy Research Inc based?
- The Parent Project for Muscular Dystrophy Research Inc is based in DC.
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