· Public charity
The Parent Project for Muscular Dystrophy Research Inc
The parent project muscular dystrophy (ppmd) fights to end duchenne.
What you funded, over time
By grantee IRS cause code (NTEE).
A cause breakdown isn’t shown here: 46% of THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC’s grantee dollars fall outside its nine largest cause areas, whether because the recipient carries no IRS cause code or because its cause sits in the long tail. A chart would be mostly one residual band and misrepresent the portfolio.
Where the money goes
Your grants by size, and where they go.
The 29 grants below total $2,450,828 — the rows itemised in this filing. The $2,650,583 headline is the total grant expense reported on the return, so the remaining $199,755 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.
By grant size · FY2024
- Under $10k2 grants · $15k
- $10k–50k13 grants · $297k
- $50k–250k12 grants · $1.2M
- $250k+2 grants · $917k
| Recipient | Amount |
|---|---|
| CINCINNATI CHILDREN'S HOSPITAL MC | $617,000 |
| UNIVERSITY OF FLORIDA FOUNDATION | $300,000 |
| UNIVERSITY OF ROCHESTER MEDICAL CENTER | $210,000 |
| NYU LANGONE HEALTH | $200,000 |
| UNIVERSITY OF FLORIDA | $178,500 |
| NEW YORK UNIVERSITY | $100,000 |
| CRITICAL PATH | $100,000 |
| OHIO STATE UNIVERSITY | $84,363 |
| NORTHWESTERN UNIVERSITY | $73,500 |
| NATIONWIDE CHILDREN'S HOSPITAL | $60,000 |
| UNIVERSITY OF CALIFORNIA BERKELEY | $57,690 |
| ARKANSAS CHILDREN'S HOSPITAL | $57,603 |
| OHIO STATE UNIVERSITY | $50,000 |
| UNIVERSITY OF COLORADO AT DENVER | $50,000 |
| UNIVERSITY OF FLORIDA | $40,000 |
Do your dollars go where the need is?
Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.
Your human-services grants (FY22–23, $285k) land where the poverty rate runs at 8%, against an area that typically sits at 10%. 0% of those dollars go to grantees based in above-average-need neighborhoods. Your grants skew toward lower-need ZIPs.
Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.
Which US states your grants reach
US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving.
Who you back again
Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.
And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +55% since the first grant, against +24% for the ones you funded once.
50 repeat relationships — 15 still active in FY2024, 35 since wound down; 5 grantees were first funded in FY2024 (too recent to call).
How the two cohorts compare
Organizations
Total granted
Median revenue growth · since first grant
Still filing today
New vs renewed · share of each year
In FY2024, 93% of grant dollars renewed an existing relationship; $178k went to new ones.
Where new relationships form · theme of each grantee’s first grant
First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.
Backed again, and grew
THE UNIVERSITY OF FLORIDA FOUNDATION INC7× · 2018–2024 · $2.8M · revenue +62%- HRHEALTH RESEARCH INC3× · 2019–2021 · $2.4M · revenue +41%
- CHCHILDREN'S HOSPITAL MEDICAL CENTER6× · 2019–2024 · $2.0M · revenue +37%
Funded once
- BFBEAUHAWKS FOUNDATIONone grant, 2018 · $300k
- NINJ INSTITUTE OF TECHNOLOGY3× · 2017–2020 · $178k
- TCTHE CENTER FOR MEDICAL TECHNOLOGY POLICY INCone grant, 2019 · $104k · revenue -19%
Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.
The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.
We champion the health needs of children and families. we are committed to improving children's health by providing the highest-quality, family centered care, advanced through research and education.
University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…
The mission of children's hospital & research center at oakland is to protect and advance the health and well-being of children through clinical care, teaching and research.
For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…
The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.
Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o
Provider of pediatric healthcare, education, research & community service
Stanley manne children's research institute strives to generate new knowledge and advance the prevention, diagnosis, and treatment of pediatric diseases.
As a leading academic healthcare organization, our mission is to elevate the health status of the communities we serve.(see schedule o for continuation)(continued)-we deliver exceptional healthcare enhanced by research and education-we…
Operate a state-of-the-art, world-class genomic research center that creates and uses advanced genomics to understand the genetic basis of disease. for more information, see schedule o.
Leadership in the prevention, treatment, and cure of cancer through excellence, vision and cost effectiveness in patient care, outreach programs, research, and education.
East tennessee children's hospital is a free-standing, independent, not-for-profit pediatric health care system which serves the east tennessee region. children's hospital is certified by the state of tennessee as a comprehensive regional…
For reference, the grantee most central to the portfolio’s shape is Children's Hospital and the most unlike its peers is Energizing & Empowering Minds. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.
For each theme you fund, this compares how the sector’s money is shifting with how your own giving is shifting.
Sector change and giving change are each shown relative to their own range, growing (right) or shrinking (left); both normalized, so inflation isn’t mistaken for growth.
Your grantees are a median of 41 years old; the field is 16. You back the established end — and your money leans older still.
The field is 22% startups (under 5 years old) — 0% of your grantees by number, and just 0% of your money.
The orgs you fund almost never close — 0.0% lost their exemption, against 13% of the field you don’t fund.
Age = years since IRS exemption (a founding proxy). “Closed” = auto-revocation for 3 years of non-filing — a floor on closure, not proof, and bigger established orgs lapse least. Association, not causation.
43 grantees tracked through their own filings, 2017–2025.
Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.
Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 43 of the 80 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.
Where your money sits — by cause, then by grantee
Each org by its size and your share of it — top-left is where you’re load-bearing
Go grantee by grantee — a decade per org, and how each moved after you funded them
A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.
- Who funds THE UNIVERSITY OF FLORIDA FOUNDATION INC ↗
- Who funds HEALTH RESEARCH INC ↗
- Who funds CHILDREN'S HOSPITAL MEDICAL CENTER ↗
- Who funds CRITICAL PATH INSTITUTE ↗
- Who funds The Research Foundation for The State University of New York ↗
- Who funds Northwestern University ↗
- Who funds New York University ↗
- Who funds UNIVERSITY OF ROCHESTER ↗
- Who funds AMERICAN COLLEGE OF MEDICAL GENETICS AND GENOMICS ↗
- Who funds INSTITUTE FOR ADVANCED CLINICAL TRIALS FOR CHILDREN ↗
- Who funds TEAM JOSEPH INC ↗
- Who funds THE NEMOURS FOUNDATION ↗
- Who funds CHILDREN'S RESEARCH INSTITUTE ↗
- Who funds NYU LANGONE HEALTH SYSTEM ↗
- Who funds THE CENTER FOR MEDICAL TECHNOLOGY POLICY INC ↗
- Who funds DUKE UNIVERSITY ↗
- Who funds Yale University ↗
- Who funds HUGO W MOSER RESEARCH INSTITUTE AT KENNEDY KRIEGER INC ↗
- Who funds ARKANSAS CHILDREN'S FOUNDATION ↗
- Who funds ARKANSAS CHILDREN'S RESEARCH INSTITUTE ↗
- Who funds The Children's Mercy Hospital ↗
- Who funds Children's Hospital Los Angeles ↗
- Who funds LUCILE PACKARD FOUNDATION FOR CHILDREN'S HEALTH ↗
The grantmakers whose grantees overlap with yours far more than size alone predicts. Each orbits closer the stronger the alignment; the arcs between them show where they also fund each other. Here it reads as a tightly interlocked camp — most of these funders back each other's grantees too.
Open a dossier: Johns Hopkins University · The Trustees of Columbia University in the City of New York · Muscular Dystrophy Association Inc · The Children's Hospital of Philadelphia · Vanderbilt University Medical Center · American Cancer Society Inc · Families of Spinal Muscular Atrophy Dba Cure Sma · Institute for Advanced Clinical Trials for Children · Metavivor Research and Support Inc · Breakthrough T1d · Northwestern University · Yale University
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. A research starting point: overlap is association, not proof of shared intent.
Government reliance of your grantees
Every dot is one organization The Parent Project for Muscular Dystrophy Research Inc funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal or a single department — and drag the year to watch it move.
- Hugo W Moser Research Institute at Kennedy Krieger Inc — 39% of income from government
- Johns Hopkins University — 12% of income from government
- Yale University — 12% of income from government
- The Nemours Foundation — 0% of income from government
Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.