Nonprofit screen
Screen a listEverylife Foundation for Rare Diseases
Can you give?
Listed with the IRS. Every screen came back clear.
A 501(c)(3) on Publication 78 and the IRS master file.
- IRS nonprofit listing
- No issue
- Revocation
- None
- IRS files
- Agree
- Sanctions
- No match
- IRS bulletin
- No notice
- California
- Registered
- Charity type
- 509(a)(1)
$7.5Mrevenue
FY2025 · +30% in 3 yrs32staff
6 of 6years filed
’20’21’22’23’24’25
Revenue and spendingRevenueSpendingDeficit
Against similar nonprofits FY2025
Operating margin3.2%
Months of reserve0.5mo
Revenue growth (annualized)+11.2%
Middle half of peersMedianEverylife Foundation for Rare Diseases
Where the money goes FY2025 · $7.3M spent
Programs$5.1M70%Management and general$1.5M21%Fundraising$685k9%990 FY2025 · Part IX line 25
Nothing to check in the filings
In its favor2
Strong governance
7 of 7 board members independent. Conflict-of-interest and whistleblower policies, audited financial statements, board reviews the 990.
990 Part VIGrowing faster than peers
Revenue up 11% a year since FY2020, faster than half of similar nonprofits.
990 Part I · peer cohort24funders
$707ka year, last 3 years
44%from its largest funder
Funder’17’18’19’20’21’22’23Gene Spotlight IncOn and off$145k$60k$13kPharmaceutical Research and Manufacturers of AmericaOn and off$38k$25k$70k$25k$50kDanaher FoundationOn and off$100kThe Parent Project for Muscular Dystrophy Research IncStopped after FY2021$21k$20k–Harbor Point Charitable FoundationStopped after FY2018$10k$10k–Advanced Medical Technology AssociationStopped after FY2020$6k$6k$6k–Donor-advised giftsDonors not disclosed$90k$138k$184k$216k$711k$212k$829k6 other fundersUp to $50k a year each$11k$11k$10k$65k$50k$25k$30k
FundedThrough a donor-advised fundStopped