New York · Nonprofit
CHILDREN'S TUMOR FOUNDATION
CHILDREN'S TUMOR FOUNDATION (New York) receives grants from 344 organizations whose IRS filings report $37,607,548 to it, the largest being NFX ($10,470,750). 182 of them have funded it in more than one year.
- Revenue FY2024
- $20M
- Funders on record
- 344
- Grants received
- $38M
- Net assets
- $27M
What Children's Tumor Foundation does
Mission
Our mission: drive research, expand knowledge, and advance care for the nf community. Our vision: end nf.
As stated on its FY2024 Form 990.
Programs
Research - the Children's Tumor Foundation supports nf research through a range of funding mechanisms. Our investments in research are three-fold: 1) to attract talented investigators to nf research; 2) to support innovative research; and 3) to foster collaborative efforts to find treatments and cures for neurofibromatosis. The foundation has been at the forefront of key advances in nf research including funding the laboratories that discovered the nf1 and nf2 genes, supporting groundbreaking clinical trials, and establishing the first nationwide nf clinic network and nf patient registry. The foundation sponsors an annual scientific conference which brings researchers together to discuss the latest scientific developments related to nf. Additonally, our porgrams are designed to integrate with and support larger federally funded projects through the congressionally directed medical research program (cdmrp) and nih.
$11,061,408 spentof which $5,493,525 as grants$108,732 earned by the program69% of program spendingPublic education and patient support - the Children's Tumor Foundation engages in public education through its website, quarterly newsletters, media coverage, and its national programs. Through our nf endurance and nf walk programs, the foundation highlights nf heroes and their triumphant spirits. The foundation also sponsors benefit dinners and regional and local events to promote awareness. The Children's Tumor Foundation is dedicated to supporting patients with nf as well as their family members. Through the nf clinic network and the annual nf forum, the foundation brings researchers, providers, and families together to discuss developments in treatments. The foundation also sponsors the annual nf camp which brings nf teens together for one week to enjoy the support and fellowship of their peers. Regional symposia are also held throughout the year.
$4,863,943 spent31% of program spending
The 2 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $15,925,351.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2018 to 2019, from $12M to $19M (+64%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2020 5% · 2021 6% · 2022 2% · 2023 1% · 2024 0%. Grants only. Government contracts and fees sit inside program revenue.
96% of CHILDREN'S TUMOR FOUNDATION’s revenue is contributions — more reliant on donations than three-quarters of its peers (7% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Board chair
Gabriel Groisman
Chair
As listed on its FY2024 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 67 funders to 126 funders, grant income rose $2.9M → $5.5M.
50 of 344 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 38% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
Left out of every figure on this page: $2.3M from one payer (the payer shares this organization's board, largest Cupid Charities). These are real filings, and they are not money CHILDREN'S TUMOR FOUNDATION raised.
From the IRS filings of CHILDREN'S TUMOR FOUNDATION’s funders (the co-funder graph). Top 30 of 344 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
CHILDREN'S TUMOR FOUNDATION has a broad base — no single funder exceeds 28% of grant income, and it takes 4 funders to reach half.
the vertical line marks half of all grant income — 4 funders to its left
74% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund CHILDREN'S TUMOR FOUNDATION.
Largest funder’s share by year: 2017 26% · 2018 38% · 2019 32% · 2020 43% · 2021 49% · 2022 30% · 2023 27% — broadly stable.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
38% of CHILDREN'S TUMOR FOUNDATION's funders are still giving 3 years after their first grant; 53% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
CHILDREN'S TUMOR FOUNDATION draws 92% of its grant income from funders outside New York, across 42 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $14M arriving through sponsors registered in 23 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
CHILDREN'S TUMOR FOUNDATION holds deeper cash reserves than three-quarters of the 4,580 health nonprofits its size.
this organization peer median middle 50% of peers· 4,580 health nonprofits $10M–$100M, FY2024
Government funding CHILDREN'S TUMOR FOUNDATION receives
Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $33k on record.
- Department of Health and Human Services$33k
Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.
Organizations like CHILDREN'S TUMOR FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New York
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
84% of spending goes to programs.
Governance
Public support
88%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 51 states
Part of a family of 1 related entity
- Children's Tumor Foundation Europe · corp_trust
Screen this organization
A dated, signed PDF of the compliance screen for CHILDREN'S TUMOR FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds CHILDREN'S TUMOR FOUNDATION?
- CHILDREN'S TUMOR FOUNDATION (New York) receives grants from 344 organizations whose IRS filings report $37,607,548 to it, the largest being NFX ($10,470,750). 182 of them have funded it in more than one year.
- How many funders does CHILDREN'S TUMOR FOUNDATION have?
- IRS filings report 344 organizations giving $37,607,548 in grants to CHILDREN'S TUMOR FOUNDATION, 182 of which have funded it in more than one year.
- Who is the largest funder of CHILDREN'S TUMOR FOUNDATION?
- NFX is the largest funder on record, with $10,470,750 in grants. The full list of funders is on this page.
- How can an organization like CHILDREN'S TUMOR FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 344 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing