California · Nonprofit
HAIRY CELL LEUKEMIA FOUNDATION
HAIRY CELL LEUKEMIA FOUNDATION (California) receives grants from 17 organizations whose IRS filings report $8,679,103 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($5,384,660). 12 of them have funded it in more than one year, and 74% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $1.1M
- Funders on record
- 17
- Grants received
- $8.7M
- Net assets
- $4.5M
What Hairy Cell Leukemia Foundation does
Mission
The Hairy Cell Leukemia Foundation is dedicated to improving outcomes for patients by advancing research into the causes and treatment of hairy cell leukemia, as well as by providing educational resources and comfort to all those affected by hairy cell leukemia.
As stated on its FY2025 Form 990.
Programs
Grants to the ohio state university and other institutions for registry implementation.
$199,299 spentof which $199,299 as grants14% of program spendingAnnual conference each fall for doctors, as well as educational webinars and forums for patients throughout the year. Facilitation of regional support networks for patients. Responding to patient inquiries and referrals to hcl centers of excellence. Facilitation of scientific advisory groups and peer-to-peer doctor support. Administrative, editorial and technical support in the preparation and submission of relevant manuscripts.
$1,210,940 spentof which $781,250 as grants86% of program spending
The 2 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $1,410,239.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $602k to $2.3M (+275%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2020 3%. Grants only. Government contracts and fees sit inside program revenue.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Anna Lambertson
Executive director
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 3 funders to 9 funders, grant income fell $635k → $394k.
9 of 17 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 74% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of HAIRY CELL LEUKEMIA FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
HAIRY CELL LEUKEMIA FOUNDATION leans on a few funders — its largest provides 62% of grant income and the top three 80%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
87% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund HAIRY CELL LEUKEMIA FOUNDATION.
Largest funder’s share by year: 2017 47% · 2018 71% · 2019 73% · 2020 57% · 2021 74% · 2022 70% · 2023 64% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
75% of HAIRY CELL LEUKEMIA FOUNDATION's funders are still giving 3 years after their first grant; 71% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
74% of HAIRY CELL LEUKEMIA FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $2.2M that is directly attributable, 100% of it comes from funders outside California, across 6 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $6.4M arriving through sponsors registered in 9 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Organizations like HAIRY CELL LEUKEMIA FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In California
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
94% of spending goes to programs.
Governance
Public support
77%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for HAIRY CELL LEUKEMIA FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds HAIRY CELL LEUKEMIA FOUNDATION?
- HAIRY CELL LEUKEMIA FOUNDATION (California) receives grants from 17 organizations whose IRS filings report $8,679,103 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($5,384,660). 12 of them have funded it in more than one year, and 74% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does HAIRY CELL LEUKEMIA FOUNDATION have?
- IRS filings report 17 organizations giving $8,679,103 in grants to HAIRY CELL LEUKEMIA FOUNDATION, 12 of which have funded it in more than one year.
- Who is the largest funder of HAIRY CELL LEUKEMIA FOUNDATION?
- FIDELITY INVESTMENTS CHARITABLE GIFT FUND is the largest funder on record, with $5,384,660 in grants. The full list of funders is on this page.
- How can an organization like HAIRY CELL LEUKEMIA FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 17 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing