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Michigan · Nonprofit

CUTANEOUS LYMPHOMA FOUNDATION

CUTANEOUS LYMPHOMA FOUNDATION (Michigan) receives grants from 30 organizations whose IRS filings report $547,758 to it, the largest being BLOOD CANCER UNITED INC ($100,000). 11 of them have funded it in more than one year.

Revenue FY2025
$837k
Funders on record
30
Grants received
$548k
Net assets
$887k
11/30 repeat funderspeak grant-dependency 14%
01What it does

What Cutaneous Lymphoma Foundation does

Mission

The Cutaneous Lymphoma Foundation is an independent, non-profit patient advocacy organization dedicated to supporting patients with cutaneous lymphomas by promoting awareness and education, advancing patient care and facilitating research.

As stated on its FY2025 Form 990.

Program

  1. Patient advocacy organization dedicated to supporting patients with mycosis fungoides, sezary syndrome and other forms of cutaneous lymphomas by promoting awareness and education, advancing patient care and facilitating research.

    $913,760 spentof which $65,500 as grants
    100% of program spending

The program described on its FY2024 Form 990. Program spending in total: $913,760.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20172017 Revenue 100 ($802k) Expenses 100 ($853k) Net assets 100 ($575k)2018 Revenue 111 ($891k) Expenses 85 ($728k) Net assets 128 ($737k)2019 Revenue 134 ($1.1M) Expenses 99 ($841k) Net assets 169 ($968k)2020 Revenue 126 ($1.0M) Expenses 103 ($880k) Net assets 191 ($1.1M)2021 Revenue 137 ($1.1M) Expenses 84 ($719k) Net assets 257 ($1.5M)2022 Revenue 118 ($944k) Expenses 86 ($732k) Net assets 294 ($1.7M)2023 Revenue 72 ($576k) Expenses 112 ($958k) Net assets 228 ($1.3M)2024 Revenue 93 ($746k) Expenses 109 ($926k) Net assets 196 ($1.1M)2025 Revenue 104 ($837k) Expenses 127 ($1.1M) Net assets 154 ($887k)
'17'18'19'20'21'22'23'24'25
Revenue (104)Expenses (127)Net assets (154)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $1.2M to $1.5M (+25%).

$673k
$811k
$1.1M
$1.2M
$1.5M
$1.7M
$1.4M
$1.2M
$937k
'17'18'19'20'21'22'23'24'25
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
2025
ContributionsProgram revenueInvestmentOther

Government-grant reliance: 2021 7%. Grants only. Government contracts and fees sit inside program revenue.

99% of CUTANEOUS LYMPHOMA FOUNDATION’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).

This organization
Typical peer · 14,893 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 9 reported years ran a deficit.

−$51k
’17
$163k
’18
$231k
’19
$130k
’20
$381k
’21
$212k
’22
−$382k
’23
−$179k
’24
−$242k
’25
9.1
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

'17'18'19'20'21'22'23'24'25
Listed109109888911
Joined·+1+1+0+0+0+0+3+3
No longer listed·20110021
03Who funds it

Who funds it, year by year

2017 → 2023: the base broadened from 2 funders to 12 funders, grant income rose $26k → $41k.

6 of 30 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 46% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of CUTANEOUS LYMPHOMA FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

CUTANEOUS LYMPHOMA FOUNDATION has a broad base — no single funder exceeds 18% of grant income, and it takes 3 funders to reach half.

the vertical line marks half of all grant income — 3 funders to its left

64% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund CUTANEOUS LYMPHOMA FOUNDATION.

18%
largest funder
50%
top three
~9
effective funders

Largest funder’s share by year: 2017 97% · 2018 66% · 2019 77% · 2020 72% · 2021 41% · 2022 27% · 2023 27% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

43% of CUTANEOUS LYMPHOMA FOUNDATION's funders are still giving 3 years after their first grant; 37% give in more than one year at all.

first grant+1y+2y+3y+4y+5y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

CUTANEOUS LYMPHOMA FOUNDATION draws 97% of its grant income from funders outside Michigan, across 18 states in all.

IL
MI
NY
MA
OR
NV
PA
NJ
CA
MD
AZ
NC
SC
DC
LA
AL
TX
FL

In-state vs out-of-state, by year

’17
’18
’19
’20
’21
’22
’23
Michigan out of state home

Funder states come from each funder’s own filing. $253k arriving through sponsors registered in 5 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

CUTANEOUS LYMPHOMA FOUNDATION is better cushioned than half of the 7,883 health nonprofits its size.

Operating margin−29% · bottom quartile
Months of reserve9.1mo · above the median
Revenue growth (annualized)1% · below the median

this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025

Organizations like CUTANEOUS LYMPHOMA FOUNDATION

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Michigan

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

85% of spending goes to programs.

Program 85%Management 10%Fundraising 5%

Governance

11
board members
91%
independent
✓Conflict-of-interest policy✓Whistleblower policy✓Document retention✓Board reviewed the 990✓Audited financials

Public support

99%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 30 states

ME
NH
WA
MN
WI
MI
NY
MA
OR
OH
PA
NJ
CT
RI
CA
MO
KY
VA
MD
KS
AR
TN
NC
SC
OK
LA
MS
AL
GA
FL

Screen this organization

A dated, signed PDF of the compliance screen for CUTANEOUS LYMPHOMA FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

A paid feature, included from the $75 plan up. Sign in to download.

Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds CUTANEOUS LYMPHOMA FOUNDATION?
CUTANEOUS LYMPHOMA FOUNDATION (Michigan) receives grants from 30 organizations whose IRS filings report $547,758 to it, the largest being BLOOD CANCER UNITED INC ($100,000). 11 of them have funded it in more than one year.
How many funders does CUTANEOUS LYMPHOMA FOUNDATION have?
IRS filings report 30 organizations giving $547,758 in grants to CUTANEOUS LYMPHOMA FOUNDATION, 11 of which have funded it in more than one year.
Who is the largest funder of CUTANEOUS LYMPHOMA FOUNDATION?
BLOOD CANCER UNITED INC is the largest funder on record, with $100,000 in grants. The full list of funders is on this page.
How can an organization like CUTANEOUS LYMPHOMA FOUNDATION find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Michigan. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 30 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing