California · Nonprofit
CELIAC DISEASE FOUNDATION
CELIAC DISEASE FOUNDATION (California) receives grants from 93 organizations whose IRS filings report $3,275,820 to it, the largest being THE FOSTER FAMILY FOUNDATION ($915,000). 51 of them have funded it in more than one year, and 57% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $5.3M
- Funders on record
- 93
- Grants received
- $3.3M
- Net assets
- $6.8M
What Celiac Disease Foundation does
Mission
The Celiac Disease Foundation is the leading global patient advocacy organization committed to accelerating diagnosis, treatments, and a cure for celiac disease. Our mission is to improve the health and well-being of the millions of individuals around the world affected by this genetic autoimmune disease through our strategic investments in research, advocacy, and education.
As stated on its FY2025 Form 990.
Program
Researchthe Celiac Disease Foundation makes strategic investments in cutting-edge biomedical research and collaborates with researchers and clinicians to advance understanding of and treatments for celiac disease. In 2025, the foundation awarded nearly $500,000 in breakthrough grants focused on immune response to gluten and disease onset, funding projects at boston children's hospital, uc davis, colorado children's hospital, children's national hospital, and beth israel deaconess medical center. The foundation sponsored major scientific gatherings including the tampere celiac disease symposium, the columbia university celiac disease on the horizon conference, the naspghan single topic symposium, and the colorado screening symposium. In a landmark partnership, the north american society for the study of celiac disease (sscd) became the foundation's scientific advisory committee. The foundation's clinical trial recruitment platform, iqualifyceliac, surpassed 34,000 participating patients, while irecruitceliac supported 9 active trials across 9 new global partner organizations on 3 continents. The foundation also launched the first-ever celiac disease clinical trial site advisory…
$3,189,546 spentof which $355,540 as grants$2,386,650 earned by the program100% of program spending
The program described on its FY2025 Form 990. Program spending in total: $3,189,546.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $6.0M to $7.6M (+27%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 9%. Grants only. Government contracts and fees sit inside program revenue.
48% of CELIAC DISEASE FOUNDATION’s revenue is contributions — about as donation-reliant as the typical peer (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Marilyn Grunzweig Geller
CEO
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 17 funders to 40 funders, grant income rose $167k → $605k.
20 of 93 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 57% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of CELIAC DISEASE FOUNDATION’s funders (the co-funder graph). Top 30 of 93 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
CELIAC DISEASE FOUNDATION has a broad base — no single funder exceeds 28% of grant income, and it takes 4 funders to reach half.
the vertical line marks half of all grant income — 4 funders to its left
57% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund CELIAC DISEASE FOUNDATION.
Largest funder’s share by year: 2017 27% · 2018 27% · 2019 46% · 2020 28% · 2021 47% · 2022 31% · 2023 33% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
42% of CELIAC DISEASE FOUNDATION's funders are still giving 3 years after their first grant; 55% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
57% of CELIAC DISEASE FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $1.4M that is directly attributable, 67% of it comes from California funders.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $1.9M arriving through sponsors registered in 17 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
CELIAC DISEASE FOUNDATION has grown faster than three-quarters of the 5,002 health nonprofits its size.
this organization peer median middle 50% of peers· 5,002 health nonprofits $1M–$10M, FY2025
Organizations like CELIAC DISEASE FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In California
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
70% of spending goes to programs.
Governance
Public support
96%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Part of a family of 1 related entity
- Celiac Disease Foundation Impact Fund LLC · disregarded
Screen this organization
A dated, signed PDF of the compliance screen for CELIAC DISEASE FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds CELIAC DISEASE FOUNDATION?
- CELIAC DISEASE FOUNDATION (California) receives grants from 93 organizations whose IRS filings report $3,275,820 to it, the largest being THE FOSTER FAMILY FOUNDATION ($915,000). 51 of them have funded it in more than one year, and 57% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does CELIAC DISEASE FOUNDATION have?
- IRS filings report 93 organizations giving $3,275,820 in grants to CELIAC DISEASE FOUNDATION, 51 of which have funded it in more than one year.
- Who is the largest funder of CELIAC DISEASE FOUNDATION?
- THE FOSTER FAMILY FOUNDATION is the largest funder on record, with $915,000 in grants. The full list of funders is on this page.
- How can an organization like CELIAC DISEASE FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 93 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing