Pennsylvania · Nonprofit
BEYOND CELIAC
BEYOND CELIAC (Pennsylvania) receives grants from 78 organizations whose IRS filings report $6,327,699 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($924,734). 43 of them have funded it in more than one year, and 60% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $3.1M
- Funders on record
- 78
- Grants received
- $6.3M
- Net assets
- $5.5M
What Beyond Celiac does
Mission
Beyond Celiac unites with patients and partners to drive diagnosis, advance research, and accelerate the discovery of new treatments and a cure.
As stated on its FY2025 Form 990.
Programs
We support studies, based on our community's needs, that quickly translate from scientific discovery into clinical use, with the goal of advancing effective treatments. As of fy25, Beyond Celiac has awarded more than $3.2 million in grants, supporting both early-career and established investigators. The latest grants focus on non-invasive biomarkers, microbiome research, immune tolerance restoration, and neurocognitive impacts.select awards include:1. Nigel hoggard, md, and iain croall, phd (university of sheffield, uk): assessing tg6 antibodies for clinical practice.2. Mandeep singh, phd (university of sydney, aus) targeting mutant t-cells in non-responsive celiac disease.3. Michael fitzpatrick, dphil (university of oxford, uk): novel biomarkers of mucosal damage for diagnosis and monitoring.4. Rok seon choung, md, phd (mayo clinic): predictors of progressive celiac disease phenotypes.5. Sonia goncalves pereira, phd (instituto politecnico de leiria, portugal): exploring gluten-microbiota interactions in disease progress.6. Kati juuti-uusitalo, phd (tampere university, finland): development of a patient-derived 2d intestinal model.these grants address critical barriers in the…
$137,087 spentof which $137,047 as grants$423,858 earned by the program9% of program spendingThis evidence informs research priorities, supports funding applications, and ensures patient experiences shape the path toward new treatments. With up to 80% of celiac disease cases still undiagnosed or misdiagnosed, go Beyond Celiac insights plays a vital role in bridging the gap between lived experience and scientific advancement. The survey platform has enhanced outreach and increased community participation in research. Beyond Celiac also connects patients to clinical trials, accelerating enrollment and facilitating drug development. These efforts are instrumental to de-risking the therapeutic pipeline and drawing increased interest from investors, pharmaceutical companies, and biotech. Beyond Celiac leads a precompetitive coalition of multidisciplinary stakeholders involved in the development of potential therapies for celiac disease.
$1,454,082 spent91% of program spendingBeyond Celiac investments (bci) venture philanthropy program launched a catalyst program to screen for early-stage candidates with the potential for transformational efficacy in celiac disease. The inaugural proposal process identified the first investments now pending through bci.
Beyond Celiac science team members presented at major meetings, including the american academy of neurology conference and digestive disease week. Original research was published in the journal of clinical medicine and digestive diseases and sciences.additional program activities including patient, ambassador, and other programs. Reach Beyond Celiac programs through our reach Beyond Celiac initiative, we empower community leaders through the ambassador program, intern program, and other volunteer-driven engagement. Ambassadors tailor their efforts to their communities' hosting events, fostering peer-to-peer support, and raising awareness nationwide. Our interns and ambassadors collaborate with staff on local outreach, content development, survey creation, web development, and advocacy initiatives, strengthening our national presence and expanding the organization's reach and impact. Patient education and support programs Beyond Celiac provides essential educational resources to patients at all stages of their celiac journey. Our "newly diagnosed guide" offers comprehensive tools for understanding celiac disease and initiating a gluten-free diet. We also publish downloadable…
The 4 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $1,591,169.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $3.8M to $5.0M (+32%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2023 10%. Grants only. Government contracts and fees sit inside program revenue.
65% of BEYOND CELIAC’s revenue is contributions — more donation-reliant than the typical peer (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Alice Bast
Executive director
Board chair
Alan M Ehrlich Md
Chair
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 15 funders to 32 funders, grant income rose $172k → $945k.
19 of 78 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 60% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of BEYOND CELIAC’s funders (the co-funder graph). Top 30 of 78 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
BEYOND CELIAC has a broad base — no single funder exceeds 15% of grant income, and it takes 5 funders to reach half.
the vertical line marks half of all grant income — 5 funders to its left
61% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund BEYOND CELIAC.
Largest funder’s share by year: 2017 36% · 2018 28% · 2019 18% · 2020 19% · 2021 21% · 2022 16% · 2023 22% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
51% of BEYOND CELIAC's funders are still giving 3 years after their first grant; 55% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
60% of BEYOND CELIAC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $2.5M that is directly attributable, 72% of it comes from funders outside Pennsylvania, across 16 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $3.8M arriving through sponsors registered in 13 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
BEYOND CELIAC runs a healthier operating margin than half of the 5,002 health nonprofits its size.
this organization peer median middle 50% of peers· 5,002 health nonprofits $1M–$10M, FY2025
Organizations like BEYOND CELIAC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Pennsylvania
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
58% of spending goes to programs.
Governance
Public support
78%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 15 states
Screen this organization
A dated, signed PDF of the compliance screen for BEYOND CELIAC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds BEYOND CELIAC?
- BEYOND CELIAC (Pennsylvania) receives grants from 78 organizations whose IRS filings report $6,327,699 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($924,734). 43 of them have funded it in more than one year, and 60% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does BEYOND CELIAC have?
- IRS filings report 78 organizations giving $6,327,699 in grants to BEYOND CELIAC, 43 of which have funded it in more than one year.
- Who is the largest funder of BEYOND CELIAC?
- FIDELITY INVESTMENTS CHARITABLE GIFT FUND is the largest funder on record, with $924,734 in grants. The full list of funders is on this page.
- How can an organization like BEYOND CELIAC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Pennsylvania. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 78 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing