California · Nonprofit
SOLVE ME CFS INITIATIVE INC
SOLVE ME CFS INITIATIVE INC (California) receives grants from 62 organizations whose IRS filings report $6,010,946 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($1,002,200). 36 of them have funded it in more than one year, and 74% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $2.1M
- Funders on record
- 62
- Grants received
- $6.0M
- Net assets
- $959k
What Solve Me Cfs Initiative Inc does
Mission
The solve me/cfs initiative (solve m.e.) is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (me/cfs), long covid and other (continued on sch. O) post-infection diseases. Our work with the scientific, medical, and pharmaceutical communities, advocacy with government agencies, and alliances with patient groups around the world are laying the foundation for breakthroughs that can improve the lives of millions who suffer from various ''long haul'' diseases.
As stated on its FY2025 Form 990.
Programs
Advocacy and communication accomplishments: in 2025, solve m.e. Advanced national awareness and policy momentum for me/cfs and long covid through coordinated federal advocacy and community engagement. During advocacy week 2025, more than 3,500 advocate emails, calls, and texts were sent to members of congress to sustain the cdc chronic fatigue syndrome program and ensure me/cfs remained eligible under the department of defense cdmrp program. Emily taylor, monique wike, and volunteers met with over twenty congressional offices in washington, d.c., securing bipartisan support, with 11 senators joining the cdc dear colleague letter and 10 senators supporting the cdmrp request. Solve maintained a strong non-partisan strategy to keep research and program funding viable across administrations. (continued on sch. O) emily taylor co-authored a white paper proposing nih restructuring to better support infection-associated chronic conditions and collaborated on three major recover publications advancing scientific and policy understanding. Through its partnership with meaction on the go local campaign, the lived experience task force microgrant program, and educational webinars with the…
$645,399 spentof which $73,788 as grants55% of program spendingResarch accomplishments: solve's research initiatives achieved major milestones this year through new awards, partnerships, and platform development. The organization launched a $30,000 catalyst fund at yale to support dr. Akiko iwasaki's pioneering me/cfs and long covid research, and provided a $37,000 catalyst award to simmaron research for its rapamycin trial. Additional ramsay awards supported projects by dr. Dana yelin and the university college london team led by professor cambridge, ensuring continued engagement through public webinars and outreach. Solve formalized the bic/coda alliance, aligning with metrodora and care evolution to build an integrated research and data-sharing ecosystem. Following a successful press launch reaching an estimated 140 million people, solve coordinated (continued on sch. O) the irb transition to metrodora and prepared for pediatric and spanish-language expansion of the platform. The organization also entered a partnership with genetic alliance and galatea for free biobank storage and enhanced member data control through digital cabinet access. Together, these accomplishments reflect solve's deep commitment to accelerating research, fostering…
$517,700 spentof which $68,650 as grants45% of program spending
The 2 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $1,163,099.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $1.9M to $4.0M (+110%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2020 8% · 2025 1%. Grants only. Government contracts and fees sit inside program revenue.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Emily Taylor
President/CEO
Board chair
John Nicols
Chair
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 13 funders to 25 funders, grant income rose $504k → $700k.
23 of 62 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 74% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of SOLVE ME CFS INITIATIVE INC’s funders (the co-funder graph). Top 30 of 62 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
SOLVE ME CFS INITIATIVE INC has a broad base — no single funder exceeds 17% of grant income, and it takes 4 funders to reach half.
the vertical line marks half of all grant income — 4 funders to its left
75% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund SOLVE ME CFS INITIATIVE INC.
Largest funder’s share by year: 2017 38% · 2018 24% · 2019 43% · 2020 22% · 2021 28% · 2022 23% · 2023 23% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
48% of SOLVE ME CFS INITIATIVE INC's funders are still giving 3 years after their first grant; 58% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
74% of SOLVE ME CFS INITIATIVE INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $1.6M that is directly attributable, 85% of it comes from funders outside California, across 18 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $4.4M arriving through sponsors registered in 16 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Organizations like SOLVE ME CFS INITIATIVE INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In California
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
61% of spending goes to programs.
Governance
Public support
72%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 14 states
Screen this organization
A dated, signed PDF of the compliance screen for SOLVE ME CFS INITIATIVE INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds SOLVE ME CFS INITIATIVE INC?
- SOLVE ME CFS INITIATIVE INC (California) receives grants from 62 organizations whose IRS filings report $6,010,946 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($1,002,200). 36 of them have funded it in more than one year, and 74% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does SOLVE ME CFS INITIATIVE INC have?
- IRS filings report 62 organizations giving $6,010,946 in grants to SOLVE ME CFS INITIATIVE INC, 36 of which have funded it in more than one year.
- Who is the largest funder of SOLVE ME CFS INITIATIVE INC?
- DONOR ADVISED CHARITABLE GIVING INC is the largest funder on record, with $1,002,200 in grants. The full list of funders is on this page.
- How can an organization like SOLVE ME CFS INITIATIVE INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 62 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing