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· Public charity

National Scleroderma Foundation Inc

The national scleroderma foundation's mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.

$1.5M
Granted FY2024still arriving
6
Grants FY2024still arriving
5
States reached
$200k
Largest
01What you fundRead
02The needRead
03Your edgeRead
04Your fieldRead

Read this first · the figures below need context

50% of National Scleroderma Foundation Inc’s FY2025 grant dollars went to Yale University, not to grantees.

Its money now reaches organizations through that sponsor, which does not report who recommended each grant. FY2025 names 3 organizations directly, so a portfolio cannot be read from it. Everything below is therefore FY2024, the last year National Scleroderma Foundation Inc named its own grantees at scale: 5 organizations, $1M. It is dated, not current.

Organizations named directly on the return

8
’17
7
’18
6
’19
8
’20
7
’21
11
’22
7
’23
5
’24
3
’25

Amber years are those where most dollars went to a sponsor.

01What you fund
01100% classified

What you funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year — across FY2017–2025.

Health$5.4MScience & Tech$4.5MEducation$2.3MRecreation & Sports$300k
02FY2024 · 6 grants

Where the money goes

Your grants by size, and where they go.

The 6 grants below total $1,200,000 — the rows itemised in this filing. The $1,453,529 headline is the total grant expense reported on the return, so the remaining $253,529 is giving the schedule does not break out: grants under the $5,000 itemisation floor, grants to individuals, and grants reported on other schedules. Every figure below describes the itemised rows only.

$200,000
Median grant
5
States reached
$11M
Total assets
Largest grants
RecipientAmount
KAO AUTOIMMUNITY INSTITUTE CEDARS-SINAI MEDICAL CENTER$200,000
VIRGINIA COMMONWEALTH UNIVERSITY$200,000
CASE WESTERN RESERVE UNIVERSITY$200,000
THE REGENTS OF THE UNIVERSITY OF MICHIGAN$200,000
THE REGENTS OF THE UNIVERSITY OF MICHIGAN$200,000
THE UNIVERSITY OF TEXAS AT EL PASO$200,000
02The need
03

Do your dollars go where the need is?

Each grant placed by the hardship in its grantee’s ZIP, then read against the area’s typical level.

show:

Dollar for dollar, your grants (FY17–25) land where the poverty rate runs at 14%, against an area that typically sits at 11%. 85% of your dollars go to grantees based in above-average-need neighborhoods. Most of your grants land in higher-need ZIPs.

area typical 11%INTERNATIONAL WORKSHOP ON SCLERODERMA RESEARCH CORPORATION: $25k → 8%FNIH BIOMARKERS CONSORTIUM PROJECT: $200k → 10%BRIGHAM AND WOMEN'S HOSPITAL: $150k → 16%UNIVERSITY OF PITTSBURGH: $150k → 11%DREXEL UNIVERSITY: $100k → 22%UNIVERSITY OF CALIFORNIA SAN DIEGO: $150k → 11%KAO AUTOIMMUNITY INSTITUTE CEDARS-SINAI MEDICAL CENTER: $200k → 14%ROCHESTER INSTITUTE OF TECHNOLOGY: $200k → 14%HOSPITAL FOR SPECIAL SURGERY: $150k → 17%THE UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT HOUSTON: $150k → 16%THE MEDICAL UNIVERSITY OF SOUTH CAROLINA (GRANT 2): $150k → 12%REGENTS OF UNIVERSITY OF MICHIGAN: $150k → 14%UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE: $200k → 16%UNIVERSITY OF UTAH: $150k → 8%CASE WESTERN RESERVE UNIVERSITY: $200k → 17%BENAROYA RESEARCH INSTITUTE AT VIRGINIA MASON: $200k → 9%NORTHWESTERN UNIVERSITY: $150k → 14%VIRGINIA COMMONWEALTH UNIVERSITY: $150k → 22%LOUISIANA STATE UNIVERSITY HEALTH SCIENCES CENTER: $150k → 23%JOHN HOPKINS UNIVERSITY SCHOOL OF MEDICINE: $150k → 19%TRUSTEES OF DARTMOUTH COLLEGE: $200k → 10%TRUSTEES OF BOSTON UNIVERSITY BUMC: $150k → 16%UNIVERSITY OF PITTSBURGH: $150k → 11%THOMAS JEFFERSON UNIVERSITY: $123k → 22%UNIVERSITY OF ROCHESTER: $150k → 14%HOSPITAL FOR SPECIAL SURGERY: $150k → 17%THE MEDICAL UNIVERSITY OF SOUTH CAROLINA (GRANT 1): $150k → 12%REGENTS OF THE UNIVERSITY OF MICHIGAN PROJECT REPRESENTATIVE (GRANT 2): $150k → 14%NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINE: $150k → 14%VIRGINIA COMMONWEALTH UNIVERSITY: $200k → 22%JOHNS HOPKINS UNIVERSITY: $150k → 19%TRUSTEES OF DARTMOUTH COLLEGE: $150k → 10%TRUSTEES OF BOSTON UNIVERSITY BUMC: $150k → 16%UNIVERSITY OF PITTSBURGH: $150k → 11%HOSPITAL FOR SPECIAL SURGERY: $150k → 17%MEDICAL UNIVERSITY OF SOUTH CAROLINA: $200k → 12%REGENTS OF THE UNIVERSITY OF MICHIGAN PROJECT REPRESENTATIVE (GRANT 1): $150k → 14%NORTHWESTERN UNIVERSITY: $150k → 14%BALTIMORE RESEARCH AND EDUCATION FOUNDATION: $150k → 19%TUFTS UNIVERSITY: $150k → 16%UNIVERSITY OF PITTSBURGH: $150k → 11%MEDICAL UNIVERSITY OF SOUTH CAROLINA: $200k → 12%ANN & ROBERT H CHILDREN'S HOSPITAL OF CHICAGO: $150k → 14%MASSACHUSETTS GENERAL HOSPITAL: $150k → 16%MEDICAL UNIVERSITY OF SOUTH CAROLINA: $150k → 12%MASSACHUSETTS GENERAL HOSPITAL: $150k → 16%MEDICAL UNIVERSITY OF SOUTH CAROLINA: $150k → 12%0%20%40%50%more need →
grant to an above-average-need area below average· circle size = grant amount

Matched: human-services grants are those whose grantee’s IRS cause code is Human Services. Placed by people below the poverty linein the grantee’s ZIP, averaged from the tracts in that ZIP; grantee ZIP can differ from where services are delivered.

Which US states your grants reach

NH
WA
MN
IL
MI
NY
MA
OH
PA
CT
CA
UT
VA
MD
NM
KS
SC
LA
TX

US grants placed by each grantee’s ZIP, which can differ from where services are actually delivered. Need from public data — U.S. Census/ACS, CDC PLACES, Eviction Lab, USDA — shown as context about the area, never attributed to your giving.

03Your edge
repeat funding

Who you back again

Which organizations you funded more than once, and which you funded a single time. Each grantee is matched to its own filings.

53%of every dollar goes to organizations you’ve funded before.
$6.3M · 8 repeat orgs$5.5M to everyone else

And the relationships you keep tend to grow: grantees you re-up on have seen median revenue of +45% since the first grant, against +22% for the ones you funded once.

8 repeat relationships — 1 still active in FY2024, 7 since wound down; 5 grantees were first funded in FY2024 (too recent to call). Read against FY2024, the last year this funder named its own grantees directly; its giving has since run through a sponsor, which reports no donor behind each grant.

How the two cohorts compare

Re-uppedFunded once

Organizations

8
28

Total granted

$6.3M
$4.5M

Median revenue growth · since first grant

+45%
+22%

Still filing today

75%
61%

New vs renewed · share of each year

In FY2025, 67% of grant dollars renewed an existing relationship; $200k went to new ones.

50%100%’17’18’19’20’21’22’23’24’25
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’17’18’19’20’21’22’23’24’25
HealthEducationRecreation & SportsOther

First-time = a grantee’s first year in your filing window; renewed = funded in an earlier year too. As a portfolio matures the renewed share naturally climbs — once funded, an org stays “renewable” — so the signal is the years that buck it (a new-grantee intake wave). The earliest year is left-censored: relationships that predate the data read as “new.” Theme is the grantee’s IRS cause.

Backed again, and grew

  • TRUSTEES OF BOSTON UNIVERSITY
    6× · 2017–2023 · $1.6M · revenue +45%
  • UNIVERSITY OF PITTSBURGH
    4× · 2019–2022 · $1.1M · revenue +28%
  • JOHNS HOPKINS UNIVERSITY
    4× · 2017–2025 · $700k · revenue +64%

Funded once

  • UO
    UNIVERSITY OF MINNESOTA
    one grant, 2023 · $200k
  • Rochester Institute of Technology
    one grant, 2022 · $200k · revenue +10%
  • Foundation for the National Institutes of Health Incgraduated
    one grant, 2023 · $200k · revenue +29%

Repeat = funded in two or more distinct years; growth and survival are read from each grantee’s own subsequent IRS filings.

04Your field

The map has a center of gravity: the average direction from the rest of the sector toward the organizations the foundation funds — the shape of its giving. Scoring every nonprofit along that direction surfaces the ones that look most like the portfolio. These are the closest matchesthat aren’t grantees — a resemblance in what they say they do, not a recommendation.

1
Rush University Medical Center

The mission of Rush is to improve the health of the individuals and diverse communities we serve through the integration of outstanding patient care, education, research and community partnerships.

Health
2
Thomas Jefferson University

Thomas jefferson university ("tju") is a comprehensive university with preeminence in transdisciplinary, experiential professional education, research and discovery, delivering exceptional value for the 21st century students with…

Education
3
New York University

Nyu is a private university with approximately 60,000 matriculating students in 20 schools and institutes. nyu's primary missions are education, research and scholarship, and patient care.

Education
4
Fred Hutchinson Cancer Center

Fred hutch cancer center ("fred hutch") unites innovative research and compassionate care to prevent and eliminate cancer and infectious disease. continued on schedule o

Health
5
University of Miami

See Form 990, Part I, Line 1, Description of Organization Mission.

Education
6
Trustees of the University of Pennsylvania

The trustees of the university of pennsylvania (the "university") sees itself as having a public service mission. in such regard, the university aims to provide a rich and diverse educational environment for its students; to pioneer…

Education
7
The Johns Hopkins Hospital

For more than 125 years, the mission of the johns hopkins hospital has been to lead the world in the diagnosis and treatment of disease and to train tomorrow's great physicians, nurses and scientists. above all, we aim to provide the…

Health
8
University of Minnesota Physicians

University of minnesota physicians serves as the integrated group practice for the university of minnesota medical school full-time faculty to provide the highest quality healthcare to patients and their families.university of minnesota…

Health
9
Mass General Brigham Incorporated & Affiliates Group Return

Mass general brigham incorporated is developing an integrated health care delivery system throughout the region that offers patients a continuum of coordinated, high-quality care.

Health
10
Albany College of Pharmacy and Health Sciences

We educate the next generation of leaders to improve the health of our society.

Education
11
William Marsh Rice University

As a leading research university with a distinctive commitment to undergraduate education, Rice University aspires to path breaking research, unsurpassed teaching, and contributions to the betterment of our world. It seeks to fulfill this…

Education
12
University of Southern California

The central mission of the university of southern california is the development of human beings and society as a whole through the cultivation and enrichment of the human mind and spirit. the principal means by which our mission is…

Education

For reference, the grantee most central to the portfolio’s shape is Trustees of Tufts College and the most unlike its peers is International Workshop On Scleroderma Research Corporation. Resemblance is measured on each organization’s own IRS 990 mission text; it reflects how work is described, not its quality or impact.

For each theme you fund, this compares how the sector’s money is shifting with how your own giving is shifting.

← shrinkinggrowing →↓ leaning in → pulling backsteadyCancer Support ServicesCommunity FoundationsCommunity College Foundatio…Health Access Advocacy and …Faith-Based Liberal Arts Co…
the sector your giving your giving is ahead of the sector the sector’s ahead of you· dot size = how much the theme matters to each side
Ordered by the change in your giving — leaning in on top, pulling back at the bottom. The bar between the two dots is how out of step you are with the sector. Hover any row for detail.

Sector change and giving change are each shown relative to their own range, growing (right) or shrinking (left); both normalized, so inflation isn’t mistaken for growth.

Your grantees are a median of 62 years old; the field is 16. You back the established end — and your money leans older still.

THE FIELDby orgYOUR GRANTEESby number22%3%<5yr14%6%5–10yr19%9%10–20yr16%18%20–35yr13%12%35–55yr16%52%55yr+
THE FIELDby orgYOUR MONEYby value22%5%<5yr14%11%5–10yr19%4%10–20yr16%12%20–35yr13%6%35–55yr16%62%55yr+

The field is 22% startups (under 5 years old) — 3% of your grantees by number, and just 5% of your money.

Closures · last 5 years

The orgs you fund almost never close — 2% lost their exemption, against 13% of the field you don’t fund.

orgs you fund
2%1/43
the rest of the field
13%
240,396/1,819,522

Age = years since IRS exemption (a founding proxy). “Closed” = auto-revocation for 3 years of non-filing — a floor on closure, not proof, and bigger established orgs lapse least. Association, not causation.

04the grantee network

28 grantees tracked through their own filings, 2017–2025.

Each one resolved to its own IRS returns and tracked year by year — your grant beside their revenue from every source. Association, dated; never a causal claim.

Counted here: distinct organizations you funded across 2017–2025, not grant rows in a single year — so this will not match the grant count on the cover. 28 of the 43 grantees resolved in that span have returns of their own we could reconcile; the rest are funded organizations whose filings we could not track year by year.

0
Load-bearing (≥25% of a budget)
1
Early backer (in before they grew)
27/28
Grantees still filing
23/28
Grew since you first funded

Where your money sits — by cause, then by grantee

TRUSTEES OF BOSTON UNIVERSITY — $1,550,000 · OtherTRUSTEES OF BOSTON UNIVERSITYREGENTS OF THE UNIVERSITY OF MICHIGAN — $1,249,998 · OtherREGENTS OF THE UNIVERSITY OF MICHIGANPHI CHI MEDICAL FRATERNITY INC — $500,000 · OtherPHI CHI MEDICAL FRATERNITY INCUNIVERSITY OF MINNESOTA — $200,000 · OtherUNIVERSITY OF TEXAS AT EL PASO — $200,000 · OtherUVA CANCER CENTERUVA HEALTH SYSTEM — $200,000 · OtherWeill Medical College of Cornell Univers — $200,000 · OtherUNIVERSITY OF NEW MEXICO — $200,000 · OtherUNIVERSITY OF WASHINGTON — $199,998 · Other+7 more — $1,050,000 · Other+7 moreUNIVERSITY OF PITTSBURGH — $1,050,000 · EducationUNIVERSITY OF PITTSBURGHJOHNS HOPKINS UNIVERSITY — $699,998 · EducationJOHNS HOPKINS UNIVERSITYYale University — $399,996 · EducationYale UniversityTrustees of Dartmouth College — $349,998 · EducationTrustees of Dartmouth CollegeRochester Institute of Technology — $200,000 · EducationRochester Institute of Technolo…THE UNIVERSITY OF TOLEDO FOUNDATION — $200,000 · EducationTHE UNIVERSITY OF TOLEDO FOUNDA…CASE WESTERN RESERVE UNIVERSITY — $200,000 · EducationCASE WESTERN RESERVE UNIVERSITYTrustees of Tufts College — $150,000 · EducationUNIVERSITY OF ROCHESTER — $150,000 · Education+1 more — $100,000 · EducationMEDICAL UNIVERSITY OF SOUTH CAROLINA FOUNDATION — $500,000 · HealthMEDICAL UNIVERSITY OF SOUTH…NEW YORK SOCIETY FOR THE RELIEF OF THE RUPTURED AND CRIPPLED MAINTAINING THE — $300,000 · HealthNEW YORK SOCIETY FOR THE RE…CEDARS-SINAI MEDICAL CENTER — $200,000 · HealthCEDARS-SINAI MEDICAL CENTERFoundation for the National Institutes of Health Inc — $200,000 · HealthFoundation for the National…HMH HOSPITALS CORPORATION — $200,000 · HealthHMH HOSPITALS CORPORATIONBENAROYA RESEARCH INSTITUTE AT VIRGINIA — $200,000 · HealthBENAROYA RESEARCH INSTITUTE…UNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE — $200,000 · HealthUNIVERSITY OF KANSAS MEDICA…Children's Hospital Corporation — $200,000 · HealthChildren's Hospital Corpora…Ann & Robert H Lurie Children's Hospital of Chicago — $150,000 · HealthThe Hospital for Special Surgery Fund Inc — $150,000 · HealthLSU HEALTH FOUNDATION NEW ORLEANS — $150,000 · HealthUPMC — $150,000 · HealthTHE CLEVELAND CLINIC FOUNDATION — $150,000 · HealthBALTIMORE RESEARCH & EDUCATION FOUNDATION INC — $150,000 · HealthTHOMAS JEFFERSON UNIVERSITY HOSPITALS INC — $122,909 · Health+1 more — $25,000 · HealthNorthwestern University — $450,000 · Recreation & Sports
Other$5,549,996Education$3,499,992Health$3,047,909Recreation & Sports$450,000

Each org by its size and your share of it — top-left is where you’re load-bearing

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ your share of their budgetTRUSTEES OF BOSTON UNIVERSITY — $1,550,000 over 6y, 0.0% of budgetUNIVERSITY OF PITTSBURGH — $1,050,000 over 4y, 0.0% of budgetJOHNS HOPKINS UNIVERSITY — $699,998 over 4y, 0.0% of budgetMEDICAL UNIVERSITY OF SOUTH CAROLINA FOUNDATION — $500,000 over 3y, 0.2% of budgetNorthwestern University — $450,000 over 3y, 0.0% of budgetYale University — $399,996 over 1y, 0.0% of budgetTrustees of Dartmouth College — $349,998 over 2y, 0.0% of budgetNEW YORK SOCIETY FOR THE RELIEF OF THE RUPTURED AND CRIPPLED MAINTAINING THE — $300,000 over 2y, 0.0% of budgetCEDARS-SINAI MEDICAL CENTER — $200,000 over 1y, 0.0% of budgetRochester Institute of Technology — $200,000 over 1y, 0.0% of budgetFoundation for the National Institutes of Health Inc — $200,000 over 1y, 0.3% of budgetTHE UNIVERSITY OF TOLEDO FOUNDATION — $200,000 over 1y, 0.7% of budgetCASE WESTERN RESERVE UNIVERSITY — $200,000 over 1y, 0.0% of budgetBENAROYA RESEARCH INSTITUTE AT VIRGINIA — $200,000 over 1y, 0.2% of budgetUNIVERSITY OF KANSAS MEDICAL CENTER RESEARCH INSTITUTE — $200,000 over 1y, 0.1% of budgetChildren's Hospital Corporation — $200,000 over 1y, 0.0% of budgetTrustees of Tufts College — $150,000 over 1y, 0.0% of budgetAnn & Robert H Lurie Children's Hospital of Chicago — $150,000 over 1y, 0.0% of budgetThe Hospital for Special Surgery Fund Inc — $150,000 over 1y, 0.7% of budgetLSU HEALTH FOUNDATION NEW ORLEANS — $150,000 over 1y, 1.0% of budgetUPMC — $150,000 over 1y, 0.0% of budgetUNIVERSITY OF ROCHESTER — $150,000 over 1y, 0.0% of budgetTHE CLEVELAND CLINIC FOUNDATION — $150,000 over 1y, 0.0% of budgetBALTIMORE RESEARCH & EDUCATION FOUNDATION INC — $150,000 over 1y, 6.7% of budgetTHOMAS JEFFERSON UNIVERSITY HOSPITALS INC — $122,909 over 1y, 0.0% of budgetDREXEL UNIVERSITY — $100,000 over 1y, 0.0% of budgetINTERNATIONAL WORKSHOP ON SCLERODERMA RESEARCH CORPORATION — $25,000 over 1y, 7.3% of budget
Go grantee by grantee — a decade per org, and how each moved after you funded them

A decade per grantee — revenue shaded, your grants as bars, all rows on one timeline.

The grantmakers whose grantees overlap with yours far more than size alone predicts. Each orbits closer the stronger the alignment; the arcs between them show where they also fund each other. Here it reads as a tightly interlocked camp — most of these funders back each other's grantees too.

Johns Hopkins Univers…Fidelity Investments …
Johns Hopkins UniversityMD13.2× affinity4 shared granteesties to 1 of 1Hover any node to trace its alignments.Compare side by side →

Open a dossier: Johns Hopkins University · Fidelity Investments Charitable Gift Fund

Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. A research starting point: overlap is association, not proof of shared intent.

Government reliance of your grantees

Every dot is one organization National Scleroderma Foundation Inc funds. Left–right is the share of its income from government; up–down is the share from you. Bigger dots raise more. Filter to federal, a single department, or state — and drag the year to watch it move.

2024
’20’21’22’23’24’25
no gov · 10%1%3%6%10%your share of their income ↑0%25%50%75%100%share of the org’s income from government →median 12%
  • Trustees of Tufts College — 13% of income from government
  • Trustees of Boston University — 12% of income from government
  • Johns Hopkins University — 12% of income from government
  • Yale University — 12% of income from government
  • Children's Hospital Corporation — 10% of income from government
no gov moneyreceives it· size = income
1get no government money at all
5report government grants on their 990 we could not trace to a source (not plotted)
0rely on government for over half their income
typical government reliance, FY20–25

Government income is each org’s traced federal awards (USASpending — grants and contracts) plus state payments (open checkbooks) as a share of its total revenue (IRS Form 990); the self-reported government-grant line (990 line 1e) is carried for cross-check: a grantee that reports government grants we could not trace to a source is left off the chart rather than shown as receiving none. An association, not a claim that your grant caused the public funding. Coverage is precision-first — a floor, not a census; state records exist for 9 states, so a grantee outside them shows no state figure (dimmed) rather than a false zero. Federal award amounts are obligations, which can span years, so a single-year share is indicative. 990 filings lag 12–24 months.

On method. Every financial figure here is read directly from IRS e-file XML — your own 990/990-PF and the multi-year returns of the 43 grantees we resolved across every year we hold, several hundred filings in all (a different count from the grant rows on the cover, which are one fiscal year)— each linked to its source. Grantee achievements and outcomes are each organization’s own program-service reporting (Form 990, Part III); we read these as association with sustained funding — the foundation is one of several forces — suppress low-confidence name matches rather than guess, and say so where a figure rests on a single grant or filing. Not everything on this page is a filed figure, and the difference matters. Filed is what you reported on your return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears. How we build these →

Generated from your IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12–24 months behind; figures are dated accordingly.

Source object · view filing

More from the funding graph

The unnamed billions
grants reported with no recipient in the public record
The regranting layer
51% of grant dollars land in the regranting layer
The DAF merry-go-round
$9.7B circulates between donor-advised funds
The camps
funders cluster by geography, not ideology
By state
where grant money is based, and what stays home
State money flows
the interactive map of money crossing state lines