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Massachusetts · Public charity

National Scleroderma Foundation Inc

The national scleroderma foundation's mission is to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks.

$1.5M
Granted FY2024(still arriving)
6
Itemized grants FY2024
7
Organizations funded FY2023
71%
First-time grantees FY2023
Read the full brief

Read this first · the figures below need context

50% of National Scleroderma Foundation Inc’s FY2025 grant dollars went to Yale University, not to grantees.

Its money now reaches organizations through that sponsor, which does not report who recommended each grant. FY2025 names 3 organizations directly, so a portfolio cannot be read from it. Everything below is therefore FY2024, the last year National Scleroderma Foundation Inc named its own grantees at scale: 5 organizations, $1M. It is dated, not current.

Organizations named directly on the return

8
’17
7
’18
6
’19
8
’20
7
’21
11
’22
7
’23
5
’24
3
’25

Amber years are those where most dollars went to a sponsor.

Itemized, FY2024
$1.2M
The rest is grants the schedule does not break out
Median grant, FY2024
$200,000
Largest grant, FY2024
$200,000
Organizations funded a year
6 to 11
FY2017 to FY2023
States reached, FY2024
5
Total assets, FY2024
$11M

How open it is to new grantees

In FY2023, 71% of the organizations National Scleroderma Foundation Inc funded were first-time grantees, receiving 63% of its grant dollars.

New vs renewed · share of each year

In FY2023, 38% of grant dollars renewed an existing relationship; $1.0M went to new ones.

50%100%’18’19’20’21’22’23
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’18’19’20’21’22’23
HealthEducationOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY2024still arriving5$1.2M80%
FY20237$1.6M71%
FY202211$2.4M55%
FY20217$1.1M57%
FY20208$1.2M50%
FY20196$1.0M83%
FY20187$1.2M57%
FY20178$1.5Mn/a
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2025.

Health$5.4MScience & Tech$4.5MEducation$2.3MRecreation & Sports$300k

Where its grants go

Grant dollars by states, across the years we hold.

Which US states its grants reach

NH
WA
MN
IL
MI
NY
MA
OH
PA
CT
CA
UT
VA
MD
NM
KS
SC
LA
TX

Top grantees

Largest recipients by total granted, FY2017 to FY2025, and the share of each one’s budget the grants supplied at peak.

GranteeTotal grantedYearsShare of their budget
Trustees of Boston University$1,550,00060%
Regents of the University of Michigan$1,249,9985n/a
University of Pittsburgh$1,050,00040%
Johns Hopkins University$699,99840%
Medical University of South Carolina Foundation$500,00030%
Phi Chi Medical Fraternity Inc$500,0002n/a
Northwestern University$450,00030%
New York Society for the Relief of the Ruptured and Crippled Maintaining The$300,00020%
University of Texas at El Paso$200,0001n/a
Rochester Institute of Technology$200,00010%
Show all 41 grantees
All grantees of National Scleroderma Foundation Inc by total granted
GranteeTotal grantedYearsShare of their budget
Trustees of Boston University$1,550,00060%
Regents of the University of Michigan$1,249,9985n/a
University of Pittsburgh$1,050,00040%
Johns Hopkins University$699,99840%
Medical University of South Carolina Foundation$500,00030%
Phi Chi Medical Fraternity Inc$500,0002n/a
Northwestern University$450,00030%
New York Society for the Relief of the Ruptured and Crippled Maintaining The$300,00020%
University of Texas at El Paso$200,0001n/a
Rochester Institute of Technology$200,00010%
University of Kansas Medical Center Research Institute$200,00010%
University of New Mexico$200,0001n/a
Hmh Hospitals Corporation$200,0001n/a
Foundation for the National Institutes of Health Inc$200,00010%
The University of Toledo Foundation$200,00011%
Case Western Reserve University$200,00010%
Children's Hospital Corporation$200,00010%
Benaroya Research Institute at Virginia$200,00010%
Weill Medical College of Cornell Univers$200,0001n/a
University of Minnesota$200,0001n/a
Cedars-Sinai Medical Center$200,00010%
Uva Cancer Centeruva Health System$200,0001n/a
University of Washington$199,9981n/a
Ann & Robert H Lurie Children's Hospital of Chicago$150,00010%
University of Utah$150,0001n/a
University of Texas Health Science Center Houston$150,0001n/a
Baltimore Research & Education Foundation Inc$150,00017%
Mass General Brigham Incorporated$150,0001n/a
Mass General Brigham Incorporated$150,0001n/a
University of Rochester$150,00010%
Trustees of Tufts College$150,00010%
Vcuvcu Health Campus$150,0001n/a
Lsu Health Foundation New Orleans$150,00011%
The Hospital for Special Surgery Fund Inc$150,00011%
Mass General Brigham Incorporated$150,0001n/a
Upmc$150,00010%
Regents of the University of California at San Diego$150,0001n/a
The Cleveland Clinic Foundation$150,00010%
Thomas Jefferson University Hospitals Inc$122,90910%
Drexel University$100,00010%
International Workshop on Scleroderma Research Corporation$25,00017%

Where it is load-bearing

Each grantee by its size and the share of its budget National Scleroderma Foundation Inc supplied at peak.

25%50%75%100%$1.0M$10M$100Mgrantee revenue →↑ funder's share of their budgetTrustees of Boston University: $1,550,000 over 6y, 0.0% of budgetUniversity of Pittsburgh: $1,050,000 over 4y, 0.0% of budgetJohns Hopkins University: $699,998 over 4y, 0.0% of budgetMedical University of South Carolina Foundation: $500,000 over 3y, 0.2% of budgetNorthwestern University: $450,000 over 3y, 0.0% of budgetNew York Society for the Relief of the Ruptured and Crippled Maintaining The: $300,000 over 2y, 0.0% of budgetRochester Institute of Technology: $200,000 over 1y, 0.0% of budgetUniversity of Kansas Medical Center Research Institute: $200,000 over 1y, 0.1% of budgetFoundation for the National Institutes of Health Inc: $200,000 over 1y, 0.3% of budgetThe University of Toledo Foundation: $200,000 over 1y, 0.7% of budgetCase Western Reserve University: $200,000 over 1y, 0.0% of budgetChildren's Hospital Corporation: $200,000 over 1y, 0.0% of budgetBenaroya Research Institute at Virginia: $200,000 over 1y, 0.2% of budgetCedars-Sinai Medical Center: $200,000 over 1y, 0.0% of budgetAnn & Robert H Lurie Children's Hospital of Chicago: $150,000 over 1y, 0.0% of budgetBaltimore Research & Education Foundation Inc: $150,000 over 1y, 6.7% of budgetUniversity of Rochester: $150,000 over 1y, 0.0% of budgetTrustees of Tufts College: $150,000 over 1y, 0.0% of budgetLsu Health Foundation New Orleans: $150,000 over 1y, 1.0% of budgetThe Hospital for Special Surgery Fund Inc: $150,000 over 1y, 0.7% of budgetUpmc: $150,000 over 1y, 0.0% of budgetThe Cleveland Clinic Foundation: $150,000 over 1y, 0.0% of budgetThomas Jefferson University Hospitals Inc: $122,909 over 1y, 0.0% of budgetDrexel University: $100,000 over 1y, 0.0% of budgetInternational Workshop on Scleroderma Research Corporation: $25,000 over 1y, 7.3% of budget

Tap a dot to name the grantee.

How this is measured
Share of budget is the funder’s grant in a year over the grantee’s total revenue that year, at its highest across the years we hold; revenue is from all sources. Only grantees confirmed against their own filings, whose grants do not exceed their revenue, are plotted: the largest 25.

Nonprofits that may fit its grantmaking

Co-funders

Grantmakers whose grantees overlap with this funder’s far more than size alone predicts. Closer means stronger alignment; arcs show where they also fund each other. Here they form a tightly interlocked group: most of these funders back each other's grantees too.

Johns Hopkins UniversityMD13.2× affinity4 shared granteesties to 1 of 1Hover any node to trace its alignments.Compare side by side →

Open a dossier: Johns Hopkins University · Fidelity Investments Charitable Gift Fund

How this is measured
Affinity is a Gamma-Poisson posterior co-funding rate, re-centered on the typical rate, so thin evidence shrinks toward no signal. Overlap is association, not proof of shared intent.

Compare National Scleroderma Foundation Inc with peer funders

About National Scleroderma Foundation Inc

How much does National Scleroderma Foundation Inc give?
National Scleroderma Foundation Inc reported 6 itemized grants totaling $1,200,000, out of $1,453,529 in total grant expense reported on the return in its FY2024 IRS filing. It funded between 6 and 11 organizations a year over FY2017 to FY2023.
What does National Scleroderma Foundation Inc fund?
By grant dollars over FY2017 to FY2025, its largest causes are Health (43%), Science & Tech (36%), Education (18%).
Who are National Scleroderma Foundation Inc's largest grantees?
By total granted over FY2017 to FY2025: Trustees of Boston University ($1.6M), Regents of the University of Michigan ($1.2M), University of Pittsburgh ($1.1M).
Does National Scleroderma Foundation Inc fund new organizations?
In FY2023, 71% of the organizations it funded were first-time grantees.
Which funders back the same organizations as National Scleroderma Foundation Inc?
Its strongest co-funders, measured against what their size predicts, include Johns Hopkins University, Fidelity Investments Charitable Gift Fund.
Where is National Scleroderma Foundation Inc based?
National Scleroderma Foundation Inc is based in MA.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 43 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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