Massachusetts · Nonprofit
NATIONAL BRAIN TUMOR SOCIETY INC
NATIONAL BRAIN TUMOR SOCIETY INC (Massachusetts) receives grants from 418 organizations whose IRS filings report $21,945,942 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($7,388,944). 189 of them have funded it in more than one year, and 54% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $13M
- Funders on record
- 418
- Grants received
- $22M
- Net assets
- $16M
What National Brain Tumor Society Inc does
Mission
National brain tumor society unrelentingly invests in, mobilizes, andunites our community to discover a cure, deliver effective treatments,and advocate for patients and care partners.
As stated on its FY2024 Form 990.
Programs
Our defeat strategy drives and influences best-in-class medical research to develop and deliver new innovative treatments and potential cures to patients with brain tumors as quickly as possible. Patients and caregivers are our priority. We focus on groundbreaking research initiatives with the potential to translate promising science from the lab into treatments that improve survival and quality of life. We're accelerating breakthroughs that will have a profound impact on the brain tumor community. Our research initiatives advance treatments for patients of all ages across brain tumor types. We incentivize and facilitate collaboration between pharmaceutical companies, investors, and world-class scientists to get results for patients.
$5,541,233 spentof which $2,502,000 as grants49% of program spendingOur connect strategy convenes, educates, and unites the brain tumor community. We bring stakeholders together, to address barriers to the development of new treatments and better health care. Nbts leads several national awareness campaigns to educate the public about brain tumors and the importance of reducing the burden of them. We equip patients and care partners with tools and resources to navigate every step of their unique health care journeyfrom understanding their diagnosis and building their medical team to making decisions about treatment. We organize events that bring the brain tumor community together to honor, learn, develop meaningful relationships, turn grief into action, and fuel momentum for our cause. Our support groups foster connections showing patients and care partners that they are not alone.
$3,966,378 spent35% of program spendingOur change strategy fuels the voice of the brain tumor community to advocate public policy. We ensure the community's needs are reflected in national medical research and health care policy. Together, we advocate for the federal government to make strategic investments in brain tumor research, improve health care delivery, reduce health disparities, and raise the priority level for our community's needs. Over 18,000 volunteer advocates across all 50 states affect change at all levels annually. We mobilize our community on policy issues to urge government officials to enact policies that support our vision of conquering and curing brain tumorsonce and for all. Through our advocacy, we affect the lives of nearly one million americans living with a brain tumor today, and those who will be diagnosed.
$1,807,596 spent16% of program spending
The 3 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $11,315,207.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2018 to 2019, from $4.0M to $7.8M (+96%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 13% · 2022 5%. Grants only. Government contracts and fees sit inside program revenue.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
David Arons
CEO
Board chair
Leah Recht Jd
Chair
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 81 funders to 118 funders, grant income rose $778k → $3.4M.
32 of 418 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 54% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of NATIONAL BRAIN TUMOR SOCIETY INC’s funders (the co-funder graph). Top 30 of 418 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
NATIONAL BRAIN TUMOR SOCIETY INC has a broad base — no single funder exceeds 34% of grant income, and it takes 4 funders to reach half.
the vertical line marks half of all grant income — 4 funders to its left
73% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund NATIONAL BRAIN TUMOR SOCIETY INC.
Largest funder’s share by year: 2017 13% · 2018 16% · 2019 54% · 2020 19% · 2021 15% · 2022 40% · 2023 44% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
26% of NATIONAL BRAIN TUMOR SOCIETY INC's funders are still giving 3 years after their first grant; 45% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
54% of NATIONAL BRAIN TUMOR SOCIETY INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $10M that is directly attributable, 87% of it comes from funders outside Massachusetts, across 38 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $12M arriving through sponsors registered in 16 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Government funding NATIONAL BRAIN TUMOR SOCIETY INC receives
Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $182 on record.
- REFUNDS - GENERAL $182
Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.
Organizations like NATIONAL BRAIN TUMOR SOCIETY INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Massachusetts
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
83% of spending goes to programs.
Governance
Public support
95%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 2 states
Part of a family of 4 related entities
- Brain Tumor Investment Fund LLC · disregarded
- Nbts Tdg LLC · disregarded
- Cure Gbm · disregarded
- Pediatric Cancer Cure LLC · disregarded
Screen this organization
A dated, signed PDF of the compliance screen for NATIONAL BRAIN TUMOR SOCIETY INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds NATIONAL BRAIN TUMOR SOCIETY INC?
- NATIONAL BRAIN TUMOR SOCIETY INC (Massachusetts) receives grants from 418 organizations whose IRS filings report $21,945,942 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($7,388,944). 189 of them have funded it in more than one year, and 54% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does NATIONAL BRAIN TUMOR SOCIETY INC have?
- IRS filings report 418 organizations giving $21,945,942 in grants to NATIONAL BRAIN TUMOR SOCIETY INC, 189 of which have funded it in more than one year.
- Who is the largest funder of NATIONAL BRAIN TUMOR SOCIETY INC?
- FIDELITY INVESTMENTS CHARITABLE GIFT FUND is the largest funder on record, with $7,388,944 in grants. The full list of funders is on this page.
- How can an organization like NATIONAL BRAIN TUMOR SOCIETY INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Massachusetts. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 418 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing