California · Nonprofit
THE SCLERODERMA FOUNDATION OF CALIFORNIA
THE SCLERODERMA FOUNDATION OF CALIFORNIA (California) receives grants from 17 organizations whose IRS filings report $444,493 to it, the largest being FRONTSTREAM GLOBAL FUND ($132,162). 8 of them have funded it in more than one year, and 90% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $945k
- Funders on record
- 17
- Grants received
- $444k
- Net assets
- $785k
What The Scleroderma Foundation of California does
Mission
Empowering the scleroderma community to live better lives through programs committed to support, education, and research.pillars of our mission: support: inspiring our community through patient support services and resources for patients including 26 volunteer driven local community & peer led support groups, staff driven one-on-one professional guidance that allows them to thrive. Education: for medical professionals to help them understand and properly diagnosis scleroderma early, and for patients to help them and cope and thrive while living with scleroderma. Research: funding research projects that will lead the way to finding a cure for scleroderma.
As stated on its FY2024 Form 990.
Programs
Support: provide patient support and education to over 1000 patients affected by scleroderma in california we work to build overall awareness of the disease. The foundation now has 26 community support groups. Most groups meet bi-monthly and have an average attendance of 25-20 people. In 2023 many of our support groups transitioned back to in-person meetings and we were able to grow to reach approximately 2000+ patients/caregivers and family members. We will continue to provide online meetings as well as in-person meetings. Support groups provide a forum to share feelings, concerns, information, as well as a place to offer peer support and encouragement. Solicitations or research projects are not conducted at support group meetings. Support groups often feature speakers specializing in scleroderma or related topics. All support groups are free of charge and open to everyone, including patients, caregivers, family and friends.
$120,261 spent50% of program spendingEducation:in 2023 the scleroderma foundation hosted an online education event for patients, family members and caregivers with the total number who benefitted approximately 500.for medical professionals to help them understand and properly diagnosis scleroderma early, and for patients to help them and cope and thrive while living with scleroderma.
$120,260 spentof which $29,500 as grants50% of program spendingResearch:we continue to seek research projects to fund to find a cure to end scleroderma.
The 3 programs described on its FY2023 Form 990, listed largest first by expense. Program spending in total: $240,521.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $299k to $788k (+164%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 25%. Grants only. Government contracts and fees sit inside program revenue.
104% of THE SCLERODERMA FOUNDATION OF CALIFORNIA’s revenue is contributions — more reliant on donations than three-quarters of its peers (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Andrew Emmett
Executive director
As listed on its FY2024 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 2 funders to 6 funders, grant income rose $11k → $69k.
9 of 17 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 90% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of THE SCLERODERMA FOUNDATION OF CALIFORNIA’s funders (the co-funder graph). Top 16 of 17 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
THE SCLERODERMA FOUNDATION OF CALIFORNIA leans on a few funders — its largest provides 30% of grant income and the top three 67%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
93% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund THE SCLERODERMA FOUNDATION OF CALIFORNIA.
Largest funder’s share by year: 2017 55% · 2018 37% · 2019 48% · 2020 52% · 2021 64% · 2022 94% · 2023 53% — broadly stable.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
10% of THE SCLERODERMA FOUNDATION OF CALIFORNIA's funders are still giving 3 years after their first grant; 47% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
90% of THE SCLERODERMA FOUNDATION OF CALIFORNIA's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $45k that is directly attributable, 67% of it comes from funders outside California, across 7 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $400k arriving through sponsors registered in 6 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
THE SCLERODERMA FOUNDATION OF CALIFORNIA runs a healthier operating margin than three-quarters of the 13,754 health nonprofits its size.
this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024
Organizations like THE SCLERODERMA FOUNDATION OF CALIFORNIA
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In California
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
78% of spending goes to programs.
Governance
Public support
67%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for THE SCLERODERMA FOUNDATION OF CALIFORNIA: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds THE SCLERODERMA FOUNDATION OF CALIFORNIA?
- THE SCLERODERMA FOUNDATION OF CALIFORNIA (California) receives grants from 17 organizations whose IRS filings report $444,493 to it, the largest being FRONTSTREAM GLOBAL FUND ($132,162). 8 of them have funded it in more than one year, and 90% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does THE SCLERODERMA FOUNDATION OF CALIFORNIA have?
- IRS filings report 17 organizations giving $444,493 in grants to THE SCLERODERMA FOUNDATION OF CALIFORNIA, 8 of which have funded it in more than one year.
- Who is the largest funder of THE SCLERODERMA FOUNDATION OF CALIFORNIA?
- FRONTSTREAM GLOBAL FUND is the largest funder on record, with $132,162 in grants. The full list of funders is on this page.
- How can an organization like THE SCLERODERMA FOUNDATION OF CALIFORNIA find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 17 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing