Illinois · Nonprofit
PULMONARY FIBROSIS FOUNDATION
PULMONARY FIBROSIS FOUNDATION (Illinois) receives grants from 212 organizations whose IRS filings report $9,247,603 to it, the largest being THE CHUCK AND MONICA MCQUAID FAMILY FOUNDATION ($1,448,738). 97 of them have funded it in more than one year.
- Revenue FY2025
- $9.3M
- Funders on record
- 212
- Grants received
- $9.2M
- Net assets
- $14M
What Pulmonary Fibrosis Foundation does
Mission
The Pulmonary Fibrosis Foundation is committed to accelerating research, empowering our community, and transforming care so that everyone with pulmonary fibrosis can live a better life. Our ultimate goal is to find a cure for pulmonary fibrosis.
As stated on its FY2025 Form 990.
Programs
Pff registry: the pff registry program recorded a total revenue of $957,196, encompassing contributions and sponsorships amounting to $273,150 and program service revenue totaling $684,045. This initiative serves as a collaborative research endeavor, uniting various stakeholders such as patients, caregivers, family members, healthcare providers, and researchers with the goal of advancing research and enhancing the quality of life for individuals affected by pulmonary fibrosis (pf) and interstitial lung disease (ild).the goals of the registry include:1. Establish a comprehensive information source to assist researchers in addressing diagnostic, treatment, and potential cure-related queries.2. Provide a dataset enabling researchers to enhance the quality of care in us-based medical practices.3. Utilize information to support legislative and advocacy initiatives.4. Engage the pf and ild communities.the registry includes two distinct registries:1. The pff patient registry gathered physician-reported medical information twice a year from over 2000 patients receiving care at 42 participating pff care centers across the united states from 2016 to 2022.2. The pff community registry…
$1,235,403 spent$684,045 earned by the program25% of program spendingEducation: total revenue recognized for educational programs was $548,062.the Pulmonary Fibrosis Foundation (pff) is committed to providing quality disease education to the pulmonary fibrosis (pf) and interstitial lung disease (ild) community. The pff strives to provide patients, caregivers, family members, and healthcare providers with the resources necessary to more fully understand pf and its impact as well as provide patients with the tools necessary to live with the disease and improve their quality of life.the pff disease education webinar series has served as an essential program to advance our mission of educating the pf and ild community. The webinar series provides a free, convenient way for patients, caregivers, and families to learn from and connect with pf specialists on a variety of important topics. During fy24-25, the pff disease education webinar series included eight webinars. The pff disease education webinar series topics included: lung transplant, exposures, diagnosis, pulmonary function tests, nutrition, research, autoimmune diseases, and more. The pff disease education webinar series hosted over 1,500 live attendees. Webinars are recorded and available for…
$822,067 spentof which $2,500 as grants$3,650 earned by the program17% of program spendingCorporate partnerships:total revenue recognized for corporate partnerships was $1,136,558, which included contributions and sponsorships of $285,000, in addition to the program service revenue of $848,845.the pff seeks sponsorships to support its mission-driven activities from patient-service and education to research initiatives. During this fiscal year, the pff corporate partnerships team continued to secure sponsorship for the pff summit, the world's largest conference dedicated to pulmonary fibrosis (pf) and interstitial lung disease (ild) research and education. The team also began securing support for september's pulmonary fibrosis awareness month, the pff education symposium-our virtual conference for patients and caregivers-along with key programs including the pff care center network, the pff scholars program, the pff registry, the patient education materials program, the pff support group leaders network, the pff ambassadors program, and the pff disease education webinar series.the pff further advanced its work with the pff corporate committee, which serves as a collaborative forum for industry partners to engage with the foundation's leadership and volunteer network and…
$544,405 spent$848,845 earned by the program11% of program spendingMarketing:in early 2024, the marketing team took on a major re-design of the pff homepage to make it more welcoming to newly diagnosed patients and their families. Compared to 2023, the homepage's redesign project resulted in a 7.5% increase in visits, a 26% increase in page views, and a 16% increase in events (clicking a link, loading a page, watching a video, etc.). The marketing team also began to place a heavier emphasis on email marketing. Through email alone, there were 5,607 total clicks to the pff homepage. We also earned 12,192 new subscribers to our email list, bringing our total contact base to 64,872. Of those new subscribers, 2,300 joined during pfam, which was our highest month for new signups. Other months averaged anywhere from 600 new signups to 1,000. Social media was an impactful tool to reach current patients and families. Further, social media is the most powerful tool to reach patients and families who do not know about the pff. During the fiscal year, advertisements on social media reached 574,984 accounts. Our content was viewed on facebook and instagram more than 2,067,456 times. Further, the ads earned 45,121 clicks to the pff website. In early 2025, the…
Outreach and awareness:the pff ambassador program empowers patients, caregivers, lung transplant recipients, family members, and those who have lost a loved one to serve as spokespeople for the pf and ild community. Comprising a diverse and dynamic group of volunteers from across the united states, pff ambassadors undergo formal training to prepare for speaking and advocating on behalf of the Pulmonary Fibrosis Foundation and the pulmonary fibrosis community. Pff ambassadors represent the foundation as they attend events virtually and in-person around the country. Events include pff care center network events, support group meetings, education events, fundraisers, other disease awareness and education programs, and a variety of media opportunities. Pff ambassadors promote disease awareness, provide up-to-date information, and offer hope and inspiration to those affected by pulmonary fibrosis. In june 2025, the pff welcomed 15 new pff ambassadors to the program. This brought the pff's total number of current pff ambassadors to 52 individuals. The pff provides monthly training to pff ambassadors throughout the year. In november 2024, the pff hosted a virtual meeting online for…
$2,348,541 spentof which $617,793 as grants$45,162 earned by the program47% of program spending
The 5 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $4,950,416.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $11M to $15M (+35%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 6% · 2023 5%. Grants only. Government contracts and fees sit inside program revenue.
86% of PULMONARY FIBROSIS FOUNDATION’s revenue is contributions — more donation-reliant than the typical peer (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Scott Staszak
President & CEO
Board chair
Wayne Pan Md Phd Mba
Chair
As listed on its FY2025 Form 990.
The chief executive listed changed between the FY2017 and FY2018 filings.
Who funds it, year by year
2017 → 2023: the base broadened from 36 funders to 75 funders, grant income rose $432k → $1.3M.
28 of 212 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 41% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of PULMONARY FIBROSIS FOUNDATION’s funders (the co-funder graph). Top 30 of 212 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
PULMONARY FIBROSIS FOUNDATION has a broad base — no single funder exceeds 16% of grant income, and it takes 8 funders to reach half.
the vertical line marks half of all grant income — 8 funders to its left
49% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund PULMONARY FIBROSIS FOUNDATION.
Largest funder’s share by year: 2017 17% · 2018 31% · 2019 19% · 2020 44% · 2021 20% · 2022 18% · 2023 19% — broadly stable.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
36% of PULMONARY FIBROSIS FOUNDATION's funders are still giving 3 years after their first grant; 46% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
PULMONARY FIBROSIS FOUNDATION draws 52% of its grant income from funders outside Illinois, across 30 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $3.8M arriving through sponsors registered in 16 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
PULMONARY FIBROSIS FOUNDATION runs a healthier operating margin than three-quarters of the 5,002 health nonprofits its size.
this organization peer median middle 50% of peers· 5,002 health nonprofits $1M–$10M, FY2025
Government funding PULMONARY FIBROSIS FOUNDATION receives
Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $50 on record.
- REFUNDS - GENERAL $50
Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.
Organizations like PULMONARY FIBROSIS FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Illinois
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
67% of spending goes to programs.
Governance
Public support
79%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 34 states
Screen this organization
A dated, signed PDF of the compliance screen for PULMONARY FIBROSIS FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds PULMONARY FIBROSIS FOUNDATION?
- PULMONARY FIBROSIS FOUNDATION (Illinois) receives grants from 212 organizations whose IRS filings report $9,247,603 to it, the largest being THE CHUCK AND MONICA MCQUAID FAMILY FOUNDATION ($1,448,738). 97 of them have funded it in more than one year.
- How many funders does PULMONARY FIBROSIS FOUNDATION have?
- IRS filings report 212 organizations giving $9,247,603 in grants to PULMONARY FIBROSIS FOUNDATION, 97 of which have funded it in more than one year.
- Who is the largest funder of PULMONARY FIBROSIS FOUNDATION?
- THE CHUCK AND MONICA MCQUAID FAMILY FOUNDATION is the largest funder on record, with $1,448,738 in grants. The full list of funders is on this page.
- How can an organization like PULMONARY FIBROSIS FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Illinois. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 212 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing