Maryland · Nonprofit
CYSTIC FIBROSIS FOUNDATION
CYSTIC FIBROSIS FOUNDATION (Maryland) receives grants from 1424 organizations whose IRS filings report $96,423,638 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($17,611,213). 747 of them have funded it in more than one year, and 55% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $356M
- Funders on record
- 1,424
- Grants received
- $96M
- Net assets
- $4.7B
What Cystic Fibrosis Foundation does
Mission
To cure cf and provide all people with cf the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the cf community, and advancing high-quality, specialized care.
As stated on its FY2024 Form 990.
Programs
Medical Program Expenses. SEE SCHEDULE O.
$306,392,964 spentof which $198,809,390 as grants$16,435,185 earned by the program88% of program spendingEducation Program Expenses. See Schedule O.
$22,163,320 spent6% of program spendingCommunity Service Program Expenses. SEE SCHEDULE O.
$18,153,082 spentof which $3,207,776 as grants5% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $346,709,366.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $5.7B to $4.7B (−17%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
27% of CYSTIC FIBROSIS FOUNDATION’s revenue is contributions — more reliant on donations than three-quarters of its peers (1% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Michael P Boyle Md
President & CEO
Board chair
Kc Bryan White
Chair
As listed on its FY2024 Form 990.
The chief executive listed changed between the FY2019 and FY2020 filings.
Who funds it, year by year
2017 → 2023: the base broadened from 387 funders to 465 funders, grant income rose $6.7M → $15M.
126 of 1424 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 55% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of CYSTIC FIBROSIS FOUNDATION’s funders (the co-funder graph). Top 30 of 1424 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
CYSTIC FIBROSIS FOUNDATION has a broad base — no single funder exceeds 18% of grant income, and it takes 15 funders to reach half.
the vertical line marks half of all grant income — 15 funders to its left
72% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund CYSTIC FIBROSIS FOUNDATION.
Largest funder’s share by year: 2017 16% · 2018 8% · 2019 21% · 2020 19% · 2021 20% · 2022 17% · 2023 16% — broadly stable.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
32% of CYSTIC FIBROSIS FOUNDATION's funders are still giving 3 years after their first grant; 52% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
55% of CYSTIC FIBROSIS FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $43M that is directly attributable, 96% of it comes from funders outside Maryland, across 50 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $53M arriving through sponsors registered in 39 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
CYSTIC FIBROSIS FOUNDATION holds deeper cash reserves than three-quarters of the 2,076 health nonprofits its size.
this organization peer median middle 50% of peers· 2,076 health nonprofits over $100M, FY2024
Government funding CYSTIC FIBROSIS FOUNDATION receives
Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $6k on record.
- NJ$4k
- FL$2k
Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.
Organizations like CYSTIC FIBROSIS FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Maryland
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
79% of spending goes to programs.
Governance
Public support
47%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 29 states
Part of a family of 9 related entities
- Oaktree QR CLV LP · disregarded
- Cystic Fibrosis Foundation Therapeutics Inc · exempt
- Axar Qr Opportunistic Credit Fund LP · partnership
- Lf-Cff Incubator Fund II LP · partnership
- Lf-Cff Incubator Fund LP · partnership
Screen this organization
A dated, signed PDF of the compliance screen for CYSTIC FIBROSIS FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds CYSTIC FIBROSIS FOUNDATION?
- CYSTIC FIBROSIS FOUNDATION (Maryland) receives grants from 1424 organizations whose IRS filings report $96,423,638 to it, the largest being FIDELITY INVESTMENTS CHARITABLE GIFT FUND ($17,611,213). 747 of them have funded it in more than one year, and 55% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does CYSTIC FIBROSIS FOUNDATION have?
- IRS filings report 1424 organizations giving $96,423,638 in grants to CYSTIC FIBROSIS FOUNDATION, 747 of which have funded it in more than one year.
- Who is the largest funder of CYSTIC FIBROSIS FOUNDATION?
- FIDELITY INVESTMENTS CHARITABLE GIFT FUND is the largest funder on record, with $17,611,213 in grants. The full list of funders is on this page.
- How can an organization like CYSTIC FIBROSIS FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Maryland. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 1424 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing