New York · Nonprofit
DYSAUTONOMIA INTERNATIONAL INC
DYSAUTONOMIA INTERNATIONAL INC (New York) receives grants from 78 organizations whose IRS filings report $2,246,745 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($339,413). 35 of them have funded it in more than one year, and 67% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $1.1M
- Funders on record
- 78
- Grants received
- $2.2M
- Net assets
- $2.6M
What Dysautonomia International Inc does
Mission
To increase awareness of Dysautonomia within the medical community and the general public and raise funds for dysautonomia research.
As stated on its FY2024 Form 990.
Programs
Providing research funding for projects at major University Research Centers.
$334,580 spentof which $263,200 as grants31% of program spendingConferences to educate patients, caregivers and medicalprofessionals on dysautonomia conditions, treatments and research.
$324,918 spent$114,532 earned by the program30% of program spendingAdvocacy Initiatives - Patient Support and Empowerment programs.
$231,935 spent$1,890 earned by the program22% of program spendingOTHER PROGRAM SERVICES 4: Advocacy Initiatives - Patient Support and Empowerment programs. OTHER PROGRAM SERVICES 5: Clinician education.
$184,121 spent$40 earned by the program17% of program spending
The 4 programs described on its FY2023 Form 990, listed largest first by expense. Program spending in total: $1,075,554.
The organization over time
Each line starts at 100 in 2018, so what you read is the shape rather than the size: 150 means half as much again as 2018, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $2.5M to $2.8M (+15%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
79% of DYSAUTONOMIA INTERNATIONAL INC’s revenue is contributions — more donation-reliant than the typical peer (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 7 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Lauren Stiles Jd
President & CEO
As listed on its FY2024 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 8 funders to 32 funders, grant income rose $227k → $530k.
17 of 78 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 67% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of DYSAUTONOMIA INTERNATIONAL INC’s funders (the co-funder graph). Top 30 of 78 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
DYSAUTONOMIA INTERNATIONAL INC has a broad base — no single funder exceeds 15% of grant income, and it takes 6 funders to reach half.
the vertical line marks half of all grant income — 6 funders to its left
69% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund DYSAUTONOMIA INTERNATIONAL INC.
Largest funder’s share by year: 2017 59% · 2018 58% · 2019 60% · 2020 25% · 2021 34% · 2022 23% · 2023 19% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
40% of DYSAUTONOMIA INTERNATIONAL INC's funders are still giving 3 years after their first grant; 45% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
67% of DYSAUTONOMIA INTERNATIONAL INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $746k that is directly attributable, 91% of it comes from funders outside New York, across 25 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $1.5M arriving through sponsors registered in 13 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
DYSAUTONOMIA INTERNATIONAL INC holds deeper cash reserves than three-quarters of the 8,121 health nonprofits its size.
this organization peer median middle 50% of peers· 8,121 health nonprofits $1M–$10M, FY2024
Organizations like DYSAUTONOMIA INTERNATIONAL INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New York
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
87% of spending goes to programs.
Governance
Public support
90%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 41 states
Screen this organization
A dated, signed PDF of the compliance screen for DYSAUTONOMIA INTERNATIONAL INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds DYSAUTONOMIA INTERNATIONAL INC?
- DYSAUTONOMIA INTERNATIONAL INC (New York) receives grants from 78 organizations whose IRS filings report $2,246,745 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($339,413). 35 of them have funded it in more than one year, and 67% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does DYSAUTONOMIA INTERNATIONAL INC have?
- IRS filings report 78 organizations giving $2,246,745 in grants to DYSAUTONOMIA INTERNATIONAL INC, 35 of which have funded it in more than one year.
- Who is the largest funder of DYSAUTONOMIA INTERNATIONAL INC?
- DONOR ADVISED CHARITABLE GIVING INC is the largest funder on record, with $339,413 in grants. The full list of funders is on this page.
- How can an organization like DYSAUTONOMIA INTERNATIONAL INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2018–2024), and the filings of 78 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing