Illinois · Nonprofit
DYSPHONIA INTERNATIONAL INC
DYSPHONIA INTERNATIONAL INC (Illinois) receives grants from 9 organizations whose IRS filings report $185,194 to it, the largest being EDWARDSON FAMILY FOUNDATION ($55,000). 4 of them have funded it in more than one year, and 70% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2026
- $721k
- Funders on record
- 9
- Grants received
- $185k
- Net assets
- $3.6M
What Dysphonia International Inc does
Mission
Dysphonia international is dedicated to improving the lives of people affected with spasmodic dysphonia and related voice conditions through research, education, awareness and support. While these disorders are not life-threatening, they are life-altering and can impact every facet of a person's life. Our community of volunteers, healthcare professionals, researchers, families, and individuals works together to provide connection, support, and a shared path forward, helping those affected by voice disorders overcome adversity and thrive in a community that cares about them and their voice.
As stated on its FY2026 Form 990.
Programs
Dysphonia international advanced its research mission by funding one new research grant and continuing to work with multiple research teams to develop new projects. Thirteen travel awards and one conference award were provided to individuals presenting at professional voice conferences. The organization served as a sponsor of the annual bridge2ai conference and supported a european workshop on microsurgery of the vocal cords. Dysphonia international also continued its support of the brain bank and global dystonia registry.
$126,562 spentof which $58,978 as grants33% of program spendingEducation and awareness efforts continued to expand throughout the year. Dysphonia international hosted a successful symposium in phoenix, az, exhibited at three professional voice conferences, and presented to a group of 70 laryngology fellows at the fall voice conference. The annual issue of the our voice newsletter was published. In celebration of world voice day, the organization launched an awareness campaign highlighting the theme empower your voice dysphonia international also attended advocacy day with the dystonia advocacy network. Through the guest speaker program, 23 presentations were coordinated for undergraduate and graduate-level speech-language pathology students. The organization also participated in interviews across 20 podcast episodes on different podcasts. The 6th annual walk for talk brought together worldwide participation through 27 in-person events, including seven first-time walks. The community raised a record 130,915, which was matched to total 261,830 in support of research and programs.
$172,622 spent46% of program spendingDysphonia international strengthened its support programs by organizing 62 virtual, 28 in-person, and three hybrid support group meetings. Two skill- building leadership workshops, one in-person and one virtual, were hosted for volunteer leaders. The organization continued its rotation of virtual leadership meetings, including area contact leaders, support group leaders, and joint leadership meetings. The leadership library was expanded with new resources for leaders. Volunteer excellence was recognized through the presentation of the midge kovacs award and the dot sowerby awareness award. The quarterly online newsletter, voices of support," continued to highlight the work and impact of the volunteer support network.
$80,062 spent21% of program spending
The 3 programs described on its FY2026 Form 990, listed largest first by expense. Program spending in total: $379,246.
The organization over time
Each line starts at 100 in 2023, so what you read is the shape rather than the size: 150 means half as much again as 2023, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2025 to 2026, from $3.3M to $3.6M (+7%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
79% of DYSPHONIA INTERNATIONAL INC’s revenue is contributions — about as donation-reliant as the typical peer (83% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 4 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
Grant support over time, funder by funder — shade shows the grant size each year.
5 of 9 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 70% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of DYSPHONIA INTERNATIONAL INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
DYSPHONIA INTERNATIONAL INC leans on a few funders — its largest provides 30% of grant income and the top three 73%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
70% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund DYSPHONIA INTERNATIONAL INC.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
70% of DYSPHONIA INTERNATIONAL INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $56k that is directly attributable, 100% of it comes from funders outside Illinois, across 3 states.
Funder states come from each funder’s own filing. $130k arriving through sponsors registered in 5 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
DYSPHONIA INTERNATIONAL INC runs a healthier operating margin than three-quarters of the 310 health nonprofits its size.
this organization peer median middle 50% of peers· 310 health nonprofits $100k–$1M, FY2026
Organizations like DYSPHONIA INTERNATIONAL INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Illinois
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
78% of spending goes to programs.
Governance
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for DYSPHONIA INTERNATIONAL INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds DYSPHONIA INTERNATIONAL INC?
- DYSPHONIA INTERNATIONAL INC (Illinois) receives grants from 9 organizations whose IRS filings report $185,194 to it, the largest being EDWARDSON FAMILY FOUNDATION ($55,000). 4 of them have funded it in more than one year, and 70% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does DYSPHONIA INTERNATIONAL INC have?
- IRS filings report 9 organizations giving $185,194 in grants to DYSPHONIA INTERNATIONAL INC, 4 of which have funded it in more than one year.
- Who is the largest funder of DYSPHONIA INTERNATIONAL INC?
- EDWARDSON FAMILY FOUNDATION is the largest funder on record, with $55,000 in grants. The full list of funders is on this page.
- How can an organization like DYSPHONIA INTERNATIONAL INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Illinois. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2026 (financials across 2023–2026), and the filings of 9 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing