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Florida · Nonprofit

DYSAUTONOMIA PROJECT INC

DYSAUTONOMIA PROJECT INC (Florida) receives grants from 20 organizations whose IRS filings report $835,634 to it, the largest being DWAYNE HAWKINS FAMILY FOUNDATION INC D/B/A CROWN AUTOMOTIVE CHARITIES ($400,208). 11 of them have funded it in more than one year.

Revenue FY2025
$192k
Funders on record
20
Grants received
$836k
Net assets
$1.1M
11/20 repeat funderspeak grant-dependency 38%
01What it does

What Dysautonomia Project Inc does

Mission

The Dysautonomia Project is a non-profit collaborative effort of volunteer healthcare providers, patients, and community leaders working together to bridge the gap between what autonomic specialists know and what community-based providers and patients need to know.

As stated on its FY2025 Form 990.

Programs

  1. Our programs and initiatives are as unique as our mission. They range from our award-winning book, The Dysautonomia Project, which remains the cornerstone of our mission, to the first ever free, online video library (Autonomic Education) connecting the world's leading specialists to providers and patients anywhere. The Residents Course mini fellowship, presented in partnership with the American Autonomic Society, is the first program of its kind exponentially increasing the number of doctors able to diagnose and treat dysautonomia.

    $338,267 spent$37,879 earned by the program
    100% of program spending
  2. Other program services, not described on the e-filed return.

    $0 spent
    0% of program spending

The 2 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $338,267.

02The organization over time

The organization over time

Each line starts at 100 in 2019, so what you read is the shape rather than the size: 150 means half as much again as 2019, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20192019 Revenue 100 ($431k) Expenses 100 ($179k) Net assets 100 ($446k)2020 Revenue 48 ($206k) Expenses 112 ($199k) Net assets 97 ($432k)2021 Revenue 48 ($206k) Expenses 62 ($111k) Net assets 131 ($583k)2022 Revenue 145 ($626k) Expenses 142 ($253k) Net assets 203 ($906k)2023 Revenue 172 ($741k) Expenses 294 ($526k) Net assets 264 ($1.2M)2024 Revenue 147 ($632k) Expenses 313 ($560k) Net assets 303 ($1.4M)2025 Revenue 45 ($192k) Expenses 249 ($445k) Net assets 252 ($1.1M)
2019202020212022202320242025
Revenue (45)Expenses (249)Net assets (252)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $584k to $918k (+57%).

$447k
$452k
$584k
$918k
$1.2M
$1.4M
$1.3M
2019202020212022202320242025
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2019
2020
2021
2022
2023
2024
2025
ContributionsProgram revenueInvestmentOther

Government-grant reliance: 2021 16% · 2023 0% · 2024 0% · 2025 0%. Grants only. Government contracts and fees sit inside program revenue.

39% of DYSAUTONOMIA PROJECT INC’s revenue is contributions — about as donation-reliant as the typical peer (83% for the typical peer).

This organization
Typical peer · 14,932 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 7 reported years ran a deficit.

$252k
’19
$6k
’20
$94k
’21
$373k
’22
$215k
’23
$71k
’24
−$253k
’25
2.1
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

Chief executive

Angela Devlen

Executive Director

As listed on its FY2025 Form 990.

The chief executive listed changed between the FY2024 and FY2025 filings.

2019202020212022202320242025
Listed171817171799
Joined·+4+1+3+1+1+2
No longer listed·323192
03Who funds it

Who funds it, year by year

2017 → 2023: the base broadened from 2 funders to 9 funders, grant income rose $29k → $279k.

5 of 20 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 27% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of DYSAUTONOMIA PROJECT INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

DYSAUTONOMIA PROJECT INC leans on a few funders — its largest provides 48% of grant income and the top three 70%; half comes from just 2 funders.

the vertical line marks half of all grant income — 2 funders to its left

33% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund DYSAUTONOMIA PROJECT INC.

48%
largest funder
70%
top three
~4
effective funders

Largest funder’s share by year: 2017 98% · 2018 100% · 2019 69% · 2020 42% · 2021 81% · 2022 35% · 2023 72% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

40% of DYSAUTONOMIA PROJECT INC's funders are still giving 3 years after their first grant; 55% give in more than one year at all.

first grant+1y+2y+3y+4y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

85% of DYSAUTONOMIA PROJECT INC's grant income comes from Florida funders.

IL
PA
MO
MD
FL

In-state vs out-of-state, by year

’17
’19
’20
’21
’22
’23
Florida out of state home

Funder states come from each funder’s own filing. $221k arriving through sponsors registered in 4 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

DYSAUTONOMIA PROJECT INC's funding base is broadening — from 2 funders to 9 as grant income climbed.

Operating margin−131% · bottom quartile
Months of reserve2.1mo · bottom quartile
Revenue growth (annualized)−13% · bottom quartile

this organization peer median middle 50% of peers· 8,464 health nonprofits $100k–$1M, FY2025

Organizations like DYSAUTONOMIA PROJECT INC

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Florida

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

76% of spending goes to programs.

Program 76%Management 12%Fundraising 12%

Governance

8
board members
100%
independent
✓Conflict-of-interest policy–Whistleblower policy✓Document retention✓Board reviewed the 990✓Audited financials

Public support

87%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Screen this organization

A dated, signed PDF of the compliance screen for DYSAUTONOMIA PROJECT INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds DYSAUTONOMIA PROJECT INC?
DYSAUTONOMIA PROJECT INC (Florida) receives grants from 20 organizations whose IRS filings report $835,634 to it, the largest being DWAYNE HAWKINS FAMILY FOUNDATION INC D/B/A CROWN AUTOMOTIVE CHARITIES ($400,208). 11 of them have funded it in more than one year.
How many funders does DYSAUTONOMIA PROJECT INC have?
IRS filings report 20 organizations giving $835,634 in grants to DYSAUTONOMIA PROJECT INC, 11 of which have funded it in more than one year.
Who is the largest funder of DYSAUTONOMIA PROJECT INC?
DWAYNE HAWKINS FAMILY FOUNDATION INC D/B/A CROWN AUTOMOTIVE CHARITIES is the largest funder on record, with $400,208 in grants. The full list of funders is on this page.
How can an organization like DYSAUTONOMIA PROJECT INC find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Florida. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

Play a game about who funds Dysautonomia Project →

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2019–2025), and the filings of 20 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing