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New York · Nonprofit

CARCINOID CANCER FOUNDATION

CARCINOID CANCER FOUNDATION (New York) receives grants from 23 organizations whose IRS filings report $332,881 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($81,150). 9 of them have funded it in more than one year, and 72% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.

Revenue FY2026
$20k
Funders on record
23
Grants received
$333k
Net assets
$0
9/23 repeat funderspeak grant-dependency 15%
01What it does

What Carcinoid Cancer Foundation does

Mission

Organization mission: to provide education and awareness information to patients and families of patients impacted by carcinoid and neuroendocrine tumors, as well as to serve as advocates throughout the community connecting physicians, caregivers, patients, families of patients and those organizations serving the community with diagnostic tools and methods as well as those providing treatment.

As stated on its FY2026 Form 990.

Program

On its FY2025 return the organization reported a significant change in how it conducts a program.

Effective 2/28/26, the board of directors voted to cease operations and dissolve the entity. Since 1968, the organization proudly served the community providing valuable information and awareness about carcinoid and neuroendocrine tumors. The remaining assets of the organization will be donated to neuroendocrine cancer foundation, a not-for-profit, who will continue to fullfull the organization's historical mission.

Its own explanation, from Schedule O of that return (Part III, line 3).

  1. Provides information and education for medical professionals, patients, caregivers, and the general public; provides e-mail and telephone support; works to improve access to accurate and up-to-date information. Digital outreach nationally and internationally through ccf's website,e-newsletter, blog and social media channels, including facebook, youtube and twitter, reaches over 400,000 people annually in more than 150 countries. Encourages and supports research in the area of carcinoid and neuroendocrine tumors.

    $358,215 spent
    100% of program spending

The program described on its FY2025 Form 990. Program spending in total: $358,215.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20172017 Revenue 100 ($777k) Expenses 100 ($453k) Net assets 100 ($1.0M)2018 Revenue 42 ($324k) Expenses 113 ($511k) Net assets 82 ($859k)2019 Revenue 72 ($557k) Expenses 106 ($481k) Net assets 90 ($936k)2020 Revenue 65 ($504k) Expenses 101 ($457k) Net assets 94 ($984k)2021 Revenue 52 ($405k) Expenses 111 ($502k) Net assets 85 ($887k)2022 Revenue 59 ($462k) Expenses 93 ($423k) Net assets 89 ($926k)2023 Revenue 56 ($434k) Expenses 107 ($486k) Net assets 84 ($875k)2024 Revenue 25 ($197k) Expenses 82 ($373k) Net assets 67 ($699k)2025 Revenue 33 ($253k) Expenses 80 ($362k) Net assets 56 ($590k)2026 Revenue 3 ($20k) Expenses 134 ($610k) Net assets 0 ($0)
'17'18'19'20'21'22'23'24'25'26
Revenue (3)Expenses (134)Net assets (0)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2025 to 2026, from $597k to $0 (−100%).

$1.0M
$868k
$940k
$986k
$889k
$938k
$881k
$701k
$597k
$0
'17'18'19'20'21'22'23'24'25'26
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
2025
2026
ContributionsProgram revenueInvestmentOther

100% of CARCINOID CANCER FOUNDATION’s revenue is contributions — more donation-reliant than the typical peer (100% for the typical peer).

This organization
Typical peer · 12,214 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 6 of the last 10 reported years ran a deficit.

$323k
’17
−$186k
’18
$77k
’19
$48k
’20
−$97k
’21
$39k
’22
−$52k
’23
−$176k
’24
−$109k
’25
−$590k
’26
20
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

Chief executive

Keith Warner

CEO/chairman/treasurer

As listed on its FY2026 Form 990.

'17'18'19'20'21'22'23'24'25'26
Listed7778843333
Joined·+0+0+1+0+0+0+0+0+0
No longer listed·000041000
03Who funds it

Who funds it, year by year

2017 → 2023: the base broadened from 3 funders to 8 funders, grant income rose $45k → $46k.

7 of 23 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 72% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of CARCINOID CANCER FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

CARCINOID CANCER FOUNDATION has a broad base — no single funder exceeds 24% of grant income, and it takes 3 funders to reach half.

the vertical line marks half of all grant income — 3 funders to its left

74% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund CARCINOID CANCER FOUNDATION.

24%
largest funder
61%
top three
~6
effective funders

Largest funder’s share by year: 2017 94% · 2018 63% · 2019 39% · 2020 71% · 2021 55% · 2022 30% · 2023 32% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

15% of CARCINOID CANCER FOUNDATION's funders are still giving 3 years after their first grant; 39% give in more than one year at all.

first grant+1y+2y+3y+4y+5y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

72% of CARCINOID CANCER FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $93k that is directly attributable, 99% of it comes from funders outside New York, across 10 states.

WA
IL
WI
MI
NY
NJ
CT
CA
NC
TX

In-state vs out-of-state, by year

’17
’18
’19
’20
’21
’22
’23
New York out of state home

Funder states come from each funder’s own filing. $240k arriving through sponsors registered in 6 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

CARCINOID CANCER FOUNDATION's revenue fell 97% between 2017 and 2026.

Operating margin−2945% · bottom quartile
Revenue growth (annualized)−33% · bottom quartile

this organization peer median middle 50% of peers· 162 health nonprofits under $100k, FY2026

Organizations like CARCINOID CANCER FOUNDATION

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In New York

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

59% of spending goes to programs.

Program 59%Management 34%Fundraising 7%

Governance

3
board members
100%
independent
✓Conflict-of-interest policy✓Whistleblower policy–Document retention✓Board reviewed the 990–Audited financials

Public support

100%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 1 state

NY

Screen this organization

A dated, signed PDF of the compliance screen for CARCINOID CANCER FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

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Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds CARCINOID CANCER FOUNDATION?
CARCINOID CANCER FOUNDATION (New York) receives grants from 23 organizations whose IRS filings report $332,881 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($81,150). 9 of them have funded it in more than one year, and 72% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
How many funders does CARCINOID CANCER FOUNDATION have?
IRS filings report 23 organizations giving $332,881 in grants to CARCINOID CANCER FOUNDATION, 9 of which have funded it in more than one year.
Who is the largest funder of CARCINOID CANCER FOUNDATION?
DONOR ADVISED CHARITABLE GIVING INC is the largest funder on record, with $81,150 in grants. The full list of funders is on this page.
How can an organization like CARCINOID CANCER FOUNDATION find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

Play a game about who funds Carcinoid Cancer →

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2026 (financials across 2017–2026), and the filings of 23 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing