New York · Nonprofit
CROHN'S & COLITIS FOUNDATION INC
CROHN'S & COLITIS FOUNDATION INC (New York) receives grants from 1544 organizations whose IRS filings report $128,058,708 to it, the largest being THE LEONA M AND HARRY B HELMSLEY CHARITABLE TRUST ($15,439,403). 850 of them have funded it in more than one year.
- Revenue FY2024
- $85M
- Funders on record
- 1,544
- Grants received
- $128M
- Net assets
- $3.2M
What Crohn's & Colitis Foundation Inc does
Mission
For over five decades, the crohn's & colitis foundation ("the foundation") has been dedicated to its mission of finding a cure for crohn's disease and ulcerative colitis and improving the quality of life of children and adults affected by these diseases. (see sched o)the foundation has defined itself by sponsoring the best and brightest researchers resulting in groundbreaking studies and research initiatives to advance the understanding and treatment of inflammatory bowel diseases ("ibd").
As stated on its FY2024 Form 990.
Programs
Since its inception, the crohn's & colitis foundation has provided more than $500 million for research on the treatment and cures of ibd. The foundation funds a set of priority research initiatives: multi-institutional, multi-disciplinary, collaborative research projects targeting areas of science with a high probability of advancing treatment. The foundation has defined itself by sponsoring the best and brightest researchers resulting in groundbreaking studies and research initiatives to advance the understanding and treatment of inflammatory bowel diseases ("ibd"). (continued in schedule o)the foundation's research portfolio is a combination of basic, translational, and clinical research. Designed to cut years off the research process, ibd plexus, the foundation's innovative research platform, is the single largest ibd database in the us and the most comprehensive ibd database in the world. It currently provides researchers with data from over 30,000 patients, including 250,000 biosamples (blood, stool, and intestinal tissue).the foundation leads the way in new, critically important areas of ibd research, and accelerating novel therapies and innovative products that address…
$34,993,675 spentof which $23,680,607 as grants$8,790,214 earned by the program51% of program spendingThe crohn's & colitis foundation provides information and education for the millions of individuals with ibd and their loved ones through a variety of channels at the national and local level including in-person and web-based education, support programs including pediatric and adult focus initiatives, ibd help center answering questions and provding support for those with ibd, and numerous printed materials providingaccurate and up-to-date information. In a recent impact study, over 85% of patients connected with the foundation stated that the foundation has had a positive impact on their ibd journey. These patients also reported better symptom control than non-foundation connected patients. (continued in schedule o)the foundation also offers professional education through our two scientific journals, inflammatory bowel diseases and crohn's & colitis 360, as well as through health professional education programs both in-person and web-based. In addition the foundation hosts the annual crohn's & colitis congress conference. In the past year, the foundation launched a public service awareness campaign to increase familiarity of ibd with the general public and reduce the stigma for…
$32,995,237 spent$322,060 earned by the program49% of program spending
The 2 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $67,988,912.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2019 to 2020, from $45M to $56M (+23%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2017 1% · 2018 1% · 2019 1% · 2020 1% · 2021 8% · 2022 8% · 2023 1% · 2024 1%. Grants only. Government contracts and fees sit inside program revenue.
87% of CROHN'S & COLITIS FOUNDATION INC’s revenue is contributions — more reliant on donations than three-quarters of its peers (7% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Michael Osso
President/CEO(non-voting)
As listed on its FY2024 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 362 funders to 546 funders, grant income rose $6.5M → $19M.
116 of 1544 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 47% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of CROHN'S & COLITIS FOUNDATION INC’s funders (the co-funder graph). Top 30 of 1544 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
CROHN'S & COLITIS FOUNDATION INC has a broad base — no single funder exceeds 12% of grant income, and it takes 6 funders to reach half.
the vertical line marks half of all grant income — 6 funders to its left
53% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund CROHN'S & COLITIS FOUNDATION INC.
Largest funder’s share by year: 2017 18% · 2018 17% · 2019 21% · 2020 48% · 2021 10% · 2022 14% · 2023 18% — broadly stable.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
36% of CROHN'S & COLITIS FOUNDATION INC's funders are still giving 3 years after their first grant; 55% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
CROHN'S & COLITIS FOUNDATION INC draws 53% of its grant income from funders outside New York, across 50 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $61M arriving through sponsors registered in 33 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
CROHN'S & COLITIS FOUNDATION INC's funding base is broadening — from 362 funders to 546 as grant income climbed.
this organization peer median middle 50% of peers· 4,580 health nonprofits $10M–$100M, FY2024
Government funding CROHN'S & COLITIS FOUNDATION INC receives
Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $5.8M on record.
- Department of Health and Human Services$5.8M
Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.
Organizations like CROHN'S & COLITIS FOUNDATION INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New York
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
81% of spending goes to programs.
Governance
Public support
87%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 30 states
Screen this organization
A dated, signed PDF of the compliance screen for CROHN'S & COLITIS FOUNDATION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds CROHN'S & COLITIS FOUNDATION INC?
- CROHN'S & COLITIS FOUNDATION INC (New York) receives grants from 1544 organizations whose IRS filings report $128,058,708 to it, the largest being THE LEONA M AND HARRY B HELMSLEY CHARITABLE TRUST ($15,439,403). 850 of them have funded it in more than one year.
- How many funders does CROHN'S & COLITIS FOUNDATION INC have?
- IRS filings report 1544 organizations giving $128,058,708 in grants to CROHN'S & COLITIS FOUNDATION INC, 850 of which have funded it in more than one year.
- Who is the largest funder of CROHN'S & COLITIS FOUNDATION INC?
- THE LEONA M AND HARRY B HELMSLEY CHARITABLE TRUST is the largest funder on record, with $15,439,403 in grants. The full list of funders is on this page.
- How can an organization like CROHN'S & COLITIS FOUNDATION INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 1544 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing