Illinois · Nonprofit
CENTRAL BRAIN TUMOR REGISTRY OF THE UNITED STATES
CENTRAL BRAIN TUMOR REGISTRY OF THE UNITED STATES (Illinois) receives grants from 8 organizations whose IRS filings report $609,988 to it, the largest being American Brain Tumor Association ($275,075). 6 of them have funded it in more than one year.
- Revenue FY2025
- $236k
- Funders on record
- 8
- Grants received
- $610k
- Net assets
- $81k
What Central Brain Tumor Registry of the United States does
Mission
The Central Brain Tumor Registry of the United States (cbtrus) is a not- for-profit corporation committed to providing a resource for gathering and disseminating current epidemiologic data on all primary brain and other central nervous system tumors, malignant and non-malignant, for the purposes of accurately describing their incidence and survival patterns, evaluating diagnosis and treatment, facilitating etiologic studies, establishing awareness of the disease, and ultimately, for the prevention of all brain and other central nervous system tumors.
As stated on its FY2025 Form 990.
Program
To gather and disseminate current epidemiologic data on all primary brain and other central nervous system tumors, malignant and non-malignant, for the purposes of accurately describing their incidence and survival patterns, evaluating diagnosis and treatment, facilitating etiologic studies, establishing awareness of the disease, and ultimately, for the prevention of all brain and other central nervous system tumors.
$201,920 spent$60,000 earned by the program100% of program spending
The program described on its FY2025 Form 990. Program spending in total: $201,920.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2019 to 2020, from $279k to $187k (−33%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 12%. Grants only. Government contracts and fees sit inside program revenue.
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 2 funders to 5 funders, grant income fell $57k → $50k.
2 of 8 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 2% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of CENTRAL BRAIN TUMOR REGISTRY OF THE UNITED STATES’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
CENTRAL BRAIN TUMOR REGISTRY OF THE UNITED STATES leans on a few funders — its largest provides 45% of grant income and the top three 86%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
76% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund CENTRAL BRAIN TUMOR REGISTRY OF THE UNITED STATES.
Largest funder’s share by year: 2017 56% · 2018 44% · 2019 78% · 2020 64% · 2021 64% · 2022 54% · 2023 60% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
83% of CENTRAL BRAIN TUMOR REGISTRY OF THE UNITED STATES's funders are still giving 3 years after their first grant; 75% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
CENTRAL BRAIN TUMOR REGISTRY OF THE UNITED STATES draws 54% of its grant income from funders outside Illinois, across 6 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $10k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Government funding CENTRAL BRAIN TUMOR REGISTRY OF THE UNITED STATES receives
Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $589k on record.
- Department of Health and Human Services$589k
Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.
Organizations like CENTRAL BRAIN TUMOR REGISTRY OF THE UNITED STATES
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Illinois
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
86% of spending goes to programs.
Governance
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for CENTRAL BRAIN TUMOR REGISTRY OF THE UNITED STATES: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds CENTRAL BRAIN TUMOR REGISTRY OF THE UNITED STATES?
- CENTRAL BRAIN TUMOR REGISTRY OF THE UNITED STATES (Illinois) receives grants from 8 organizations whose IRS filings report $609,988 to it, the largest being American Brain Tumor Association ($275,075). 6 of them have funded it in more than one year.
- How many funders does CENTRAL BRAIN TUMOR REGISTRY OF THE UNITED STATES have?
- IRS filings report 8 organizations giving $609,988 in grants to CENTRAL BRAIN TUMOR REGISTRY OF THE UNITED STATES, 6 of which have funded it in more than one year.
- Who is the largest funder of CENTRAL BRAIN TUMOR REGISTRY OF THE UNITED STATES?
- American Brain Tumor Association is the largest funder on record, with $275,075 in grants. The full list of funders is on this page.
- How can an organization like CENTRAL BRAIN TUMOR REGISTRY OF THE UNITED STATES find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Illinois. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Central Brain Tumor Registry of the United States →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 8 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing