Florida · Nonprofit
THE INTERNATIONAL WALDENSTROM'S MACROGLOBULINEMIA FOUNDATION INC
THE INTERNATIONAL WALDENSTROM'S MACROGLOBULINEMIA FOUNDATION INC (Florida) receives grants from 55 organizations whose IRS filings report $4,762,989 to it, the largest being THE COMMUNITY FOUNDATION OF SARASOTA CO INC ($742,363). 33 of them have funded it in more than one year, and 59% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $4.5M
- Funders on record
- 55
- Grants received
- $4.8M
- Net assets
- $7.1M
What The International Waldenstrom's Macroglobulinemia Foundation Inc does
Mission
Mission objectives: (a) offer support and encouragement to the waldenstrom's macroglobulinemia community and others with an interest in the disease, (b) to provide information and educational programs that address patients and caregivers' concerns and (c) to provide and support research leading to better treatments and ultimately a cure.
As stated on its FY2024 Form 990.
Programs
Provided 44 payments towards 28 different grants to further research in waldenstrom's macroglobulinemia: toward a rational targeted therapy, direct targeting the myd88 l265p driver mutation in wm, anti-tumor and immune microenvironment responses, crispr-based functional characterization of wm cells, origins and immunotherapy, from biology to treatment, modulation of t-cell function, novel antibody-targeted interferons, single-cell next generation, targeting the tumor microenvironment and corax in lymphoma.
$2,887,764 spentof which $2,887,764 as grants60% of program spendingEducational forums hosted a national educational forum for waldenstrom's macroglobulinemia patients and provided a grant to fund patient educational forums. The 2024 education forum generated $237,956 in gross receipts, including $185,000 in sponsorship contributions
$338,713 spent$52,956 earned by the program7% of program spendingIwmf publications serve to educate and support patients and caregivers. Iwmf torch is a quarterly magazine which covers the latest information on waldenstrom's macroglobulinemia education, research, activities and treatments.
$66,489 spent1% of program spendingOther program services for international outreach and other program services for support groups.
$1,537,691 spent32% of program spending
The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $4,830,657.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $5.3M to $7.4M (+39%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2020 2%. Grants only. Government contracts and fees sit inside program revenue.
92% of THE INTERNATIONAL WALDENSTROM'S MACROGLOBULINEMIA FOUNDATION INC’s revenue is contributions — more donation-reliant than the typical peer (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Louie Newton Guerin
President/CEO
Board chair
Paul Kitchen
Chairman
As listed on its FY2024 Form 990.
The chief executive listed changed between the FY2019 and FY2020, and between the FY2023 and FY2024 filings.
Who funds it, year by year
2017 → 2023: the base broadened from 14 funders to 25 funders, grant income fell $574k → $429k.
16 of 55 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 59% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of THE INTERNATIONAL WALDENSTROM'S MACROGLOBULINEMIA FOUNDATION INC’s funders (the co-funder graph). Top 30 of 55 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
THE INTERNATIONAL WALDENSTROM'S MACROGLOBULINEMIA FOUNDATION INC has a broad base — no single funder exceeds 16% of grant income, and it takes 4 funders to reach half.
the vertical line marks half of all grant income — 4 funders to its left
79% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund THE INTERNATIONAL WALDENSTROM'S MACROGLOBULINEMIA FOUNDATION INC.
Largest funder’s share by year: 2017 41% · 2018 29% · 2019 36% · 2020 32% · 2021 26% · 2022 49% · 2023 23% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
41% of THE INTERNATIONAL WALDENSTROM'S MACROGLOBULINEMIA FOUNDATION INC's funders are still giving 3 years after their first grant; 60% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
59% of THE INTERNATIONAL WALDENSTROM'S MACROGLOBULINEMIA FOUNDATION INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $2.0M that is directly attributable, 84% of it comes from funders outside Florida, across 19 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $2.8M arriving through sponsors registered in 14 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
THE INTERNATIONAL WALDENSTROM'S MACROGLOBULINEMIA FOUNDATION INC holds deeper cash reserves than three-quarters of the 8,121 health nonprofits its size.
this organization peer median middle 50% of peers· 8,121 health nonprofits $1M–$10M, FY2024
Organizations like THE INTERNATIONAL WALDENSTROM'S MACROGLOBULINEMIA FOUNDATION INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Florida
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
88% of spending goes to programs.
Governance
Public support
95%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 36 states
Part of a family of 1 related entity
- Placid Point Rd LLC · disregarded
Screen this organization
A dated, signed PDF of the compliance screen for THE INTERNATIONAL WALDENSTROM'S MACROGLOBULINEMIA FOUNDATION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds THE INTERNATIONAL WALDENSTROM'S MACROGLOBULINEMIA FOUNDATION INC?
- THE INTERNATIONAL WALDENSTROM'S MACROGLOBULINEMIA FOUNDATION INC (Florida) receives grants from 55 organizations whose IRS filings report $4,762,989 to it, the largest being THE COMMUNITY FOUNDATION OF SARASOTA CO INC ($742,363). 33 of them have funded it in more than one year, and 59% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does THE INTERNATIONAL WALDENSTROM'S MACROGLOBULINEMIA FOUNDATION INC have?
- IRS filings report 55 organizations giving $4,762,989 in grants to THE INTERNATIONAL WALDENSTROM'S MACROGLOBULINEMIA FOUNDATION INC, 33 of which have funded it in more than one year.
- Who is the largest funder of THE INTERNATIONAL WALDENSTROM'S MACROGLOBULINEMIA FOUNDATION INC?
- THE COMMUNITY FOUNDATION OF SARASOTA CO INC is the largest funder on record, with $742,363 in grants. The full list of funders is on this page.
- How can an organization like THE INTERNATIONAL WALDENSTROM'S MACROGLOBULINEMIA FOUNDATION INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Florida. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 55 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing