Maryland · Nonprofit
INTERNATIONAL WAGR SYNDROME ASSOCIATION
INTERNATIONAL WAGR SYNDROME ASSOCIATION (Maryland) receives grants from 9 organizations whose IRS filings report $62,559 to it, the largest being THE SAUL AND THERESA ESMAN FOUNDATION INC ($16,000). 5 of them have funded it in more than one year.
- Revenue FY2025
- $74k
- Funders on record
- 9
- Grants received
- $63k
- Net assets
- $77k
What International Wagr Syndrome Association does
Mission
The International Wagr Syndrome Association (iwsa) is a patient advocacy organization with approximately 225 member families, engaged via a variety of support and information-sharing activities. The mission of the iwsa is to promote awareness, stimulate research, and support families affected by wagr syndrome. The iwsa believes in placing patients and families in the forefront of all activities of the organization. The iwsa hosts gatherings of families to share general information about wagr syndrome and to provide emotional support. Board members and other leaders of the organization attend conferences pertaining to rare disease research and patient advocacy.
As stated on its FY2025 Form 990-EZ.
Program
To promote awareness, stimulate research and support families affected by wagr syndrome.
$58,516 spent100% of program spending
The program described on its FY2025 Form 990-EZ. Program spending in total: $58,516.
The organization over time
Each line starts at 100 in 2018, so what you read is the shape rather than the size: 150 means half as much again as 2018, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $56k to $94k (+67%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
98% of INTERNATIONAL WAGR SYNDROME ASSOCIATION’s revenue is contributions — about as donation-reliant as the typical peer (100% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 8 reported years ran a deficit.
Leadership and staff
Chief executive
Shari Krantz
Executive director
Board chair
John Morris
Chairman
As listed on its FY2025 Form 990-EZ.
Who funds it, year by year
2017 → 2023: the base broadened from 1 funder to 4 funders, grant income rose $8k → $17k.
3 of 9 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 40% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of INTERNATIONAL WAGR SYNDROME ASSOCIATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
INTERNATIONAL WAGR SYNDROME ASSOCIATION leans on a few funders — its largest provides 26% of grant income and the top three 74%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
48% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund INTERNATIONAL WAGR SYNDROME ASSOCIATION.
Largest funder’s share by year: 2017 100% · 2018 100% · 2019 100% · 2020 50% · 2021 68% · 2022 42% · 2023 33% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
33% of INTERNATIONAL WAGR SYNDROME ASSOCIATION's funders are still giving 3 years after their first grant; 56% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
INTERNATIONAL WAGR SYNDROME ASSOCIATION draws 100% of its grant income from funders outside Maryland, across 6 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $25k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
INTERNATIONAL WAGR SYNDROME ASSOCIATION has grown faster than half of the 6,360 health nonprofits its size.
this organization peer median middle 50% of peers· 6,360 health nonprofits under $100k, FY2025
Organizations like INTERNATIONAL WAGR SYNDROME ASSOCIATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Maryland
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Public support
80%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 3 states
Screen this organization
A dated, signed PDF of the compliance screen for INTERNATIONAL WAGR SYNDROME ASSOCIATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds INTERNATIONAL WAGR SYNDROME ASSOCIATION?
- INTERNATIONAL WAGR SYNDROME ASSOCIATION (Maryland) receives grants from 9 organizations whose IRS filings report $62,559 to it, the largest being THE SAUL AND THERESA ESMAN FOUNDATION INC ($16,000). 5 of them have funded it in more than one year.
- How many funders does INTERNATIONAL WAGR SYNDROME ASSOCIATION have?
- IRS filings report 9 organizations giving $62,559 in grants to INTERNATIONAL WAGR SYNDROME ASSOCIATION, 5 of which have funded it in more than one year.
- Who is the largest funder of INTERNATIONAL WAGR SYNDROME ASSOCIATION?
- THE SAUL AND THERESA ESMAN FOUNDATION INC is the largest funder on record, with $16,000 in grants. The full list of funders is on this page.
- How can an organization like INTERNATIONAL WAGR SYNDROME ASSOCIATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Maryland. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds International Wagr Syndrome Association →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2018–2025), and the filings of 9 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing