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Florida · Public charity

The International Waldenstrom's Macroglobulinemia Foundation Inc

Mission objectives: (a) offer support and encouragement to the waldenstrom's macroglobulinemia community and others with an interest in the disease, (b) to provide information and educational programs that address patients and caregivers' concerns and (c) to provide and support research leading to better treatments and ultimately a cure.

$2.9M
Granted FY2024(still arriving)
6
Itemized grants FY2024
5
Organizations funded FY2023
40%
First-time grantees FY2023
Read the full brief
Itemized, FY2024
$2.1M
The rest is grants the schedule does not break out
Median grant, FY2024
$320,000
Largest grant, FY2024
$1,262,440
Organizations funded a year
4 to 6
FY2017 to FY2023
States reached, FY2024
5
Total assets, FY2024
$7.5M

How open it is to new grantees

In FY2023, 40% of the organizations The International Waldenstrom's Macroglobulinemia Foundation Inc funded were first-time grantees, receiving 86% of its grant dollars.

New vs renewed · share of each year

In FY2023, 14% of grant dollars renewed an existing relationship; $810k went to new ones.

50%100%’18’19’20’21’22’23
RenewedFirst-time

Where new relationships form · theme of each grantee’s first grant

’18’19’20’21’22’23
EducationHealthOther
How this is measured
First-time means a grantee’s first year in the filing window; renewed means funded in an earlier year too. The renewed share climbs naturally as a portfolio matures, so the signal is a year that bucks it (a wave of new grantees). The earliest year is left-censored: relationships that predate the data read as new. Theme is the grantee’s IRS cause.
The numbers by year
Fiscal yearOrganizations fundedTo those organizationsFirst-time grantees
FY2024still arriving5$1.7M20%
FY20235$940k40%
FY20225$761k20%
FY20215$911k40%
FY20204$993k0%
FY20196$885k17%
FY20186$787k33%
FY20175$823kn/a
100% classified

What it funded, over time

Every grant placed by its stated purpose and the recipient’s mission, by year, FY2017 to 2024.

Health$8.8MEducation$940kScience & Tech$550k

Where its grants go

Grant dollars by states, across the years we hold.

Which US states its grants reach

NH
MN
NY
MA
OH
CT
CA
MO
GA
TX

Top grantees

Largest recipients by total granted, FY2017 to FY2024, and the share of each one’s budget the grants supplied at peak.

GranteeTotal grantedYearsShare of their budget
Dana Farber Cancer Institute$2,929,5466n/a
Dana-Farber Cancer Institute Inc$1,992,60720%
New York University$400,00020%
University System of New Hampshire$400,0004n/a
Baylor College of Medicine$400,00050%
City of Hope$400,00050%
The Ohio State University$399,9504n/a
Regents Univ of California$360,0003n/a
Yale New Haven Hospital$180,00010%
Washington University$140,08230%
Show all 14 grantees
All grantees of The International Waldenstrom's Macroglobulinemia Foundation Inc by total granted
GranteeTotal grantedYearsShare of their budget
Dana Farber Cancer Institute$2,929,5466n/a
Dana-Farber Cancer Institute Inc$1,992,60720%
New York University$400,00020%
University System of New Hampshire$400,0004n/a
Baylor College of Medicine$400,00050%
City of Hope$400,00050%
The Ohio State University$399,9504n/a
Regents Univ of California$360,0003n/a
Yale New Haven Hospital$180,00010%
Washington University$140,08230%
Regents of the University of California at San Diego$90,0003n/a
Emory University$60,00220%
Regents of the University of California$40,0001n/a
Memorial Sloan-Kettering Cancer Center$30,00010%

Where it is load-bearing

Each grantee by its size and the share of its budget The International Waldenstrom's Macroglobulinemia Foundation Inc supplied at peak.

25%50%75%100%grantee revenue →↑ funder's share of their budgetDana-Farber Cancer Institute Inc: $1,992,607 over 2y, 0.0% of budgetNew York University: $400,000 over 2y, 0.0% of budgetBaylor College of Medicine: $400,000 over 5y, 0.0% of budgetCity of Hope: $400,000 over 5y, 0.0% of budgetYale New Haven Hospital: $180,000 over 1y, 0.0% of budgetWashington University: $140,082 over 3y, 0.0% of budgetEmory University: $60,002 over 2y, 0.0% of budgetMemorial Sloan-Kettering Cancer Center: $30,000 over 1y, 0.0% of budget

Tap a dot to name the grantee.

How this is measured
Share of budget is the funder’s grant in a year over the grantee’s total revenue that year, at its highest across the years we hold; revenue is from all sources. Only grantees confirmed against their own filings, whose grants do not exceed their revenue, are plotted: the largest 8.

Compare The International Waldenstrom's Macroglobulinemia Foundation Inc with peer funders

About The International Waldenstrom's Macroglobulinemia Foundation Inc

How much does The International Waldenstrom's Macroglobulinemia Foundation Inc give?
The International Waldenstrom's Macroglobulinemia Foundation Inc reported 6 itemized grants totaling $2,143,879, out of $2,887,764 in total grant expense reported on the return in its FY2024 IRS filing. It funded between 4 and 6 organizations a year over FY2017 to FY2023.
What does The International Waldenstrom's Macroglobulinemia Foundation Inc fund?
By grant dollars over FY2017 to FY2024, its largest causes are Health (86%), Education (9%), Science & Tech (5%).
Who are The International Waldenstrom's Macroglobulinemia Foundation Inc's largest grantees?
By total granted over FY2017 to FY2024: Dana Farber Cancer Institute ($2.9M), Dana-Farber Cancer Institute Inc ($2.0M), New York University ($400k).
Does The International Waldenstrom's Macroglobulinemia Foundation Inc fund new organizations?
In FY2023, 40% of the organizations it funded were first-time grantees.
Where is The International Waldenstrom's Macroglobulinemia Foundation Inc based?
The International Waldenstrom's Macroglobulinemia Foundation Inc is based in FL.

On method. Every financial figure here is read from IRS e-file XML, the funder’s own 990/990-PF, and from the multi-year returns of the 15 grantees we resolved, each linked to its source. Grantee outcomes are each organization’s own program-service reporting (Form 990, Part III), read as association with funding, never as caused by it. Low-confidence name matches are suppressed rather than guessed. How we build these →

How this is measured
Each figure carries one of six labels. Filed is what the funder reported on its return. Official is another government record about an organization, such as a federal award or a charity register, joined by name where no shared identifier exists. Resolved is an identity we worked out where the filing named a recipient without an EIN, kept only above a measured confidence threshold. Computed is arithmetic over those, like themes, portfolio clusters and co-funder strength. Context is a statistic about a place rather than about an organization, which is what the need overlay is: it describes the area a grantee’s address sits in, not where its work lands. Inferred is drawn by a model from text, like the partnerships read out of public news and organization websites. Each is labeled where it appears.

Generated from the IRS Form 990 e-file return for fiscal year 2024, released 2024. Filings run roughly 12 to 24 months behind; figures are dated accordingly.

Source object · view filing

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