California · Nonprofit
THE WIEDEMANN-STEINER SYNDROME FOUNDATION
THE WIEDEMANN-STEINER SYNDROME FOUNDATION (California) receives grants from 9 organizations whose IRS filings report $82,119 to it, the largest being AMERICAN ONLINE GIVING FOUNDATION INC ($28,963). 4 of them have funded it in more than one year, and 93% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2024
- $274k
- Funders on record
- 9
- Grants received
- $82k
- Net assets
- $1.0M
What The Wiedemann-Steiner Syndrome Foundation does
Mission
The Wiedemann-Steiner Syndrome Foundation provides education, fosters community, and stimulates research to improve the lives of everyone impacted by wss.
As stated on its FY2024 Form 990.
Programs
Expanded outreach through its family volunteers to serve as regional ambassadors and hosted several in-person and virtual activities to raise awareness of wss including the monthly expert virtual discussions to educate the wss community, annual wss quadrathalon, and international wss awareness day. Additionally, foundation organizes and sponsors a bi-annual conference with educational resources for obstacles wss families face, as well as research updates.
$77,246 spentof which $2,176 as grants$764 earned by the program100% of program spendingUtilized platforms to learn more about those affected by wss through "burden of illness" surveys in order to continue to evolve the goals of the foundation to meet the needs of the wss community.
Hired a chief scientific officer, who, in concert with the scientific advisory board, developed and are implementing a research strategy tobest utilize resources to meet long term goals.
Completed a wss mouse model project to set the stage for future therapy development efforts, had neurocognitive testing performed on individuals with wss to develop a neurocognitive profile, and started biomarker research.
The 4 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $77,246.
The organization over time
Each line starts at 100 in 2018, so what you read is the shape rather than the size: 150 means half as much again as 2018, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2022 to 2023, from $647k to $860k (+33%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
90% of THE WIEDEMANN-STEINER SYNDROME FOUNDATION’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 0 of the last 7 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 1 funder to 5 funders, grant income rose $6k → $22k.
6 of 9 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 93% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of THE WIEDEMANN-STEINER SYNDROME FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
THE WIEDEMANN-STEINER SYNDROME FOUNDATION leans on a few funders — its largest provides 35% of grant income and the top three 71%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
93% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund THE WIEDEMANN-STEINER SYNDROME FOUNDATION.
Largest funder’s share by year: 2017 100% · 2018 100% · 2019 100% · 2020 59% · 2021 75% · 2022 100% · 2023 50% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
50% of THE WIEDEMANN-STEINER SYNDROME FOUNDATION's funders are still giving 3 years after their first grant; 44% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
93% of THE WIEDEMANN-STEINER SYNDROME FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $6k that is directly attributable, 100% of it comes from funders outside California, across 3 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $76k arriving through sponsors registered in 5 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
THE WIEDEMANN-STEINER SYNDROME FOUNDATION runs a healthier operating margin than three-quarters of the 13,754 health nonprofits its size.
this organization peer median middle 50% of peers· 13,754 health nonprofits $100k–$1M, FY2024
Organizations like THE WIEDEMANN-STEINER SYNDROME FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In California
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
68% of spending goes to programs.
Governance
Public support
73%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 36 states
Screen this organization
A dated, signed PDF of the compliance screen for THE WIEDEMANN-STEINER SYNDROME FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds THE WIEDEMANN-STEINER SYNDROME FOUNDATION?
- THE WIEDEMANN-STEINER SYNDROME FOUNDATION (California) receives grants from 9 organizations whose IRS filings report $82,119 to it, the largest being AMERICAN ONLINE GIVING FOUNDATION INC ($28,963). 4 of them have funded it in more than one year, and 93% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does THE WIEDEMANN-STEINER SYNDROME FOUNDATION have?
- IRS filings report 9 organizations giving $82,119 in grants to THE WIEDEMANN-STEINER SYNDROME FOUNDATION, 4 of which have funded it in more than one year.
- Who is the largest funder of THE WIEDEMANN-STEINER SYNDROME FOUNDATION?
- AMERICAN ONLINE GIVING FOUNDATION INC is the largest funder on record, with $28,963 in grants. The full list of funders is on this page.
- How can an organization like THE WIEDEMANN-STEINER SYNDROME FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2018–2024), and the filings of 9 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing