California · Nonprofit
BAY AREA LYME FOUNDATION
BAY AREA LYME FOUNDATION (California) receives grants from 68 organizations whose IRS filings report $16,451,663 to it, the largest being NATIONAL PHILANTHROPIC TRUST ($3,763,500). 35 of them have funded it in more than one year.
- Revenue FY2024
- $2.3M
- Funders on record
- 68
- Grants received
- $16M
- Net assets
- $468k
What Bay Area Lyme Foundation does
Mission
The Bay Area Lyme Foundation's mission is (1) to accelerate the development of reliable diagnostic tools for all stages of lyme disease and a cure for late stage lyme through funding innovative scientific research; and (2) to foster prevention through education and awareness building.
As stated on its FY2024 Form 990.
Programs
As an independent nonprofit organization, bay area lyme is able to partner with leading researchers and institutions all across the country to support the most innovative and promising projects in lyme disease research, regardless of affiliation. True breakthroughs will occur only through well-designed research projects and at bay area lyme, we have a rigorous screening and monitoring process, grant contingencies, and project reporting, to ensure that projects are effectively designed and funds well spent. In 2024, Bay Area Lyme Foundation funded 2 grants in the amounts of $379,172 and $100,000 to two institutions across the country for a total of $479,172. $379,172 was awarded to projects focused on improved diagnostics of lyme disease and other tick-borne infections; $100,000 awarded to improve therapies, and the remaining grants for ecology and awareness projects. Duke university received a grant of $370,447 to continue the work of the late dr. Neil spector on lyme disease. The 2024 emerging leader award totaling $150,000 was awarded to a therapies project at tufts university.
$1,126,824 spentof which $999,619 as grants76% of program spendingBay Area Lyme Foundation's education and awareness programs include free ticktective podcasts, speaker series presentations and a wide variety of education and training regarding tick-bite prevention. In 2024, bay area lyme entered into its fourth year of its partnership with the american junior golf association (ajga) providing its young members with tick prevention pouches that included a tick removal key, repellant and information about lyme disease and other tick borne infections. This multi-year partnership is targeting over 10,000 youths across the country. It was the premier sponsor of 2 tournaments both held in california. Two virtual speaker series events were held in 2024 - one in the spring in boston regarding a pediatric infectious disease physicians perspective on lyme disease and neuropsychiatric manifestations and one in the fall of 2024 where guests listened to an update on the ucsf new lyme clinical trials center.
$355,969 spentof which $157,184 as grants24% of program spending
The 2 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $1,482,793.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $3.3M to $2.2M (−32%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2020 3%. Grants only. Government contracts and fees sit inside program revenue.
78% of BAY AREA LYME FOUNDATION’s revenue is contributions — about as donation-reliant as the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 5 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Linda Giampa
Executive director/secretary
As listed on its FY2024 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 12 funders to 22 funders, grant income fell $1.5M → $1.1M.
13 of 68 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 46% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
Left out of every figure on this page: $4.4M from one payer (the payer shares this organization's board, largest Bay Area Lyme Major Gift Fund). These are real filings, and they are not money BAY AREA LYME FOUNDATION raised.
From the IRS filings of BAY AREA LYME FOUNDATION’s funders (the co-funder graph). Top 30 of 68 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
BAY AREA LYME FOUNDATION has a broad base — no single funder exceeds 23% of grant income, and it takes 3 funders to reach half.
the vertical line marks half of all grant income — 3 funders to its left
55% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund BAY AREA LYME FOUNDATION.
Largest funder’s share by year: 2017 90% · 2018 71% · 2019 43% · 2020 47% · 2021 43% · 2022 34% · 2023 31% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
33% of BAY AREA LYME FOUNDATION's funders are still giving 3 years after their first grant; 51% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
BAY AREA LYME FOUNDATION draws 75% of its grant income from funders outside California, across 19 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $7.6M arriving through sponsors registered in 11 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
BAY AREA LYME FOUNDATION runs a healthier operating margin than half of the 2,910 philanthropy nonprofits its size.
this organization peer median middle 50% of peers· 2,910 philanthropy nonprofits $1M–$10M, FY2024
Government funding BAY AREA LYME FOUNDATION receives
Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $250k on record.
- Department of Health and Human Services$250k
Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.
Organizations like BAY AREA LYME FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In California
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
78% of spending goes to programs.
Governance
Public support
71%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Part of a family of 2 related entities
- Bay Area Lyme Major Gift Fund · exempt
- Lyme Disease Biobank Foundation · exempt
Screen this organization
A dated, signed PDF of the compliance screen for BAY AREA LYME FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds BAY AREA LYME FOUNDATION?
- BAY AREA LYME FOUNDATION (California) receives grants from 68 organizations whose IRS filings report $16,451,663 to it, the largest being NATIONAL PHILANTHROPIC TRUST ($3,763,500). 35 of them have funded it in more than one year.
- How many funders does BAY AREA LYME FOUNDATION have?
- IRS filings report 68 organizations giving $16,451,663 in grants to BAY AREA LYME FOUNDATION, 35 of which have funded it in more than one year.
- Who is the largest funder of BAY AREA LYME FOUNDATION?
- NATIONAL PHILANTHROPIC TRUST is the largest funder on record, with $3,763,500 in grants. The full list of funders is on this page.
- How can an organization like BAY AREA LYME FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in California. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2024 (financials across 2017–2024), and the filings of 68 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing