Michigan · Nonprofit
RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION INC
RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION INC (Michigan) receives grants from 10 organizations whose IRS filings report $1,505,208 to it, the largest being THE COMMUNITY FOUNDATION OF LOUISVILLE CORPORATE DEPOSITORY INC ($652,600). 8 of them have funded it in more than one year, and 68% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2026
- $694k
- Funders on record
- 10
- Grants received
- $1.5M
- Net assets
- $742k
What Relapsing Polychondritis Awareness and Support Foundation Inc does
Mission
The rp foundation's mission is to: (a) increase awareness about relapsing polychondritis; (b) provide support (primarily through the use of the internet, social media, and patient advocacy programs) for those who are affected by relapsing polychondritis, support research to advance a cure for relapsing polychondritis; (c) promote quality care for relapsing polychondritis patients; and (d) engage in such other activities in connection therewith that the board of directors may authorize, in all cases subject to the provision of section 501(c)(3) of the internal revenu code of 1986, as amended, or the corresponding provisions of any subsequent federal tax law (the "code").
As stated on its FY2026 Form 990.
Programs
Awareness: the rp foundation partnered with mclaren trophy america during the 2025- 2026 racing season to significantly expand awareness and support for rp research. Race for rp branding appeared on every mclaren trophy america race car throughout the season, while on-site activations and paddock engagement opportunities connected thousands of fans with the foundation's mission. The partnership also introduced the "win a hot lap" fundraising campaign, which encouraged fan participation through donations and helped attract new supporters. The collaboration generated both fundraising success and increased visibility through charity auctions held at the indianapolis motor speedway and the mclaren technology centre in woking, united kingdom. Together, these efforts broadened awareness of rp and autoimmune disease research, engaged new audiences within the motorsports community, and contributed to one of the most impactful years in race for rp's history. The partnership has continued into the 2026 season, with new awareness initiatives launching at sonoma raceway. The 2025 warrior walk was a record-breaking awareness and fundraising campaign, raising more than 25,000 in just two weeks…
$54,766 spent10% of program spendingResearch: the rp foundation's investments in rp and related autoimmune disease research accelerated significant progress in fy26, advancing understanding of disease biology, clinical outcomes, and treatment while expanding access to specialized care. Through foundation support, the penn rp program, now among the largest centers in the world dedicated to rp research and care, served more than 150 patients and enrolled nearly all eligible patients into the vasculitis clinical research consortium (vcrc) longitudinal study, creating an unparalleled clinical and biospecimen repository for ongoing scientific discovery. A major milestone was the launch of prospect-rp, the first-ever clinical trial for relapsing polychondritis. The study evaluates two promising immunomodulatory therapies identified through longitudinal cohort research and is generating critical data on treatment effectiveness while helping establish clinical trial methodologies for future rp studies. Researchers are also comparing multiple disease activity measurement tools, including the rp disease activity index (rpdai), to determine the most effective way to assess disease activity in future therapeutic trials. The…
$479,342 spentof which $153,138 as grants85% of program spendingEducation: in fy26, foundation-supported research gained international visibility through presentations at a major international vasculitis conference. Studies presented by penn investigators explored the implications of ocular involvement for disease progression in rp and evaluated the rp disease activity index as a tool for measuring patient disease activity. The foundation also produced testimonial videos featuring newly diagnosed patients, helping educate the rp community and raise awareness of the challenges and experiences associated with the disease.
$26,656 spent5% of program spendingFundraising in fy26, the relapsing polychondritis (rp) foundation, a guidestar platinum seal of transparency nonprofit organization, furthered its commitment to advancing rp and related autoimmune disease research through a series of innovative fundraising initiatives. Funds raised through these efforts directly support research programs that are expanding scientific understanding of rp, accelerating therapeutic development, and improving outcomes for patients. Highlights of fy26 fundraising activities include: "giving tuesday and year-end giving campaigns: annual fundraising appeals that helped grow engagement, connect supporters, and generate critical funding for rp research. "rp warrior 5k walk: a global, patient-centered awareness and fundraising event that mobilized individuals and families to support vital rp research and advocacy efforts. "carb night happy hour with james hinchcliffe and friends: held in conjunction with indianapolis race festivities, this unique event brought together motorsports drivers, supporters, and community members for an evening featuring exclusive auction items and selections from root & bone's award-winning menu. Proceeds benefited both the rp…
The 4 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $560,764.
The organization over time
Each line starts at 100 in 2019, so what you read is the shape rather than the size: 150 means half as much again as 2019, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $108k to $1.1M (+946%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 2%. Grants only. Government contracts and fees sit inside program revenue.
98% of RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION INC’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 4 of the last 8 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Board chair
Neil Langberg
Chair
As listed on its FY2026 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 1 funder to 2 funders, grant income rose $8k → $11k.
8 of 10 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 68% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION INC leans on a few funders — its largest provides 43% of grant income and the top three 84%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
68% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION INC.
Largest funder’s share by year: 2017 100% · 2019 95% · 2020 94% · 2021 84% · 2022 53% · 2023 90% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
100% of RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION INC's funders are still giving 3 years after their first grant; 80% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
68% of RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $489k that is directly attributable, 100% of it comes from funders outside Michigan, across 2 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $1.0M arriving through sponsors registered in 7 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION INC has grown faster than three-quarters of the 175 health nonprofits its size.
this organization peer median middle 50% of peers· 175 health nonprofits $100k–$1M, FY2026
Organizations like RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Michigan
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
81% of spending goes to programs.
Governance
Public support
99%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION INC?
- RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION INC (Michigan) receives grants from 10 organizations whose IRS filings report $1,505,208 to it, the largest being THE COMMUNITY FOUNDATION OF LOUISVILLE CORPORATE DEPOSITORY INC ($652,600). 8 of them have funded it in more than one year, and 68% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION INC have?
- IRS filings report 10 organizations giving $1,505,208 in grants to RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION INC, 8 of which have funded it in more than one year.
- Who is the largest funder of RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION INC?
- THE COMMUNITY FOUNDATION OF LOUISVILLE CORPORATE DEPOSITORY INC is the largest funder on record, with $652,600 in grants. The full list of funders is on this page.
- How can an organization like RELAPSING POLYCHONDRITIS AWARENESS AND SUPPORT FOUNDATION INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Michigan. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2026 (financials across 2019–2026), and the filings of 10 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing