New York · Nonprofit
CUREPSP INC
CUREPSP INC (New York) receives grants from 190 organizations whose IRS filings report $6,179,561 to it, the largest being SKYLIGHT CHARITABLE TRUST ($1,150,000). 84 of them have funded it in more than one year.
- Revenue FY2025
- $7.9M
- Funders on record
- 190
- Grants received
- $6.2M
- Net assets
- $9.9M
What Curepsp Inc does
Mission
To raise awareness, build community, improve care and find a cure for psp, cbd and msa.
As stated on its FY2025 Form 990.
Programs
Curepsp supports scientific research aimed at developing new treatments and ultimately a cure for progressive supranuclear palsy (psp) and corticobasal degeneration (cbd), both primary tauopathies. The organization funds and facilitates research projects that advance understanding of these diseases while also contributing to broader scientific knowledge relevant to other neurodegenerative conditions, including alzheimer's disease, pick's disease, argyrophilic grain disease, chronic traumatic encephalopathy, and certain forms of familial frontotemporal dementia.continued on schedule ocurepsp's funding and partnerships are strategically focused on advancing research in several key areas: (a) understanding the causes and risk factors of neurodegeneration, (b) discovering and validating actionable biomarkers and clinical tests to enhance diagnosis and increase the likelihood of more effective clinical trials, (c) identifying genetic variants linked to these diseases, (d) developing therapies that could prevent, halt, or reverse the brain damage caused by the pathological accumulation of proteins, (e) assisting pharmaceutical, biotech, and diagnostic companies, as well as research…
$2,252,697 spentof which $1,170,733 as grants$3,218 earned by the program47% of program spendingThe prevalence of progressive supranuclear palsy (psp) is comparable to that of als (amyotrophic lateral sclerosis), yet psp, along with corticobasal degeneration (cbd) and multiple system atrophy (msa), remains significantly underrecognized compared to als. Curepsp is dedicated to raising awareness for these conditions and supporting the patients, families, and caregivers affected by them, empowering them to advocate effectively for their needs. The organization is committed to enhancing quality of life and patient outcomes by building a resilient and supportive community that grow awareness nationally and globally. Continued on schedule ocurepsp pursues these goals through volunteer development programs, professional education, and the distribution of educational resources both online and in print for the public and healthcare professionals. Additionally, it actively shares vital information through social media and online newsletters. Curepsp engages in advocacy to advance public policies that improve care, support research, and increase awareness. The organization mobilizes patients, care partners, and volunteers to participate in legislative outreach, educates policymakers…
$1,101,271 spentof which $30,000 as grants23% of program spendingCurepsp publishes a library of printed and online educational materials for families, patients, physicians, and other healthcare professionals. These materials are developed in collaboration with curepsp centers of care, a network of hospitals and best-in-class academic centers specializing in treating patients with psp, cbd, and msa. Curepsp sponsors educational conferences in collaboration with leading institutions to increase knowledge and support people living with these fatal diseases. The objective is to promote education, earlier and more accurate diagnosis and better patient care. Several dozen volunteer events annually, supported by curepsp, further educate, and empower our community to prepare for their care needs. (continue on schedule o)curepsp utilizes social media, online platforms, and educational programming to communicate with and support patients, care partners, and healthcare professionals. The organization maintains an online patient and caregiver forum, produces national webinars and educational presentations from clinicians and researchers, and hosts "ask the experts" interactive sessions. Curepsp also organizes online support groups, annual wellness…
$1,398,788 spentof which $539,353 as grants29% of program spending
The 3 programs described on its FY2024 Form 990, listed largest first by expense. Program spending in total: $4,752,756.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $5.4M to $8.4M (+57%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 2%. Grants only. Government contracts and fees sit inside program revenue.
95% of CUREPSP INC’s revenue is contributions — more reliant on donations than three-quarters of its peers (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2017 → 2023: the base broadened from 32 funders to 63 funders, grant income rose $305k → $958k.
28 of 190 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 44% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of CUREPSP INC’s funders (the co-funder graph). Top 30 of 190 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
CUREPSP INC has a broad base — no single funder exceeds 19% of grant income, and it takes 5 funders to reach half.
the vertical line marks half of all grant income — 5 funders to its left
52% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund CUREPSP INC.
Largest funder’s share by year: 2017 26% · 2018 24% · 2019 17% · 2020 16% · 2021 22% · 2022 24% · 2023 26% — broadly stable.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
30% of CUREPSP INC's funders are still giving 3 years after their first grant; 44% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
CUREPSP INC draws 93% of its grant income from funders outside New York, across 37 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $2.7M arriving through sponsors registered in 17 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
CUREPSP INC runs a healthier operating margin than three-quarters of the 5,002 health nonprofits its size.
this organization peer median middle 50% of peers· 5,002 health nonprofits $1M–$10M, FY2025
Organizations like CUREPSP INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New York
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
81% of spending goes to programs.
Governance
Public support
95%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 28 states
Screen this organization
A dated, signed PDF of the compliance screen for CUREPSP INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds CUREPSP INC?
- CUREPSP INC (New York) receives grants from 190 organizations whose IRS filings report $6,179,561 to it, the largest being SKYLIGHT CHARITABLE TRUST ($1,150,000). 84 of them have funded it in more than one year.
- How many funders does CUREPSP INC have?
- IRS filings report 190 organizations giving $6,179,561 in grants to CUREPSP INC, 84 of which have funded it in more than one year.
- Who is the largest funder of CUREPSP INC?
- SKYLIGHT CHARITABLE TRUST is the largest funder on record, with $1,150,000 in grants. The full list of funders is on this page.
- How can an organization like CUREPSP INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New York. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 190 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing