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Massachusetts · Nonprofit

International OCD Foundation Inc

International OCD Foundation Inc (Massachusetts) receives grants from 94 organizations whose IRS filings report $13,894,680 to it, the largest being JEWISH COMMUNAL FUND ($6,395,518). 42 of them have funded it in more than one year, and 63% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.

Revenue FY2025
$5.7M
Funders on record
94
Grants received
$14M
Net assets
$4.3M
42/94 repeat funderspeak grant-dependency 52%
01What it does

What International OCD Foundation Inc does

Mission

The mission of the International OCD Foundation (IOCDF) is to ensure that no one affected by OCD and related disorders suffers alone. IOCDF's community provides help, healing, and hope.

As stated on its FY2025 Form 990.

Program

  1. Increase public awareness of obsessive compulsive disorders (OCD). Also provides information and referrals to treatment providers in the form of pamphlets, newsletters, a web site, and its annual conference and BTTI fees, etc. over 2,000,000 individuals benefit from IOCDF's efforts.

    $5,725,935 spentof which $1,043,535 as grants$2,282,731 earned by the program
    100% of program spending

The program described on its FY2025 Form 990. Program spending in total: $5,725,935.

02The organization over time

The organization over time

Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.

100 = 20172017 Revenue 100 ($2.2M) Expenses 100 ($2.1M) Net assets 100 ($1.1M)2018 Revenue 144 ($3.1M) Expenses 117 ($2.4M) Net assets 159 ($1.8M)2019 Revenue 166 ($3.6M) Expenses 140 ($2.9M) Net assets 233 ($2.6M)2020 Revenue 171 ($3.7M) Expenses 129 ($2.7M) Net assets 330 ($3.6M)2021 Revenue 231 ($5.0M) Expenses 178 ($3.6M) Net assets 455 ($5.0M)2022 Revenue 222 ($4.8M) Expenses 195 ($4.0M) Net assets 490 ($5.4M)2023 Revenue 237 ($5.1M) Expenses 250 ($5.1M) Net assets 510 ($5.6M)2024 Revenue 257 ($5.5M) Expenses 276 ($5.7M) Net assets 496 ($5.5M)2025 Revenue 263 ($5.7M) Expenses 348 ($7.2M) Net assets 388 ($4.3M)
'17'18'19'20'21'22'23'24'25
Revenue (263)Expenses (348)Net assets (388)Peer revenue range

Balance sheet

Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $5.4M to $7.8M (+44%).

$1.3M
$2.0M
$2.8M
$4.1M
$5.4M
$7.8M
$7.7M
$7.5M
$6.4M
'17'18'19'20'21'22'23'24'25
Total assetsTotal liabilities

How it's funded, over time

Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.

2017
2018
2019
2020
2021
2022
2023
2024
2025
ContributionsProgram revenueInvestmentOther

Government-grant reliance: 2021 4%. Grants only. Government contracts and fees sit inside program revenue.

58% of International OCD Foundation Inc’s revenue is contributions — more donation-reliant than the typical peer (51% for the typical peer).

This organization
Typical peer · 8,632 orgs

Surplus & reserves

Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 9 reported years ran a deficit.

$103k
’17
$708k
’18
$693k
’19
$1.0M
’20
$1.3M
’21
$772k
’22
−$28k
’23
−$127k
’24
−$1.5M
’25
2.8
months of
reserve

Leadership and staff

The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.

Chief executive

Rebecca Deusser

Executive Director

As listed on its FY2025 Form 990.

The chief executive listed changed between the FY2023 and FY2024 filings.

'17'18'19'20'21'22'23'24'25
Listed131313141513191919
Joined·+4+3+3+3+2+7+5+2
No longer listed·43224152
03Who funds it

Who funds it, year by year

2017 → 2023: the base broadened from 16 funders to 30 funders, grant income rose $959k → $2.5M.

23 of 94 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 63% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.

From the IRS filings of International OCD Foundation Inc’s funders (the co-funder graph). Top 30 of 94 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How concentrated its funding is

International OCD Foundation Inc leans on a few funders — its largest provides 46% of grant income and the top three 75%; half comes from just 2 funders.

the vertical line marks half of all grant income — 2 funders to its left

65% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund International OCD Foundation Inc.

46%
largest funder
75%
top three
~4
effective funders

Largest funder’s share by year: 2017 90% · 2018 78% · 2019 80% · 2020 55% · 2021 81% · 2022 42% · 2023 52% — diversifying over time.

“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

How long its funders stay

33% of International OCD Foundation Inc's funders are still giving 3 years after their first grant; 45% give in more than one year at all.

first grant+1y+2y+3y+4y+5y+6y

Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.

Where its funders are

63% of International OCD Foundation Inc's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $5.2M that is directly attributable, 93% of it comes from funders outside Massachusetts, across 23 states.

ID
MN
IL
WI
NY
MA
OR
IN
OH
PA
NJ
CT
CA
MO
VA
MD
AZ
TN
NC
LA
GA
TX
FL

In-state vs out-of-state, by year

’17
’18
’19
’20
’21
’22
’23
Massachusetts out of state home

Funder states come from each funder’s own filing. $8.7M arriving through sponsors registered in 14 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.

04Its place in the field

Against its field

International OCD Foundation Inc has grown faster than half of the 5,002 health nonprofits its size.

Operating margin−26% · bottom quartile
Months of reserve2.8mo · below the median
Revenue growth (annualized)13% · above the median

this organization peer median middle 50% of peers· 5,002 health nonprofits $1M–$10M, FY2025

Organizations like International OCD Foundation Inc

Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.

In Massachusetts

Nationally

05Profile & governance

Read directly from this organization’s own Form 990, as neutral context.

Where the money goes

80% of spending goes to programs.

Program 80%Management 14%Fundraising 5%

Governance

11
board members
100%
independent
✓Conflict-of-interest policy✓Whistleblower policy✓Document retention✓Board reviewed the 990✓Audited financials

Public support

98%

Share of support from the public (Schedule A) — the basis for its public-charity status.

Footprint & structure

Files a return copy in 1 state

MA

Screen this organization

A dated, signed PDF of the compliance screen for International OCD Foundation Inc: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.

A paid feature, included from the $75 plan up. Sign in to download.

Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf

Questions and answers

Who funds International OCD Foundation Inc?
International OCD Foundation Inc (Massachusetts) receives grants from 94 organizations whose IRS filings report $13,894,680 to it, the largest being JEWISH COMMUNAL FUND ($6,395,518). 42 of them have funded it in more than one year, and 63% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
How many funders does International OCD Foundation Inc have?
IRS filings report 94 organizations giving $13,894,680 in grants to International OCD Foundation Inc, 42 of which have funded it in more than one year.
Who is the largest funder of International OCD Foundation Inc?
JEWISH COMMUNAL FUND is the largest funder on record, with $6,395,518 in grants. The full list of funders is on this page.
How can an organization like International OCD Foundation Inc find more funders?
Start with the funders already giving here, then look at the foundations that back similar organizations in Massachusetts. The funding by cause and by state pages list the largest funders for a given area and how to approach them.

These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 94 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing