Washington, D.C. · Nonprofit
Institute for Exceptional Care
Institute for Exceptional Care (Washington, D.C.) receives grants from 37 organizations whose IRS filings report $3,298,514 to it, the largest being THE ROBERT WOOD JOHNSON FOUNDATION ($940,000). 20 of them have funded it in more than one year.
- Revenue FY2025
- $1.1M
- Funders on record
- 37
- Grants received
- $3.3M
- Net assets
- $1.6M
What Institute for Exceptional Care does
Mission
Transforming healthcare for people with intellectual and developmental disabilities, so they can thrive.
As stated on its FY2025 Form 990.
Program
Thought Leadership: Institute for Exceptional Care (IEC) chaired the Planning Committee for a public workshop of the National Academy of Science, Engineering, and Medicine, on the policy, clinical, and business actions needed to build an integrated system of care for people with intellectual and/or developmental disabilities (I/DD). The workshop featured over 30 stakeholders and experts in the field, addressing the critical topics of better coordination of support services across clinical and home- and community-based sectors, improving the cultural and technical preparedness of the general clinical workforce to care for people with I/DD, and improving financing and payment to sustain effective care models. IEC also: Led the design of all disability-related discussions at a national health equity conference with over 9,000 attendees from across the fields of clinical care and health policy. Produced an analysis of federal policy options to improve mental health outcomes for people with I/DD. Co-chaired other workshops and publications from the National Academy of Medicine on policy and programmatic options for improving the health of communities, particularly for vulnerable…
$1,007,215 spent$146,730 earned by the program100% of program spending
The program described on its FY2025 Form 990. Program spending in total: $1,007,215.
The organization over time
Each line starts at 100 in 2020, so what you read is the shape rather than the size: 150 means half as much again as 2020, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2023 to 2024, from $1.1M to $2.5M (+132%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
85% of Institute for Exceptional Care’s revenue is contributions — more donation-reliant than the typical peer (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 6 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2020 → 2023: the base broadened from 1 funder to 18 funders, grant income rose $10k → $629k.
14 of 37 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 21% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of Institute for Exceptional Care’s funders (the co-funder graph). Top 30 of 37 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
Institute for Exceptional Care leans on a few funders — its largest provides 28% of grant income and the top three 61%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
28% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund Institute for Exceptional Care.
Largest funder’s share by year: 2020 100% · 2021 44% · 2022 25% · 2023 48% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
50% of Institute for Exceptional Care's funders are still giving 2 years after their first grant; 54% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
Institute for Exceptional Care draws 100% of its grant income from funders outside Washington, D.C., across 12 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $677k arriving through sponsors registered in 9 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
Institute for Exceptional Care has grown faster than three-quarters of the 5,002 health nonprofits its size.
this organization peer median middle 50% of peers· 5,002 health nonprofits $1M–$10M, FY2025
Organizations like Institute for Exceptional Care
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Washington, D.C.
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
66% of spending goes to programs.
Governance
Public support
40%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 10 states
Screen this organization
A dated, signed PDF of the compliance screen for Institute for Exceptional Care: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds Institute for Exceptional Care?
- Institute for Exceptional Care (Washington, D.C.) receives grants from 37 organizations whose IRS filings report $3,298,514 to it, the largest being THE ROBERT WOOD JOHNSON FOUNDATION ($940,000). 20 of them have funded it in more than one year.
- How many funders does Institute for Exceptional Care have?
- IRS filings report 37 organizations giving $3,298,514 in grants to Institute for Exceptional Care, 20 of which have funded it in more than one year.
- Who is the largest funder of Institute for Exceptional Care?
- THE ROBERT WOOD JOHNSON FOUNDATION is the largest funder on record, with $940,000 in grants. The full list of funders is on this page.
- How can an organization like Institute for Exceptional Care find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Washington, D.C.. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Institute for Exceptional Care →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2020–2025), and the filings of 37 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 22, 2026. What this page cannot tell you · view filing