Wisconsin · Nonprofit
CONQUERING CONGENITAL HEART DISEASE
CONQUERING CONGENITAL HEART DISEASE (Wisconsin) receives grants from 22 organizations whose IRS filings report $235,465 to it, the largest being THE NEMOURS FOUNDATION ($65,000). 8 of them have funded it in more than one year.
- Revenue FY2023
- $292k
- Funders on record
- 22
- Grants received
- $235k
- Net assets
- $18k
What Conquering Congenital Heart Disease does
Mission
At conquering chd we exist to conquerin the most common birth defect. We engage, listen, learn, and act. We create visibility and empower all impacted by chd. We accomplish this through awareness, knowledge, community and research.
As stated on its FY2023 Form 990.
Programs
Learning your child has congenital heart disease can be overwhelming. Many children with congenital heart disease need life saving surgery or intervention in the first few weeks or months of their life. This leads to important medical decisions about the care of your child, often in a short amount of time and under stress. However, the ability to get important information about where your child will get their treatment is limited. The organization is working to address this issue on many levels. We empower patients and families directly through the use of the guided questions tool. Given to families at the time of diagnosis, this list of questions offers support and confidence when talking to doctors, surgeons and the care team about quality, what to expect when in the hospital, and beyond. Although widely distributed.
$29,154 spent$24,000 earned by the program38% of program spendingThe organization continues to grow our direct impact through the implementation of a state chapter infrastructure. While independent entities, our state chapters are provided with administrative and leadership support, branded resources, core care package materials and group exemption through the national organization. This program was discontinued december 2023.
$46,712 spent$40,376 earned by the program62% of program spendingNot described on the e-filed return.
$0 spent0% of program spending
The 3 programs described on its FY2023 Form 990, listed largest first by expense. Program spending in total: $75,866.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2017 to 2018, from $65k to $319k (+387%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 9% · 2022 9%. Grants only. Government contracts and fees sit inside program revenue.
86% of CONQUERING CONGENITAL HEART DISEASE’s revenue is contributions — more donation-reliant than the typical peer (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 3 of the last 7 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Carissa Ostrom
Executive Director
As listed on its FY2023 Form 990.
The chief executive listed changed between the FY2020 and FY2021, and between the FY2021 and FY2022, and between the FY2022 and FY2023 filings.
Who funds it, year by year
2017 → 2023: the base broadened from 2 funders to 6 funders, grant income rose $13k → $24k.
6 of 22 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 47% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of CONQUERING CONGENITAL HEART DISEASE’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
CONQUERING CONGENITAL HEART DISEASE has a broad base — no single funder exceeds 28% of grant income, and it takes 3 funders to reach half.
the vertical line marks half of all grant income — 3 funders to its left
91% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund CONQUERING CONGENITAL HEART DISEASE.
Largest funder’s share by year: 2017 98% · 2018 91% · 2019 58% · 2020 33% · 2021 84% · 2022 43% · 2023 52% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
9% of CONQUERING CONGENITAL HEART DISEASE's funders are still giving 3 years after their first grant; 36% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
CONQUERING CONGENITAL HEART DISEASE draws 100% of its grant income from funders outside Wisconsin, across 10 states in all.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $111k arriving through sponsors registered in 5 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
CONQUERING CONGENITAL HEART DISEASE's funding base is broadening — from 2 funders to 6 as grant income climbed.
this organization peer median middle 50% of peers· 13,352 health nonprofits $100k–$1M, FY2023
Organizations like CONQUERING CONGENITAL HEART DISEASE
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Wisconsin
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
87% of spending goes to programs.
Governance
Public support
100%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for CONQUERING CONGENITAL HEART DISEASE: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds CONQUERING CONGENITAL HEART DISEASE?
- CONQUERING CONGENITAL HEART DISEASE (Wisconsin) receives grants from 22 organizations whose IRS filings report $235,465 to it, the largest being THE NEMOURS FOUNDATION ($65,000). 8 of them have funded it in more than one year.
- How many funders does CONQUERING CONGENITAL HEART DISEASE have?
- IRS filings report 22 organizations giving $235,465 in grants to CONQUERING CONGENITAL HEART DISEASE, 8 of which have funded it in more than one year.
- Who is the largest funder of CONQUERING CONGENITAL HEART DISEASE?
- THE NEMOURS FOUNDATION is the largest funder on record, with $65,000 in grants. The full list of funders is on this page.
- How can an organization like CONQUERING CONGENITAL HEART DISEASE find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Wisconsin. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Conquering Congenital Heart Disease →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2023 (financials across 2017–2023), and the filings of 22 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing