New Jersey · Nonprofit
CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION
CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION (New Jersey) receives grants from 17 organizations whose IRS filings report $699,570 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($220,350). 9 of them have funded it in more than one year, and 97% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $1.2M
- Funders on record
- 17
- Grants received
- $700k
- Net assets
- $900k
What Congenital Adrenal Hyperplasia Research Education and Support Foundation does
Mission
Cares foundation is a nonprofit organization committed to improving the lives of families and individuals affected by congenital adrenal hyperplasia (cah) through proactively advancing research for a better understanding of cah, better treatments and a cure; educating the public and healthcare professionals about all forms of cah; advocating for universal newborn screening; immediate, appropriate emergency medical treatment; and comprehensive lifelong care; as well as support services and resources vital to the cah community worldwide.
As stated on its FY2025 Form 990.
Programs
Research/CCC: This CARES-designated Comprehensive Care Center provides a multi-disciplinary approach to treatment of the CAH patient throughout the lifecycle.
$201,000 spent21% of program spendingFamily support & education provides educational materials and information for living with the daily challenges of congenital adrenal hyperplasia (cah). Our tools help those affected by cah to better care and advocate for themselves and their families. Our conferences enable our community to have direct access to the top experts in the country and provide opportunites for connecting with others.
$135,936 spent14% of program spendingWarmline support provides individuals and parents of children with cah a one-on-one source of information and support, which includes physician and resource referrals, via telephone, email and mail.
$124,970 spent13% of program spendingPrograms-other
$34,263 spent4% of program spendingCah awareness-educating the public and physicians about all forms of congenital adrenal hyperplasia, its symptoms, portocols, treatments, genetic frequency and the necessity of early intervention and benefits of newborn screening.
$34,260 spent4% of program spendingProgram travel
$34,260 spent4% of program spendingProgram supplies
$34,260 spent4% of program spendingCah awareness walks
$34,260 spent4% of program spendingResearch
$34,260 spent4% of program spendingCah products
$34,260 spent4% of program spendingEms
$34,260 spent4% of program spendingNewsletters
$34,260 spent4% of program spendingCah awareness-other
$34,260 spent4% of program spendingEndo/ice conference
$34,260 spent4% of program spendingProgram postage
$34,260 spent4% of program spendingProgram printing
$34,260 spent4% of program spendingProgram consulting
$34,260 spent4% of program spending
The 17 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $941,549.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $541k to $754k (+39%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 8%. Grants only. Government contracts and fees sit inside program revenue.
52% of CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION’s revenue is contributions — more donation-reliant than the typical peer (51% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Dina Matos
Executive director
Board chair
Jessica Margolies
Chair
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 2 funders to 9 funders, grant income rose $14k → $80k.
8 of 17 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 97% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION leans on a few funders — its largest provides 31% of grant income and the top three 75%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
98% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION.
Largest funder’s share by year: 2017 95% · 2018 76% · 2019 55% · 2020 54% · 2021 38% · 2022 49% · 2023 38% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
60% of CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION's funders are still giving 3 years after their first grant; 53% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
97% of CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $21k that is directly attributable, 100% of it comes from funders outside New Jersey, across 4 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $679k arriving through sponsors registered in 8 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION holds deeper cash reserves than three-quarters of the 4,665 health nonprofits its size.
this organization peer median middle 50% of peers· 4,665 health nonprofits $1M–$10M, FY2025
Organizations like CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In New Jersey
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
84% of spending goes to programs.
Governance
Public support
98%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 13 states
Screen this organization
A dated, signed PDF of the compliance screen for CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION?
- CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION (New Jersey) receives grants from 17 organizations whose IRS filings report $699,570 to it, the largest being DONOR ADVISED CHARITABLE GIVING INC ($220,350). 9 of them have funded it in more than one year, and 97% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION have?
- IRS filings report 17 organizations giving $699,570 in grants to CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION, 9 of which have funded it in more than one year.
- Who is the largest funder of CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION?
- DONOR ADVISED CHARITABLE GIVING INC is the largest funder on record, with $220,350 in grants. The full list of funders is on this page.
- How can an organization like CONGENITAL ADRENAL HYPERPLASIA RESEARCH EDUCATION AND SUPPORT FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in New Jersey. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Congenital Adrenal Hyperplasia Research Education and Support →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 17 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing