Minnesota · Nonprofit
CADASIL ASSOCIATION
CADASIL ASSOCIATION (Minnesota) receives grants from 9 organizations whose IRS filings report $444,159 to it, the largest being Silicon Valley Community Foundation ($400,000). 4 of them have funded it in more than one year, and 99% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $257k
- Funders on record
- 9
- Grants received
- $444k
- Net assets
- $394k
What Cadasil Association does
Mission
The mission of curecadasil is to raise awareness of cadasil, ensuring it will be universally recognized and understood by the medical community, enabling patients to be correctly diagnosed. We are dedicated to helping all touched by cadasil,improving education available on cadasil and promote and support research for this rare disease
As stated on its FY2025 Form 990.
Program
Cadasil is an hereditary small vessel disease caused by mutations in the notch3 gene. These mutations lead to progressive changes in the small brain arteries and reduced blood flow to the brain. We aim to share these cadasil vessel-on-chip with the international cadasil research community to promote cadasil research. We aim to unite patients and the medical community toward the common goal of treatments and ultimately a cure for this rare genetic disease, by promoting communication, advocacy, research, and education. For the year ended december 31, 2025 the following care programs and activities were operated: communication -scientific advisory board (sab) became fully operational and members were selected to review mdbr grant applications -held the third annual 2025 patient-investigator meeting that brought patients, family members, and caregivers together with investigators in an in-person meeting -provided on-going patient and family support by answering questions sent to us online and at meetings and connecting patients to physicians who treat patients with cadasil advocacy -provided letters of support for studies in cadasil research -continued on-boarding of the "cadasil…
$103,486 spent100% of program spending
The program described on its FY2025 Form 990. Program spending in total: $103,486.
The organization over time
Each line starts at 100 in 2021, so what you read is the shape rather than the size: 150 means half as much again as 2021, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2021 to 2022, from $114k to $340k (+199%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
100% of CADASIL ASSOCIATION’s revenue is contributions — more reliant on donations than three-quarters of its peers (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 5 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Who funds it, year by year
2018 → 2023: the base broadened from 1 funder to 2 funders, grant income fell $12k → $11k.
4 of 9 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 99% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of CADASIL ASSOCIATION’s funders (the co-funder graph). Top 8 of 9 funders by total. Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
CADASIL ASSOCIATION leans on a few funders — its largest provides 90% of grant income and the top three 99%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
99% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund CADASIL ASSOCIATION.
Largest funder’s share by year: 2018 100% · 2020 100% · 2021 80% · 2022 99% · 2023 90% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
25% of CADASIL ASSOCIATION's funders are still giving 1 year after their first grant; 44% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
99% of CADASIL ASSOCIATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $3k that is directly attributable, 100% of it comes from funders outside Minnesota, across 5 states.
Funder states come from each funder’s own filing. $441k arriving through sponsors registered in 3 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
CADASIL ASSOCIATION runs a healthier operating margin than three-quarters of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like CADASIL ASSOCIATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Minnesota
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
96% of spending goes to programs.
Governance
Screen this organization
A dated, signed PDF of the compliance screen for CADASIL ASSOCIATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds CADASIL ASSOCIATION?
- CADASIL ASSOCIATION (Minnesota) receives grants from 9 organizations whose IRS filings report $444,159 to it, the largest being Silicon Valley Community Foundation ($400,000). 4 of them have funded it in more than one year, and 99% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does CADASIL ASSOCIATION have?
- IRS filings report 9 organizations giving $444,159 in grants to CADASIL ASSOCIATION, 4 of which have funded it in more than one year.
- Who is the largest funder of CADASIL ASSOCIATION?
- Silicon Valley Community Foundation is the largest funder on record, with $400,000 in grants. The full list of funders is on this page.
- How can an organization like CADASIL ASSOCIATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Minnesota. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2021–2025), and the filings of 9 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing