Pennsylvania · Nonprofit
C & S PATIENT EDUCATION FOUNDATION
C & S PATIENT EDUCATION FOUNDATION (Pennsylvania) receives grants from 19 organizations whose IRS filings report $240,637 to it, the largest being VANGUARD CHARITABLE ENDOWMENT PROGRAM ($140,000). 11 of them have funded it in more than one year, and 80% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $417k
- Funders on record
- 19
- Grants received
- $241k
- Net assets
- $648k
What C & S Patient Education Foundation does
Mission
The organization is dedicated to improving the experiences and outcomes of chiari and syringomelia patients by: 1.providing accurate, up-to-date, and easy to understand information to patients so that they can take control of their health care and make intelligent,informed decisions. 2. Raising awareness among family, friends, and the general public so that they can better understand what patients are going through and are better able to provide support. 3.raising awareness among, and providing accruate, up-to-date information to the medical community, so that errors in diagnosis and treatment are reduced. 4.sponsoring research to advance the understanding of these conditions and in the end conquer chiari.
As stated on its FY2025 Form 990.
Program
Grants for research projects focused on improving diagnostics, assessing the cognitive effects of chiari, genetics research, and other critical areas. Most funding is directed towards the conquer chiari research center (ccrc), the world's first research laboratory dedicated solely to advancing the medical and scientific understanding of chiari malformation. The ccrc is a state of the art facility, staffed with distinguished researchers, working diligently to: apply the latest engineering techniques and analysis to improve diagnoses and treatment options, leverage the conquer chiari patient registry to study the epidemiology and natural history of chiari, foster collaborations with leading clinicians and scientists to advance the conquer chiari research agenda and act as a focal point for the chiari research.
$224,058 spentof which $71,432 as grants100% of program spending
The program described on its FY2025 Form 990. Program spending in total: $224,058.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2020 to 2021, from $453k to $650k (+43%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2020 7% · 2021 8%. Grants only. Government contracts and fees sit inside program revenue.
102% of C & S PATIENT EDUCATION FOUNDATION’s revenue is contributions — more reliant on donations than three-quarters of its peers (82% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 2 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Chief executive
Richard Labuda
Executive director, secret
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base broadened from 1 funder to 8 funders, grant income rose $50 → $12k.
7 of 19 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 80% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of C & S PATIENT EDUCATION FOUNDATION’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
C & S PATIENT EDUCATION FOUNDATION leans on a few funders — its largest provides 58% of grant income and the top three 79%; half comes from just 1 funder.
the vertical line marks half of all grant income — 1 funder to its left
92% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund C & S PATIENT EDUCATION FOUNDATION.
Largest funder’s share by year: 2017 100% · 2018 96% · 2019 64% · 2020 33% · 2021 72% · 2022 73% · 2023 82% — diversifying over time.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How long its funders stay
36% of C & S PATIENT EDUCATION FOUNDATION's funders are still giving 3 years after their first grant; 58% give in more than one year at all.
Share of funders still giving k years after their first recorded grant, pooled across every acquisition cohort. A funder counts as retained in a year only if it made a grant that year. Measured to FY2023, the last fiscal year that has finished arriving — a funder cannot be counted as lapsed in a year most filers have not reached.
Where its funders are
80% of C & S PATIENT EDUCATION FOUNDATION's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $49k that is directly attributable, 100% of it comes from funders outside Pennsylvania, across 9 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $192k arriving through sponsors registered in 7 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
C & S PATIENT EDUCATION FOUNDATION holds deeper cash reserves than three-quarters of the 7,883 health nonprofits its size.
this organization peer median middle 50% of peers· 7,883 health nonprofits $100k–$1M, FY2025
Organizations like C & S PATIENT EDUCATION FOUNDATION
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Pennsylvania
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
57% of spending goes to programs.
Governance
Public support
82%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 37 states
Screen this organization
A dated, signed PDF of the compliance screen for C & S PATIENT EDUCATION FOUNDATION: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds C & S PATIENT EDUCATION FOUNDATION?
- C & S PATIENT EDUCATION FOUNDATION (Pennsylvania) receives grants from 19 organizations whose IRS filings report $240,637 to it, the largest being VANGUARD CHARITABLE ENDOWMENT PROGRAM ($140,000). 11 of them have funded it in more than one year, and 80% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does C & S PATIENT EDUCATION FOUNDATION have?
- IRS filings report 19 organizations giving $240,637 in grants to C & S PATIENT EDUCATION FOUNDATION, 11 of which have funded it in more than one year.
- Who is the largest funder of C & S PATIENT EDUCATION FOUNDATION?
- VANGUARD CHARITABLE ENDOWMENT PROGRAM is the largest funder on record, with $140,000 in grants. The full list of funders is on this page.
- How can an organization like C & S PATIENT EDUCATION FOUNDATION find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Pennsylvania. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 19 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing