Massachusetts · Nonprofit
CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION INC
CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION INC (Massachusetts) receives grants from 4 organizations whose IRS filings report $65,068 to it, the largest being NETWORK FOR GOOD ($27,568). 2 of them have funded it in more than one year, and 54% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- Revenue FY2025
- $14M
- Funders on record
- 4
- Grants received
- $65k
- Net assets
- $8.2M
What Center for Information and Study on Clinical Research Participation Inc does
Mission
Our core mission is to provide accessible, relevant, useful, high-quality educational resources, programs, and services that increase awareness and understanding of the clinical research process; recognize and appreciate the unprecedented gift of participation in clinical trials; enhance and enrich the participation experience for patients and their families; and promote engagement and partnership between clinical research professionals, patients, and the public.
As stated on its FY2025 Form 990.
Programs
Health communication services - provide study volunteers with the results of their clinical trial by creating and delivering plain language summaries, plain language translations of informed consent documents, legal documents, websites, plain language summaries of publications & protocol synopses. Health literacy education and workshops.
$6,693,485 spent$8,945,979 earned by the program62% of program spendingResearch services - engaging patients and their support network to obtain meaningful insights for sponsors - including but not limited to pharmaceutical, biotechnology and medical device companies, contract research organizations, academic and for-profit institutions, foundations and nonprofit organizations. Provide patient & care partner advisory boards, clinical trial journey workshops, and custom research projects.
$2,433,503 spent$3,905,376 earned by the program23% of program spendingContent licensing - licensing or purchase of ciscrp educational content, videos and brochures.
$1,052,551 spent$425,443 earned by the program10% of program spendingMarketing - provide educational materials to help the public learn about clinical research and what it means to be a clinical research volunteer. Minority outreach media campaign to highlight the importance of diversity among clinical study participants.
$629,902 spent6% of program spending
The 4 programs described on its FY2025 Form 990, listed largest first by expense. Program spending in total: $10,809,441.
The organization over time
Each line starts at 100 in 2017, so what you read is the shape rather than the size: 150 means half as much again as 2017, 50 means half. The number beside each label in the key is where it ended. The shaded band is where the middle 50% of its peers' revenue would sit, given their growth.
Balance sheet
Total assets and total liabilities at each year end, in dollars. The largest one-year move in total assets was 2024 to 2025, from $8.4M to $10M (+24%).
How it's funded, over time
Each bar is one year's revenue split into where it came from, and every bar is the same height — these are shares, not amounts, so a year that raised twice as much looks the same size. Hover a bar for the split.
Government-grant reliance: 2021 4% · 2022 0% · 2024 1%. Grants only. Government contracts and fees sit inside program revenue.
3% of CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION INC’s revenue is contributions — about as donation-reliant as the typical peer (7% for the typical peer).
Surplus & reserves
Operating surplus or deficit each year, and months of liquidity in hand. 1 of the last 9 reported years ran a deficit.
reserve
Leadership and staff
The officers, directors, trustees and key employees listed on each return. Joined and no longer listed compare each filing with the year before, matching people by surname and first initial; a year after a gap, or a roster under three people, has no comparison.
Board chair
Kenneth Getz
Board chair
As listed on its FY2025 Form 990.
Who funds it, year by year
2017 → 2023: the base narrowed from 3 funders to 1 funder, grant income fell $30k → $8k.
2 of 4 of your funders are donor-advised or pass-through sponsors (tagged DAF) — 54% of grant dollars received. That money is really individual donors directing a sponsor; the institutions to cultivate are the non-DAF funders.
From the IRS filings of CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION INC’s funders (the co-funder graph). Association, not causation. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
How concentrated its funding is
CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION INC leans on a few funders — its largest provides 42% of grant income and the top three 92%; half comes from just 2 funders.
the vertical line marks half of all grant income — 2 funders to its left
100% of the income these shares are computed over arrives through pass-through sponsors or from payers whose filings do not say what kind of payment it is. Concentration is still measured over all of it, because the money is real; what it does not support is a claim about how many institutions have chosen to fund CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION INC.
Largest funder’s share by year: 2017 51% · 2018 55% · 2019 100% · 2023 100% — growing more concentrated.
“Effective funders” = inverse Herfindahl index (1 / Σ shareᵢ²) — the number of equal-sized funders that would give the same concentration. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Where its funders are
54% of CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION INC's grant income arrives through donor-advised or pass-through sponsors, whose addresses record where the money is held rather than where the donor is. Of the $30k that is directly attributable, 100% of it comes from funders outside Massachusetts, across 2 states.
In-state vs out-of-state, by year
Funder states come from each funder’s own filing. $35k arriving through sponsors registered in 2 states is excluded from the map and the split above: a sponsor holds money on a donor’s behalf, so its registered address would place those dollars somewhere no donor need ever have been. Trends are read to FY2023, the last fiscal year that has finished arriving. FY2024–FY2026 are still being filed and are shown unshaded; they do not move any figure on this page.
Against its field
CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION INC has grown faster than three-quarters of the 2,843 health nonprofits its size.
this organization peer median middle 50% of peers· 2,843 health nonprofits $10M–$100M, FY2025
Government funding CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION INC receives
Grants and contracts to this organization from federal (USASpending) and state checkbooks, reconciled to its EIN. $491k on record.
- Department of Health and Human Services$491k
Federal grants vs contracts are distinguished; state line items keep their reported category. Matched by name + geography (the BMF), so coverage is partial and precision-first.
Organizations like CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION INC
Organizations whose mission and program text most resemble this one, by semantic similarity over every organization in the US filings — the closest peers, and often the clearest route to shared or prospective funders.
In Massachusetts
Nationally
Read directly from this organization’s own Form 990, as neutral context.
Where the money goes
85% of spending goes to programs.
Governance
Public support
62%
Share of support from the public (Schedule A) — the basis for its public-charity status.
Footprint & structure
Files a return copy in 1 state
Screen this organization
A dated, signed PDF of the compliance screen for CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION INC: IRS status (Business Master File, Publication 78, auto-revocation), the OFAC sanctions lists, the Internal Revenue Bulletin, and California registration, with the Rev. Proc. 2018-32 §8.01 reliance elements stated element by element. Generated from the current files at the moment you download it.
Screens are triage, not determinations; a source that cannot be read reports not screened, never clear. Screen this nonprofit · How the screen works · on the API as GET /api/screening/{ein}?format=pdf
Questions and answers
- Who funds CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION INC?
- CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION INC (Massachusetts) receives grants from 4 organizations whose IRS filings report $65,068 to it, the largest being NETWORK FOR GOOD ($27,568). 2 of them have funded it in more than one year, and 54% of the money arrives through donor-advised or pass-through sponsors rather than from an institution directly.
- How many funders does CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION INC have?
- IRS filings report 4 organizations giving $65,068 in grants to CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION INC, 2 of which have funded it in more than one year.
- Who is the largest funder of CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION INC?
- NETWORK FOR GOOD is the largest funder on record, with $27,568 in grants. The full list of funders is on this page.
- How can an organization like CENTER FOR INFORMATION AND STUDY ON CLINICAL RESEARCH PARTICIPATION INC find more funders?
- Start with the funders already giving here, then look at the foundations that back similar organizations in Massachusetts. The funding by cause and by state pages list the largest funders for a given area and how to approach them.
Play a game about who funds Center for Information and Study on Clinical Research Participation →
These figures are read directly from IRS Form 990 / 990-PF e-file XML: this organization’s own return for FY2025 (financials across 2017–2025), and the filings of 4 funders that report grants to it. “On record” means captured in the filings we have parsed — a funder that does not e-file, or whose grant detail is not itemized, will not appear. Filings run roughly 12–24 months behind. Trends on this page end at FY2023, the last fiscal year that has finished arriving; later years are shown and marked, and move no figure. Data on this page was exported October 14, 2026. What this page cannot tell you · view filing